Lupus Nephritis

Hi, my name is LadyLibra66. I'm looking for ways to cope with the guilt, and sadness of having Lupus, a chronic illness for 4 decades. My guilt and sadness is because I feel like compared to what I was like (up until only 10 years ago,) and how much I’ve progressed, is letting my family , especially my wonderful husband down! They all try to reassure me, I’m the only one feeling this way, but I find it hard to believe, since the bulk of daily chores have landed on , especially my husbands lap. I worry, he feels resentful, because at time he’ll just snap or yell, if I as a simple question. Maybe I’m making too much out of it, and I need to stop feeling like I ruined everything for all of us! Thank you for reading. I’m so happy I stumbled on to this site! Cheers to all🫶

#MightyTogether #Lupus #LupusNephritis

Hi, my name is Nacosta2629. I'm here because

#MightyTogether #LupusNephritis

Hi, my name is Deevine1973. I'm here because these are my diagnoses, but they don’t have me!

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Fibromyalgia #ADHD #PTSD #RheumatoidArthritis #EatingDisorder #AutoimmuneHyperlipidemia #AutoimmuneThyroidDisease #AutoimmuneRetinopathy #AutoimmunePancreatitis #LupusNephritis #ChronicPain #ChronicKidneyDisease #ChronicPancreatitis #ChronicFatigueSyndrome

Hi, my name is Jaden519. I'm here because

#MightyTogether #Anxiety #Fibromyalgia #Lupus #LupusNephritis #Arthritis

Hi, my name is Amandie82. I'm here because I want to know different ways to deal with chronic pain.

#MightyTogether #RheumatoidArthritis #LupusNephritis

Hi, my name is Letty84. I'm here because

#MightyTogether #LupusNephritis #Lupus

Hi, my name is Sentence_4_life.

I'm worried about where to go from here. I have been dealing with these issues for a very long time. I feel like the doctors are tired of finding more and more autoimmune issues. I am tired of hearing it and having to deal with the effects. The medical issues I have, hold me back. But the medications are worse. I want to move and live my remainder of my life somewhere I would like to be. Because the regulations of the medications, it is the real issue of me not being able to move somewhere more affordable. The government has stepped in, and the doctors are no longer taking the proper care for you and your stuck if you are put on opioids early on and moving to another state isn't as easy as it sounds. Finding another set of doctors like I have now. Is extremely difficult, regardless of all your images, records, reports, medical documentation. They want you to start all over again and not prescribe the same meds. I am 62 years old. I just want to move where I wish to. Go to a doctor's office get to know the doctor like the old days. Get my medication filled and go back to my life. I have been attempting it for 3 years. I hit brick walls of what another doctor wants and etc. I'm old, tired, and want to relax for my remainder here.

#MightyTogether #Anxiety #Depression #Migraine #ADHD #RheumatoidArthritis #OCD #Fibromyalgia #MultipleSclerosis #Endometriosis #LupusNephritis #Lupus #RaynaudsPhenomenon #CeliacDisease #SjogrensSyndrome #Arthritis #PeripheralNeuropathy

I was diagnosed with Lupus nephritis after a horrible flare up 7 months ago. Since then it’s been nothing but a laundry list of medications and doctors visits and blood tests. The medications are horrible namely prednisone with all of the side effects like moon face, insomnia, and weight gain. I don’t want this to be my forever. I’ve seen people say they’ve “cured” themselves by diet and lifestyle changes. Can anyone speak to this? If not any suggestions of medications other than prednisone?? Thank you in advance!

Hi, my name is Djjohnson1410. I'm here because I am living with lupus and I’m barely able to walk or move my joints swell up all the time my doctor finally has me on infusions but they don’t seem to be helping and I’m wondering if anyone else has came up with something that has helped them

#MightyTogether #LupusNephritis #Lupus