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Community Voices

Talk About It Tuesday: The Most Annoying Diabetes Symptom

<p>Talk About It Tuesday: The Most Annoying <a href="" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7700553f33fe99129c" data-name="Diabetes" title="Diabetes" target="_blank">Diabetes</a> Symptom</p>
7 people are talking about this
Community Voices

Assumptions and mistakes in reviews and assessments

Every time I have a diagnostic assessment or a review they type up a summary of what was talked about, how my mood seemed, what I was wearing all objective versus subjective opinions. i.e. Mood: subjectively depressed, objective mood a bit anxious and low. What I never understand is why it's always the objective (psychiatrist's) view which is taken as how I am when they have just spent 1 hour with me out of the days/weeks and months I've spent LIVING the mood and that I've been there before many times and know that mood too well.
Small errors in reviews over years totally create a picture of what could be an entirely different person...I told one doctor that I'd managed to get a job but had been sacked within weeks for being unreliable (a common problem with lots of physical AND mental health issues). The summary said " C said she had recently been offered a job but had turned it down"
Every subsequent review or assessment is based upon the "experts" previous summary and even the last example about the job shows how these mistakes can alter the perception of someone. Losing a job because your health let you down AGAIN and leaves you feeling hopeless that you'll never be able. Being offered a job (especially as it was in a sector I loved) and turning it down isn't even trying and on paper or makes it seem that there's no point in psychiatric help as I'm not helping myself.
I'm still struggling for a diagnosis 6 or 7 years after first referral to the mental health team because of all these conflicting and incorrect reports.
All I really want is for them to stop batting 2 diagnoses back and forth and concentrate on the symptoms because over time left untreated these symptoms are becoming/ have become much more severe.
I don't know how it works in the US (I know there's lots of people from the US on this site) but here in the UK it's hard to even get to see a shrink and if you do you don't get to choose who or someone who specialises in your particular needs. You certainly don't get to challenge them or call them on mistakes made in what is your official mental health history and what medications are prescribed from and diagnoses formed.
If I visited a podiatrist (foot specialist) and they diagnosed laryngitis it'd be about the same in physical health
Does anyone else feel this helpless and misunderstood? In a previous post someone mentioned having to become your own doctor.. it's so true I have had to study almost enough to ACTUALLY be a shrink 🤔 I wish everyone a speedy arrival at a correct diagnosis from someone who listens and then the best treatment for YOU and your symptoms ❤️ #Misdiagnosis #reviews #incorrectasessment #symptoms

Community Voices
Community Voices

We Don’t Medicate To Be Pain Free But To Function Most Days

<p>We Don’t Medicate To Be Pain Free But To Function Most Days</p>
11 people are talking about this
Community Voices

can anyone relate #symptoms #relate #discussion

so does anyone have symptoms like body pain , tingling in the hands and feet, shortness of breath, feet pain and leg pain more on the right side.. well body pain more on the right side? after being diagnosed with Mals and having lap surgery? #MALS . doctor says there isn't much compression which is good but then what about these new symptoms. please help?

1 person is talking about this
Community Voices

Anyone Else Suffer This? #Anxiety

I just moved and when I sit in our living room I get INCREDIBLY itchy.

Only in the living room.
We tested for bugs and found none.

I'm so itchy I'm miserable. I can't sit in our living room.

Is this a weird symptom of anxiety?
Does anyone else have a problem like this?
Am I crazy?

#Anxiety #itchy #Going crazy #symptoms

3 people are talking about this
Community Voices

Another symptom

The weight loss was bad enough. I’m now covered in bruises. No less than 25 on my legs (I counted 31 but some could be the same bruise just continued). I started noticing the bruising on Thursday, and it’s only increased since. My arms also have above the normal amount.

The worst part about the weekend was not being able to do anything and I stayed up late on Saturday worrying. And now that it’s almost Monday, I’m naturally wondering if worrying is overreacting because I have health anxiety.

At this point I will probably leave it because every other time I’ve had symptoms of something bad, it’s always been fine/ because of something less serious. I’m fed up of wasting the NHS’ time and money.

Besides, I don’t think they’ll retest my WBC count any time soon anyway. They have a test tube shortage and since they think the low count before was due to the antibiotics, it’s not going to be a priority to re-test (which I can absolutely understand).

My friend thinks they will because of my symptoms, but they can all be explained somewhat:

The weight loss; I’ve gone through a breakup, a move, an illness and I’ve worked a lot. Whilst I never lost weight when I had covid or worked a lot before, new stuff can happen I suppose.

The bruising: I’ve moved and I’ve also worked 4 days in a row. Even though I don’t recall such, I probably battered my legs a few times moving. And even though I don’t normally bruise because of such, I probably bruised from kneeling at work.

Here’s to hoping I do start putting on weight and the bruises start disappearing so I can wear my dress without leggings/ tights!

#WeightLoss #LowWBC #illness #bruise #BloodTests #symptoms #newsymptoms #HealthAnxiety #Anxiety #bruising

1 person is talking about this
Community Voices

What is Real, and what is not


I was in my psychiatrist's office. She was typing something on the computer. I #hallucinate d that she called me stupid. I immediately knew it didn't actually happened. However, it seemed real. Things popping in and out of a person's mind living with #Schizophrenia is their constant reality. Even if they take their medication, they still will have #symptoms

Community Voices

Weird feeling in chest? #Anxiety #Depression #Hypochondria

For the past couple of days I’ve had a weird feeling in my chest. Not really pain or tightness, just an odd sensation that’s hard to put my finger on and sometimes sort of feels like it’s in my throat. I get lots of physical anxiety symptoms but this one is new and random, and it’s leaving me feeling very worried because I am a total hypochondriac and now it’s all I can focus on. I’ve been taking deep breaths and I can breathe fine, but it’s lingering and I just want it to go away!! Please give me reassurances, I know worrying about it is making it worse 🥺 #GeneralizedAnxietyDisorder #AnxietySymptoms #symptoms

5 people are talking about this
Community Voices

You Are Invited!

For the first time ever, I am premiering a video. This video is more important than I can put into words! You, my sweet friend are invited to my Pheochromocytoma Attacks and More watch party on YouTube: Monday May 17th at 10 am est. Be sure to bring a friend and share the link!!! Don’t forget your party gear: a drink, fun snack, and cute and comfy outfit.

An amazing YouTube friend (subscriber), recently asked what happens during a Pheochromocytoma attack? I wanted to sit down to explain a little more, what is a Pheochromocytoma? I also talk a bit about the Adrenal glands and Adrenal Insufficiency. What is an attack? I go into as many symptoms as I can with as much detail as possible (with my foggy brain). There are tons of resources in the description for curious minds, care givers, patients, or anyone with a heartbeat.

#Awareness #Cancer #RareDisease #adrenalgland #adrenalinsufficency #addisions #ButYouDontLookSick #InvisibleIllness #RareCancer #MedicallyComplex #MentalHealth #MentalIllness #mystory #symptoms #ChronicPain #attacks #Pheochromocytoma #pheo #NETCancer #NeuroendocrineTumor #Tumors #Pain #HighBloodPressure #AdrenalGlandCancer #AdrenalGlandTumor #Caregiver #Education #notalone #Hope #ChronicallyHopeful

1 person is talking about this