Does anyone get a lot of bladder infections? I just had a 6-7 week bladder infection that led to a kidney infection...I still don't feel better after the antibiotics, does anyone else have this issue? #Lupus #Fibromyalgia #infections #ChronicPain #ChronicFatigue #RareDisease #ChronicIllness #LupusGroupies #MightyTogether
Hi Lupies!! 35 newbies have joined within the last month 😍WELCOME!! Please feel free to introduce yourself and tell us your Lupus Journey. We welcome everyone with love and acceptance. This is a safe place to vent or seek advice or just to use as an outlet where people understand and can relate to your sufferings and pain. I'm Brionna or Bri your Community Leader. I was diagnosed in March 2018 and have been struggling with anxiety and depression as well. I'm happy I found the Mighty and I hope I provide some support for my fellow Lupies 💜💜💜💜💜💜💜#Lupus #Depression #LupusGroupies #Anxiety #ChronicIllness #ChronicPain #RareDisease #welcome #MightyTogether
Thank you for everyone who has joined this group. We are all trying to figure out this disease one day at a time! I hope one day there is a cure for all of us. Also let's welcome our 26 new members, please feel free to introduce yourselves and your diagnosis story, we would love to hear from you! #Lupus #LupusAwarenessMonth #LupusGroupies #ChronicIllness #InvisibleIllness #welcome
Hi Lupus Mighties! Sorry I've been a little MIA. Dealing with some at home relationship issues and decided to open up a dialogue about it to see if others can relate. Feel free to vent here or to give/seek advice because that is what the Mighty is for!
I feel like my significant other has unattainable standards for me and I am overwhelmed and exhausted. I have #Lupus and #Fibromyaliga and #Anxiety and sometimes #Depression . I work full-time but he expects me to do all the cleaning, dishes, laundry, grocery shopping, and meal prepping/cooking, and take care of all the pets needs. It's just too much and I can't do it all on my own. Is anyone else experiencing this? I am trying to do it all but I feel like my happiness and personal needs and rest are put on the side burner. Any tips for explaining to your partner you can't do it? How to ask for help? How to set boundaries? Or anyone else experiencing this and want to vent/share? We are all here for each other! Sorry I've taken some time away because I have just been too busy trying to live up to others expectations and I apologize for being absent. Know I'm here for you all 💜 and I appreciate any and all feedback!
How is everyone doing? My anxiety is high and I'm feeling so overwhelmed...anyone else struggling right now?
#Lupus #LupusGroupies #Anxiety #Depression
I wish I could be more vulnerable and open with them, but I always tell everyone I am okay, or they assume I'm okay. I don't know how to talk about mental health with them. Is anyone else like this? Or just me? I can't seem to express myself or make people understand. #MentalHealth #Lupus #Depression #Fibromyaliga #ChronicPain #PTSD #ChronicIllness #LupusGroupies #RareDiseases
Sorry Mighties, I have been absent again for awhile. I am SO overwhelmed. I'm an essential employee so I've been working 50+ hour weeks and trying to plan our wedding--which basically everything was cancelled and we need a new plan, so I'm discouraged and depressed and have so much anxiety. I'm also moving in after we get married so I have to start packing as well, all while dealing with this terrible Lupus or Fibro flare-up and I am in so much pain and just want to cry and quit my job so I can nap. I'm so overwhelmed and I just haven't had the energy to post anything. Sorry for being a bad community leader and especially to my Lupus Groupies who I haven't communicated with in 2 weeks! 😭 I just needed to vent to someone who could understand so thank you!
#Lupus #Fibromyaliga #ChronicPain #Anxiety #Depression #DistractMe #ChronicIllness #LupusGroupies #InvisibleIllness #MentalHealth #RareDisease
We almost made it through another week! YAY US!!! I see we have more group members---please introduce yourselves. We want to get to know you and what you are struggling with.
This week, for me I continued my job as normal, as a scientist I went out in the field to do wetland delineations but had a major flare-up and my temperature stayed at 94 F for 3 days, I couldn't get warm and felt terrible. I took Epsom salt baths daily and used my heating pad all day! Was in so much pain and could barely walk yesterday, I'm thankful it's almost the weekend. Post a picture of your week! How was it? Please share with us!
PS Happy Earth Week ♻️🌎🌿🌼
#Lupus #LupusGroupies #MentalHealth #InvisibleIllness #ChronicPain #LupusDiagnosis #Fibromyalgia #Disability #COVID19
I'll go first! My name is Brionna and I love hiking! 🌿☀️⛰️ Unfortunately having lupus sometimes makes hiking, traveling, or even being outdoors a little tough; but we are warriors so I will never give up on my passion! I got diagnosed with Lupus while I was in Nicaragua living and volunteering as a teacher. I was told I had Lupus in a foreign language, with no family/friend support in a foreign place it was a bit overwhelming to say the least. Long story short I decided to fly home early to get treatment in the United States. I met my fiancé 4 weeka after I came home early so I guess you could say things worked out? 🤷🏻♀️Having Lupus and other autoimmune diseases sucks sometimes so let's welcome each other with open arms and tell our stories! What is your name, favorite activity, and how you got diagnosed? #welcome #IntroduceYourself #Lupus #AutoimmuneDisease #InvisibleIllness
Paisley supports us!! You can do this! #Lupus #LupusGroupies #MentalHealth #Disease #InvisibleIllness
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