Autoimmune Thyroid Disease

Join the Conversation on
Autoimmune Thyroid Disease
2.4K people
0 stories
73 posts
  • About Autoimmune Thyroid Disease
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in Autoimmune Thyroid Disease
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices

    I feel like I might die from a broken heart

    I've read about how people can actually die from a broken heart years ago. I never had high blood pressure until this past year, my cholesterol is high and both my parents had heart disease including my younger brother by the age of 40 he had 2 hear attacks. I constantly have chest pain but I have anxiety too so it could be that. But part of me wouldn't mind if I did pass away from broken heart. I'm so alone and I have told my family how I'm not doing well emotionally, mentally and physically #epilpsey #AutoimmuneThyroidDisease #hashimotos just to name a few. But I receive nothing in response except that I'm sure where you live in they must have agencies to help you. I'm trying to find a reason to continue... I wouldn't take my life because of how I know what the aftermath is from #Suicide but I really would like it be over.

    3 people are talking about this
    Community Voices

    Anxiety and recent panic attack problems

    Sooooo….. recently I’ve been having really odd sleep patterns (alseep 2 hours early, up awake 4-6 hours earlier than I used to) and daily panic attacks for what I feel is practically no reason. After my recent bloodwork I may know, in part, why. I have autoimmune hypothyroidism that resulted in a total thyroidectomy in 2016, so my levels are based mostly on my weight, which I’ve been losing steadily. My TSH(thyroid stimulating hormone) was 0.0379! Normal minimum is 0.5, so at that level I was lucky panic attacks and slightly elevated blood pressure was all I had! Holy crow, was I scared! At least I can start telling myself it’ll get better- I hope! Ugh and phew! #PanicAttack #AutoimmuneThyroidDisease #Hypothyroid #hyperthyroid

    1 person is talking about this
    Community Voices

    Long time, no see.

    <p>Long time, no see.</p>
    2 people are talking about this
    Community Voices

    What are you all doing today?

    <p>What are you all doing today?</p>
    19 people are talking about this
    Jenny Stiles

    Sharing the Same Hypothyroidism Diagnosis as Those in My Family

    On August 17th, I got diagnosed with hypothyroidism and autoimmune disease, and it has left me feeling as normal as I have ever felt. Four months ago, after getting my unexpected third period and a wonky blood test, I was scheduled for a thyroid and antibodies blood test. My doctor thought I had hypothyroidism, and I thought that was ridiculous. I have no less than five chronic illnesses, and I did not gain a single one from my genetics. My mother had both hypothyroidism and autoimmune disease, my father and brother struggle with unruly immune systems as well. There was no way I had a thyroid problem or autoimmune disease. This would just become yet another mystery diagnosis I would have to painstakingly explain over and over again. On the way too early morning in August, I woke up, hit the button on my Nespresso, and waited for my doctor’s front desk woman to figure out how to send a Zoom invite to the appointment that would tell me what I already knew: everything looked normal. They had no idea what was wrong with me, again. I spent an hour looking at a blank Zoom screen while my coffee went cold, contemplating what kind of workday I would be having. Finally, I was staring at Dr. Dewan’s grown-out beard and wayward bangs. He was staring down at some papers. “How long have you had an autoimmune disease, Jennifer?” He asked. My heart stopped, my lips curled upward, “Never!” “Well, you do now, and it looks like a moderate case of hypothyroidism.” “That’s what my mother has!” Genetic black sheep no longer. Finally, I had an actual concrete diagnosis, one that you could see in numbers on a lab sheet, not just a doctor’s confused shrug. “OK, then I will send a prescription to the pharmacy. It’s probably exactly what your mother takes. You should feel better in about three months.” An answer. Is this how medicine was supposed to work: problem, test, answers, solution? I had never lived this way. It’s always been, “I don’t have a diagnosis. No, there’s no name for what I have.” One diagnosis doesn’t take back or change my other medical history. The kidney disease, cystic organs and backward bowels are still a medical mystery, something my high school best friend called “Jenny syndrome.” A mix of things that should have and did try to kill me repeatedly, but have made me the actual definition of unique. It’s been hypothesized that no one in the world has my anatomy or my cocktail of medical conditions. But here I was normal, regular, moderate, boring, hypothyroidism. A disease that more than 10 million people in the U.S. have. Later that day, when my mother came home, I asked what medication she was on; she takes double my dose. Finally, not alone, not the odd one out, just like her, just like the rest of my family, alike, familiar, familial. It feels a bit like finding kin you didn’t know you had. I’m finally like someone else, no longer the other. I’m just alike.

    Community Voices

    Energy Saving Mode

    <p>Energy Saving Mode</p>
    Community Voices

    Any tips?

    <p>Any tips?</p>
    1 person is talking about this
    Community Voices

    Weird sensations in body?

    Hello. I’m new to my autoimmune journey. I am three months post partum with my 3rd child. The beginning of June I got really sick out of knowhere but covid, flu and strep were all negative. I and was in and out of the hospital multiple times being told “everything is fine” and only having a low grade fever.

    I was having intense night sweats, body aches and pains, burning in my face and arms but nothing to show for it. I got tingling in my face occasionally pins and needles in my hands. I have also been experiencing burning mouth. I still experience these symptoms everyday but just not as severely as when it started.

    Went to a rheumatologist and he did the blood work and it showed positive for anti thyroid peroxidase. He didn’t go into further detail and told me to go to an endocrinologist. I can’t be seen till November 01st. Yay specialist 🙄

    Went to a neurologist, still doing testing but my T4 and T3 are apparently “normal”. Thyroid issues run heavily in my family.

    Does anyone else experience weird sensory symptoms? I feel crazy. My doctors make me feel crazy because I’m post partum and I’m freaked out. Neurologist prescribed with cymbalata. Does anyone have a good history taking cymbalata at all?
    #hashimotos #hashimotos #HashimotosThyroiditis #AutoimmuneThyroidDisease #AutoimmuneDisease #help

    3 people are talking about this
    Community Voices

    The last day I felt normal.

    <p>The last day I felt normal.</p>
    2 people are talking about this
    Community Voices

    Beyond Overwhelmed and then Overwhelmed beyond that. Can anyone understand?

    <p>Beyond Overwhelmed and then Overwhelmed beyond that. Can anyone understand?</p>
    2 people are talking about this