Who else out there has to deal with the long term effects of end stage renal disease on the mind,body physical and mental. 15 years ESRD myself
I need to know if anyone has any issues from being on kidney dialysis for end stage renal disease. What is happening to your body and mind after being on dialysis for longer than the 5 to 7 years that is the normal for someone to be expected to live with ESRD on dialysis. I know you can live longer but I have soo many weird side effects from dialysis for 15 years and when I try to tell my doctors that these issues are not going away and getting worse they just smile and say it is all part of growing old. I feel like I am not being heard and taken seriously and I feel like they do know what is going on but do not want to do anything. I feel like I am talking to myself. No one cares until I am just in soo much pain or soo physically ill or soo tired that I can no longer do for them or go to dialysis and then they get mad because I am inconvenienceing them ( they have to move my dialysis time around or have to arrange a ride for me or have to find a way to meet my spend down to keep insurance) I looked up long term issues for dialysis patients and no one will even look at the info as I am literally crying begging them to look at the stuff I looked up because it is EXACTLY WHAT MY BODY IS DOING! They just pat me on the head and tell me that They will look into it later or take it to so and so doctor or they just ignore me totally or blame my being ill in other ways and on and on. I may be a broken clock but even a broken clock is still capable of telling the correct time once in a while if given a chance. Long term effects of long term dialysis and Endstage renal disease please!!! Anyone?? #longTermEffects and symptoms of chronic illness