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    My undiagnosed illness symptoms

    Here are my symptoms at the moment:

    Weight gain

    - Previously I was always on the thin end of the spectrum now on the overweight boundary

    - Have been passively been trying to loose weight for 18 months (usually I barely have to try to loose weight)

    - Average exercise 30-60mins/ day

    - I look pregnant

    - None of my clothes fit anymore

    Brain fog

    -Can’t concentrate

    - Poor memory

    - Feels sludgy, no smooth thoughts

    - Almost constant headache

    Frequent illness/ infections

    - Getting ill once a month with a cold/ flu something like that

    - Have developed nasal polyps as a result

    - Recovery slow avg 2-3 weeks which means I’m ill 50-70% of the time

    Absolutely exhausted

    - Could sleep for England Sometimes struggle to get to sleep

    - Can easily sleep well over 12hrs but up to 24hrs at a time

    - Difficult to get up in the morning, everything heavy

    Loss of libido

    - 3-4x per week down to 1x per month

    Nipple discharge

    - Started in January 2022

    - Can be clear, milky or clear with yellow in it

    - Often spontaneous after a shower

    Numbness and tingling in hands and fingers

    - Palm of right hand feels like ice is being rammed into it. Almost feels like the nerve is exposed and cold but it doesnt hurt and there’s not anything I can find that helps

    - Left hand pinky and ring finger often go numb

    - Often comes in waves where it will be almost constant for a few days or weeks then subsides for a bit

    Temperature sensitivities

    - Often too hot or too cold and struggle to get to the right temperature without swinging too far the other way

    Loose, clicking joints

    - My ankles are always giving way and often hurt for days after a particularly bad roll

    - Many joints click when I move and I sound like a 1 man band, in particular my knees

    - The arch of my right foot clicks but I don’t think there’s any joint or anything there to click?

    Skin changes

    - Lots of bruises that I don’t know where they came from

    - Spots particularly on chest also more acne on my face than I had during teenage years

    - Fragile skin that tears if I take a plaster off

    - Purpura and pietache

    - Stretch marks on my sides and thighs

    Bowel changes

    - Swing between constipation and almost loose/ diarrhea

    Hair thinning

    Slow healing of wounds

    Recent additions

    - Longer, heavier periods (14 days and bleeding through onto clothes started 6-9 months ago)

    - Twitchy muscle thing

    - Can feel blood in my legs

    - Intermittently feels like I have a UTI for a few hrs then it goes away

    - Bone in my lower leg hurts (both sides)

    Test results

    - Normal pituitary MRI

    - Nasal polyps found on MRI

    - Normal ovaries (NOT PCOS)

    - mild anemia which worsened with heavier periods

    - Normal WBC even when ill

    - High IgA and IgM with normal IgG and recent EBV infection

    - Negative ANA

    - intermittently elevated liver enzymes, negative liver antibodies

    - Negative HIV

    - TSH mid of normal range, T4 on lower end but normal

    - CRP normal, ESR borderline

    - high Phosphate swings between high and low but usually low and rarely normal

    - Intermittently but usually high estrogen, DHEAS, testosterone, cortisol, LH

    - Low good cholesterol (slightly), all other cholesterols are normal

    - Normal vit D, platelets, urea, electrolytes, albium, calcium, HbA1C, B12

    If anyone has any suggestions of things to look into that'd be really helpful.

    #Undiagnosed #chronic #ChronicIllness #chronicallyill #searchingforanswers #Gaslighting #Answers #Diagnosis #Testresults #symptoms

    2 reactions 1 comment

    My experience managing my symptoms of BPD. Does NOT apply to those in danger of hurting themselves or others.

    A miracle has been done in me and I want to share incase it helps any of you to better manage your symptoms.

    My ability to better manage my BPD has taken place in three phases so far. If you are not a person of faith, PLEASE READ PAST IT TO THE NEXT TWO PHASES.

    First, I have harnessed my faith by trusting in God's will for my life, not mine, and have prayed for it consistently (well as consistently as this inconsistent person can). The fact that I have gotten better at trusting Him is a miracle within itself.

    Second, I have, with the help of someone calling me on my crap, realized the impact of my BPD on others and took responsibility for that impact, despite it being symptoms of my BPD. At the end of the day, it's still my own behavior.

    Third, I am working on working through my episodes without bringing others into it. This goes back to my reliance on my faith. There's no way I could do this without God. No way. The realization I had is that if I am able to manage my episodes successfully on my own, once it's over, no harm no fowl. What I mean by that is that doing so decreases or limits the chance of my episode causing relational fallout. So far it has worked though it takes me learning to sit in my discomfort and again, trusting God's will in whatever has triggered my episode.

    THE ABOVE DOES NOT APPY TO YOU IF YOU ARE SUICIDAL OR SELF DESTRUCTIVE. In that case, reach out to someone who understands, if you don't have anyone, reach out to me.
    #BorderlinePersonalityDisorder #episodes #symptoms #MightyTogether #TheMighty

    9 reactions 6 comments
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    My Invisible Illness

    I would like to open up about my invisible illness. I first realized there was something wrong about six years ago when i came to New Zealand in couple of months I got really sick had this persistent pain in my body and I kept getting this shooting pain from my neck to lower back. My pain became more widespread, more frequent, and more intense when I was at university.

    I went to several doctors and specialists had several exams for past 6 years finally I was diagnosed in 2022. The neurologist gave my invisible illness a name Fibromyalgia. I was finally relived they found what actually my illness is however it is a chronic illness which is lifelong and has no cure and also accompanied by chronic fatigue and 100 other symptoms.

    Living with fibromyalgia means living with a chronic pain condition that greatly influences daily life. I feel pain all of the time and this affects my ability to do day-to-day tasks.Every task I choose to do has a trade-off with another. For example, if I choose to cook something, doing the laundry becomes more difficult.

    As soon as i was diagnosed,I was forced to slow down all my activities both in personal and professional life it had gotten so worse that full right side of my body from neck to feet was in so much pain i could barely move, close my fist or hold a cup or grab the spoon to cook or eat.

    Hence i had to make so many changes in my life to gain back strength and mobility slowly back to my body.I had to start taking different medications and therapies with many trials until my doctor found what worked better for me, many meds I was on, messed with my sleeping pattern made me feel nauseous and dizzy whole day and others messed with my stomach lining. I tried to work out because I felt that staying active changing my diet to vegetarian would help me sadly it worsened my symptoms even more. The most challenging aspect of fibro, for me, would be the fatigue, since it prevents me from doing a lot.

    Unfortunately, there are not too many medical experts in New Zealand who have done research to understand what I have, and how it affects my daily life. My husband is my number one supporter and he helps me with my stress which is a trigger to pain, but there are also those who don’t understand or care to, so I just distanced myself from those people. I will continue to remove such people from my life, whether blood related or not, if you are not concerned about my wellbeing then I don’t need to have you in my already small circle.

    In the last six years there has never been a day my body was without pain. I dont even know how it feels to be without pain anymore. I can’t be on meds 24*7 so i try to get as much rest as possible. As the meds have other side effects which causes other health issues.Honestly, i have tried all the pain killers in the world none of those have ever made my pain go even 20% less . There are times when I feel like nothing works and then i started to research and study on this illness myself.

    With my findings and study for months i found out that lifestyle management is the only solution with people who have chromic illness. Since western medicine doesn’t have any cure i studied Ayurveda and gain knowledge around it and observed myself by doing trial and errors with Ayurvedic diet and practising spiritualism as a result to balance and manage my lifestyle Ayurvedic food diet which works for me in subsiding symptoms related to fatigue and stomach lining. Spirituality also really helped me such as meditation and yoga in order to focus on the positivity around me and to push myself to keep fighting with my body in order to live my life to the fullest.

    As far as being open about my illness & symptoms, I hate to complain, because I know it can be annoying to hear someone talk about how much pain they are in daily, so I keep it to a minimum. I hate to hear that it will get better, when I know it’s not going to get better because there is no cure. So, I had kept it to myself. Remember to be kind to people as behind that smile we don’t know who is fighting a battle not everyone likes to open up about their struggles. I have had people commenting on my life about gaining weight or not going out or visiting families and friend. Last six years has been a roller coaster ride for me. I have been faking being okay!

    My biggest battle is the pain I deal with daily, but the biggest is putting on a brave face, getting up and starting my day and trying to keep up with my daily responsibilities either personally or professionally. There was many moment in my life where i would want to scream at the top of my lungs. I just have no control over this illness that has taken over me and i would want to take my life. Then i look around and see I have family who i love dearly, and one look at them, tells me that my life is important and worth fighting for.

    Honestly taking it one day at a time, is how I balance my illness in my personal and professional life, there is no other way. I had always been a high achiever and proceeded to put a lot of pressure on myself in every aspect of my life hence people always say i am lucky whenever i attained my goals whether it was graduating with academic excellence being the top scholar or getting a corporate job at management level or buying a brand new home or travelling around and buying luxury items at early 20s it is not luck it is hard-work sacrifices and most importantly journey of fighting with my own body, health and mind to live life and achieve of my dreams. I just want to say to each one of you if your healthy you are lucky one as Health is Wealth!!

    I would like people to know and understand that this condition is real and it’s depressing- please be supportive. If you find that you can’t be of any help to that person suffering from Fibro, then remove yourself from their lives, and spare them further pain.

    My words of encouragement for others who are living with Fibro are to try to find a doctor who is caring and believes in your pain, and work with them in finding medication that can help you control some of the pain, because right now, there is nothing that take it all away. Continue fighting, and don’t give up, we have people who need us and depend on us, so we must find a way to fight to continue living. And lastly we should all come together and help us spread the word, and know that you are not alone.

    Lastly, this message was not for sympathy it was for awareness in the community which is must needed.
    #Fibromyalgia #ChronicPain #fibromyalgiawarrior #illness #Fibro #healthiswealth #Bekind #ChronicIllness #symptoms #treatment #RheumatoidArthritis #FibroFog #Medicine

    27 reactions 7 comments
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    Wellness Wednesday: Diabetes Symptoms

    What were some of the diabetes symptoms you initially ignored?

    Here are some of the most common diabetes symptoms that many of us might ignore, according to my colleague Chris.

    Symptoms of Diabetes That People Might Ignore:

    Do not hesitate to get in touch with your healthcare professional if you are experiencing any of the following symptoms.

    Getting checked out early will ensure that you receive the appropriate care more quickly.

    #Diabetes #DiabetesType1 #DiabetesType2 #Diabetestype3 #lada #mody #prediabetes #GestationalDiabetes #ChronicIllness #AutoimmuneDisease #Health #symptoms #Support #SupportGroups #Lifestyle #MightyTogether

    5 reactions 1 comment

    My physical symptoms of anxiety

    Lately I’ve been put under so much stress and anxiety. My body has been reacting to it.
    I feel extremely tired to the way that I don’t wanna leave my bed, I get nauseous feeling like I need to throw up. I also feel chills, that I’m cold even though I don’t have a fever. Sweaty palm happen sometimes too. On top of what I said before, I haven’t been eating well and I’ve been drinking a lot of alcohol so my body is weak and I feel sick.
    I just want you to know, you reading this, that thing’s gonna get better. The mind is extremely powerful and if the mind is not ok the body is not okay aswell. Don’t overthink and most important, do NOT SEARCH SYMPTOMS ONLINE. I’ve done it so many times and it ruined me during a long time. There are so many outcomes from literally so many situations and anxiety only makes us see the worst case scenarios that aren’t even gonna happen.
    The body is a reflex of the mind and if we’re not stable mentally, our body is gonna reflect the consequences. We need to give it time.
    I know it’s hard because i suffer with severe anxiety but don’t forget that anxiety is like living in a fantasy world. We mostly stress out about things that never occurred yet and probably never will.
    Hope this helped someone.

    #Anxiety #symptoms

    20 reactions 9 comments

    Normal MRI… what now?

    My MRI results came back as normal & ENT have discharged me.

    I’m not quite sure what to do. Does this mean I have to deal with migraines for the rest of my life now? My hearing randomly going? The pain and mental attacks from the increases during colds etc?

    I know, I should be grateful that it’s normal. But I’m just feeling lost and frustrated. There’s no plan now other than just having to deal with it.

    #Sinus #ent #MRI #symptoms #ChronicPain #ChronicMigraines #Hearing #MentalHealth #Feelinglost #normal #WhatNow

    1 reaction 110 comments

    The emotional pain of families disinterest.

    I find it deeply sad and soul destroying, that if I mention what I’m struggling with to my loved ones, the answer seems #yesweknow when wanting to share the rapid intensification of #symptoms of either #Bipolar or #BPD or #Depression etc…

    Please remember friends, find your tribe. The people who #Suffer and live with what you do. This is where the #Understanding and #Kindness you’re seeking will be found.
    I don’t believe anyone, no matter how much they love you, can even get a tiny glimpse of your #emotionalpain .
    Don’t blame,, find others who feel and understand and have similar #mentalillnesses .
    I hope this little nugget helps you in your #journey back to you.
    Bipolarlinedeb ♥️🌹🌹

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    Talk About It Tuesday: The Most Annoying Diabetes Symptom

    What is the most annoying symptom that you’ve experienced since your diabetes diagnosis? In the comments, fill in your most annoying symptom in the blank: The diabetes symptom that bothers me the most is ________.

    #Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #Health #symptoms #Stress #CheckInWithMe #Support #SupportGroups #MightyTogether


    Assumptions and mistakes in reviews and assessments

    Every time I have a diagnostic assessment or a review they type up a summary of what was talked about, how my mood seemed, what I was wearing all objective versus subjective opinions. i.e. Mood: subjectively depressed, objective mood a bit anxious and low. What I never understand is why it's always the objective (psychiatrist's) view which is taken as how I am when they have just spent 1 hour with me out of the days/weeks and months I've spent LIVING the mood and that I've been there before many times and know that mood too well.
    Small errors in reviews over years totally create a picture of what could be an entirely different person...I told one doctor that I'd managed to get a job but had been sacked within weeks for being unreliable (a common problem with lots of physical AND mental health issues). The summary said " C said she had recently been offered a job but had turned it down"
    Every subsequent review or assessment is based upon the "experts" previous summary and even the last example about the job shows how these mistakes can alter the perception of someone. Losing a job because your health let you down AGAIN and leaves you feeling hopeless that you'll never be able. Being offered a job (especially as it was in a sector I loved) and turning it down isn't even trying and on paper or makes it seem that there's no point in psychiatric help as I'm not helping myself.
    I'm still struggling for a diagnosis 6 or 7 years after first referral to the mental health team because of all these conflicting and incorrect reports.
    All I really want is for them to stop batting 2 diagnoses back and forth and concentrate on the symptoms because over time left untreated these symptoms are becoming/ have become much more severe.
    I don't know how it works in the US (I know there's lots of people from the US on this site) but here in the UK it's hard to even get to see a shrink and if you do you don't get to choose who or someone who specialises in your particular needs. You certainly don't get to challenge them or call them on mistakes made in what is your official mental health history and what medications are prescribed from and diagnoses formed.
    If I visited a podiatrist (foot specialist) and they diagnosed laryngitis it'd be about the same in physical health
    Does anyone else feel this helpless and misunderstood? In a previous post someone mentioned having to become your own doctor.. it's so true I have had to study almost enough to ACTUALLY be a shrink 🤔 I wish everyone a speedy arrival at a correct diagnosis from someone who listens and then the best treatment for YOU and your symptoms ❤️ #Misdiagnosis #reviews #incorrectasessment #symptoms


    Drop Foot #Fibromyalgia

    Does anyone get dropfoot as a fibro symptom? It's one of my first signs of a flare-up coming on. Only get it in my right foot. #DropFoot #Fibromyalgia #symptoms