Lyme Wars

Join the Conversation on
Lyme Wars
574 people
0 stories
89 posts
  • Explore Our Newsletters
  • What's New in Lyme Wars
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post

    Herx question for Lyme

    I’ve had some severe Herx Reactions that lead me to Er. Horrendous. I don’t even remember the 3 weeks I was forcing myself to take Doxy plaquenil and Tinidazole. NOPE NEVER! I am on a lot of supplements which I’m sure you all are. But thanks be been tolerating Byron Whites a-l complex. Knocked me down at first but now I’m up to 15 drops a day. Dr added Clarithromycin a week ago ( I was terrified) I seem to be tolerating and having less Herx episodes. Does this mean it’s stopped working or I’m getting better? I know you’re not Dr’s. Just looking for opinions.
    #LymeDisease #lyme #lymewarriors #ChronicIllness #LymeWars #ChronicLymeDisease

    8 comments
    Post
    See full photo

    Just a picture that made me laugh on a bad day. Hope you all enjoy! #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #Spoonie #ChronicIllness

    3 comments
    Post

    Anyone else’s leg going numb?

    I got diagnosed with Lyme in November of 2018, but had it for 8-9 years before getting diagnosed. Pain is in my jaw, both hips, and both knees along with brain issues (mood changes, anxiety). Lately, I have been having a throbbing pain in my left hip and my left leg goes numb. The numb isn’t like a static pain, but when I move my leg, I get sharp pains up and down my leg. Please help! #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #ChronicIllness #Spoonie #SpoonieProblems #COVID19

    7 comments
    Post
    See full photo

    Hi everyone! It’s been a while since I have posted. How is everyone doing? Has anyone been doing anything fun or interesting lately? I’d like to hear about it! I have just been doing laundry, cleaning, playing with my dogs, and doing lots of puzzles. The puzzle in the picture is the most recent one I have completed. Since the beginning of quarantine, I have completed 8 puzzles and I still have 3 that I have to finish. Puzzles keep my mind off of the pain I’m always in and they make me happy.
    #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #ChronicIllness #COVID19 #Spoonie #DistractMe

    7 comments
    Post
    See full photo

    Yesterday, I graduated!! The families stayed in their cars and the graduates sat in front of the cars, but 6 feet away from the other graduates as well. We had to stop every once and a while as it had started raining and thundering. I’m glad that my small school and our town approved of this graduation ceremony. I know a lot of schools aren’t getting a real ceremony and my principal fought for this because he wanted to give us what we deserved. I loved my school and will miss it greatly.
    #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #ChronicIllness #COVID19 #Classof2020 #2020 #Graduation

    18 comments
    Post
    See full photo

    Happy Lyme Disease Month!! Day 31

    Last day!! I thought this would be such an easy task, but it wasn’t. Trying to think of something everyday, especially when my brain isn’t working right, is quite difficult. I hope you all have learned from these 31 posts and will stand up for yourself, others, and educate everyone.
    #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #ChronicIllness #COVID19 #Spoonie #Pain #Cure #SpreadTheWord

    2 comments
    Post
    See full photo

    Happy Lyme Disease Month!! Day 30

    This is so frustrating! You don’t know how it is unless you’ve spent countless hours up because of pain, spent hours in a doctors office trying to convince them, taking so many pills that you almost choke.
    #lyme #LymeDisease #LymeWars #LymeWarrior #ChronicLymeDisease #ChronicIllness #COVID19 #Spoonie #Cure #SpreadTheWord #Pain

    12 comments