Celiac Disease

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What people don’t realize

You know what sucks? People don’t realize that having celiac doesn’t mean if I avoid gluten I’m fine. I still just sometimes feel sick, for no good reason. Todays one of those days. #CeliacDisease #BadDay

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Hey y'all!

I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.

(edited)
110 reactions 15 comments
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Dating with chronic illnesses.

Hey all. I'm currently going through a divorce, after almost 21 years of marriage. Considering I've already been grieving that relationship for a few years, I'd like to get back out there (while taking things slow). It's definitely a bit overwhelming though. I married when I was 19 and my ex is the only person I've had sex with (tmi, sorry). I never dated much. On top of that, I have Fibromyalgia, Dysautonomia, Celiac Disease (so no restaraunt dates for me), and Chronic Fatigue Sydrome. I have some mobility issues, can't be very active, don't have a car, etc etc.

Does anyone have any tips on how to handle these concerns? I don't want to blurt out all of my health issues and symptoms right away. But I also want to give some sort of heads up so they're not shocked when I show up with a cane or have my mom drop me off. Argh. Life.

18 reactions 5 comments
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Airbourne gluten ingestion

I am new to this group. I am searching for answers. I feel so defeated. I was diagnosed around 2 years ago. I am a teacher and a mom. Between my students, my children, and the public in general, I seem to be ingesting gluten through others. It's in the air and I get ill. Really ill. It is debilitating. #CeliacDisease

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I'm new here!

Hi! I'm here because I want to learn more about recent diagnosis for chronic Lyme & dysautonomia (still figuring out what) & treatment options. I do have other co/chronic illness as well.

#MightyTogether #Migraine #Dysautonomia #CeliacDisease #LymeDisease #chroniclyme #sibo #EBV

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Changed the name of the group

Hello friends! You will notice I change the name of the group, even though the purpose of the group has not changed, I want to focus on the journey and not the destination.

This summer, I really want to continue my outdoor adventures and have as much time as I can with the people I love. What are your summer goals?

#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#RaynaudsDisease #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe

43 reactions 22 comments