Celiac Disease

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    I’m new here!

    Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮‍💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔

    #MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations

    5 reactions 3 comments
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    Happy Rare Disease Day!

    Today is a day of awareness for rare diseases, of which I have a few. For those of you who belong to the rare disease family; Happy Rare Disease Day! 🥳💜

    Anyone who wants to know more about rare diseases, click here: www.rarediseaseday.org

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder #Migraine
    #Asthma
    #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #RaynaudsDisease #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe

    26 reactions 5 comments
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    Hello!

    It has been a while since I have posted. There is an odd feeling to surviving. Almost a guilt, because I said my goodbyes, and was at peace with going, but my body was not ready to let go. My best friend ended up calling an ambulance, I was hospitalized for more than two weeks and released. I have been doing a ton of testing since. I have found an amazing pain specialist. Working with a great physiotherapist I got walking again. I am trying to spend as much time as I can with my family, friends, puppies. I am eating good food and playing outside. Pain levels are really high, but I am coping and finding all the joy I can. I am very happy that I get a second chance to find as many silver linings as I can. Life is as always, more good than bad.

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #DevelopmentalDisability #DistractMe

    77 reactions 19 comments
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    If someone causes us trauma should we forgive them? Keep them in our lives? Cut them out? Are there factors that impact that choice?

    I think there are many factors that impact the choice (are they still hurting you, can you move past, do they accept responsibility and want to change…).

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #CPTSD #FunctionalNeurologicalDisorder #Migraine
    #Asthma
    #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #MentalHealth #Depression
    #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe

    79 reactions 22 comments
    Post

    I am new here

    I have Rheumatoid Arthritis, Osteoarthritis, Spinal and Cervical Stenosis, Small fiber neuropathy, Poly Arteritis Nodosa, Celiac Disease and Gastroparesis.

    1 reaction 1 comment
    Post

    New to this and struggling

    Hi everyone. I was recently diagnosed with bipolar depression after living for years and years (I'm 40) thinking I had unipolar depression. I'm hopeful that new meds will help but struggling to be ok with the label.

    I know, I know it's just a diagnosis and it will most likely help me get better control of my ever swinging moods and endless dark days but I've always been an open book to the world. I run a high school program for kids with emotional and behavioral disabilities and they all know that I am a type 1 diabetic that has celiac disease and struggles with anxiety and that all just feels so apart of my identity. And I know that my REAL problem is that for my entire life I have thought that my mom has bipolar but she has never really gotten the help she needs. She was pretty terrible to me as a kiddo (and would be now if I let her in) and for so long I've worked to not be her.

    Sorry I'm rambling, but I have all these feelings and thoughts and just don't know what to do with them. I want to tell all the people in my life about my diagnosis, because it explains so much, and let them know that I am working toward feeling better. I want to tell my family and lost friends that it isn't completely my fault that I've dropped the ball for so many years. But there's something in me that refuses to let that happen.

    Does it get easier? I've been in this hole for so long that I honestly forget what it's like to be ok. I'm seeing my psychiatrist for the second time this afternoon and I think that will help and I've scheduled an appointment with a counselor but I am just so afraid that I will remain stuck.

    15 reactions 4 comments
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    What are your favourite aids for making life easier?

    I am so fortunate to have so many things to make my life easier. My comfy lift chair, Apple Watch, trike, Medical bed, scoot scoot (my scooter), my accessible bath and lifts are just a few of my amazing aids. What things to you use or hacks?

    #Abunchofrarediseases #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #Trauma
    #raynauds #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe

    109 reactions 36 comments
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    I’m new here!

    Hi, my name is Stellar_Falk. I'm here because
    I'm looking for tips and must haves for pregnancy and post partum recovery while dealing with chronic illnesses. My husband and I are wanting to try soon! I should say i have a dietitian and my doctor is aware of my illnesses and has set up to have special care once I am pregnant (fingers crossed). I've been doing a lot of research but I find it best to hear from people with experience to know their must have products or things to be prepared for. My list of illnesses are in the hashtags 😅😵‍💫
    #MightyTogether #ehlers-DanlosSyndrome #HypermobilitySyndrome #CeliacDisease #Anxiety #ADHD

    14 reactions 10 comments