Mitochondrial Disease

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Through the Valley by Melanie R.

Through the Valley by Melanie R.

The blood declares your future-
and can’t be over ruled!
Jesus’ sacrifice paid the way to victory.

If you see the shadow,
light is present.

We go THROUGH the valley…

We’re not in the fire to die;
We’re in the fire to shine!

You are almost there.

Not delayed-
Destined.

Let faith rise again.

Holy nation,
God’s special possession
to set others free!

The blood has spoken,
the cross has sealed it!

This is The hour!

Almighty God,
the ancient of days,
unmatched Majesty,
we come before you,

We know who You are-
You are the God who spoke the stars-
into existence
You hear the whispers
of our weary hearts.

Claim us!
Mark us!
We stand under the shadow of the cross!

Thank you Father!

Let those with ears to hear, hear and God bless you mighty warriors with divine healing over your body, mind, and spirit!

Amen and Amen!

#InsideTheMighty #PrimaryImmunodeficiency #MitochondrialDisease #ChronicIllness #ChronicPain

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Til’ We Meet Again by Melanie R.

Til’ We Meet Again by Melanie R.

Our hearts come together.
somber reflections,
As we mourn lives lost-
and what used to be,
a remembrance replaying on our heartstrings.

The pain of grief cuts so deep,
And bleeds each tear we cry…
So hard to be here in this moment to have to say goodbye.

For we know even in the depths of this sorrow,
Jesus holds them close,
holds hope for tomorrow.
For death is not the final end-
Not goodbye, til we meet again.

Lord promises restoration,
redemption, all things new.
A life of peace.
Hopeful mercy new.

And death no longer can take away
in the midst of grief;
sorrowful pain.
May we find strength to rise again;
to celebrate their lives again!

Holding onto hope's embrace,
And trust in God's unfailing
grace.

(In honor of Marge and Tom -
We love you!
Til we meet again!)

#Grief #MightyMoment #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicIllness #ChronicPain

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Fire! By Melanie R.

Fire! By Melanie R.

Forged in the fire for impact.
The test before the throne through the wilderness…into the wonder.
Stay faithful!!
Not to breakdown,…
but breakthrough.
Pass your test!
Take your place in the kingdom.
Holy fire to awaken!
We rise!
We endure!
We over come as pure gold!
Revived for glory!
Broken chains of shame!
Shaking thundering voice,
declaring that this will birth me!!!

The crushing that unlocked the oil-
To burn through the darkness,
and burn through the night.
Consecration-
and burned in our bones,
for His will, and processing light!

Fire!

Power clarity!
Marked by glory!
Reflecting the spirit in praise!
Fire!

1 Peter 1:6-8
In this you greatly rejoice, though now for a little while, if need be, you have been grieved by various trials, that the genuineness of your faith, being much more precious than gold that perishes, though it is tested by fire, may be found to praise, honor, and glory at the revelation of Jesus Christ.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #MightyTogether #ChronicPain

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Chosen Soldier by Melanie R.

Chosen Soldier by Melanie R.

I am a chosen soldier
in the army of The Lord
Presence,
Spirit lifted
Sovereign Word,
my trusted sword.

I put on Ephesians armor;
Found ready,
as we stand.
Together He battles with us,
fight for good, and Glory land.

The breastplate of righteousness
adorned across my chest
Protects and helps guide us.
My heart source brightly cleansed.

The helmet of salvation
Covers and Keeps watch.
Shielding darts,
casts down arrows,
diffuses negative thoughts.

Washed robes of White.
Mercy’s priestly gown.
Anointed Oil of Righteousness,
Lamb Sheared without a sound.

Unblemished armor,
Clothed in strength.
Mercy’s knight-
Shield of faith;
provides a fortress to
Reflect His Holy Light!

Covered by King’s glory.
Truth belt buckled in.
Following His Story,
fueled this fire from within.

Yielded body
Willing forge.
Faithful soldier;
Unsheathed sword.

Marching onward
torrential battles…
crushing giants forThe Lord-

Designed to knock down strongholds,
Conquer fear, and destroy doubt.
Anoint us as we travel,
steadfast martyrs for the crown.

To God be the Glory!

#InsideTheMighty #MightyPoets #PrimaryImmunodeficiency #MightyTogether #MitochondrialDisease #ChronicPain #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy
#RareDisease

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The Shepherdess Keeps Watch By Melanie R.

The Shepherdess Keeps Watch
By Melanie R.

In darkness deep and shadows cold;
shepherdess stands, brave and bold.
A chosen instrument of the Lord,
strengthened,
guided
by His Holy Word.
Thought of like David, last, but not least.
God’s proven strength.
Power to teach.

A guardian now,
for His flock;
for His kin.
Holy Spirit’s light flowing from within!

Faithful prayer and intercession,
She’s trained for this intention:
To watch and care,..
trust His way
The Lord's own sheep…
His legacy.

Filled with Spirit’s Holy Might.
From dawning day, through darkness;
She helps cover the night-

The shepherdess keeps watch-

No enemy gets by…

Leads us to pastures green,
calm waters clear-
But she’s ready to fight!

He carries us in His loving arms,
Protecting-
keeping His sheep from harm.

Isaiah 40:11
He will feed His flock like a shepherd.
He will gather His lambs with His arms;
And carry them in His bosom.

John 10:11-12
I am The Good Shepherd!
The Good Shepherd lays down
His life for His Sheep.

#MightyPoets #MitochondrialDisease #SjogrensSyndrome #AutoimmuneImmunodeficiency #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain

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Holy Mountain by Melanie R.

Holy Mountain by Melanie R.

I looked to the hills
where great mountains stand.
For all of my help
is from God’s righteous hand.
They reach to the heavens as they do declare,
the signs of His wonder-
His glory, and care.

The height of His Majest….

My Rock,
cornerstone.
Atop there with Him,
I feel comfort-

I’m home.

The Rock that was thrown down,
rejected,
then rolled…ooh..ooh…

Now holds me together,
shows mysteries unknown.

Mt. Tabor’s prominence;
Mt. Carmel stood tall-
proving…
there’s One God that reigns over all!!

In His holy mountain,
with Him by my side,
in hearing His word,
growing faith,
I abide.

The gush of the water
that came from the stone,
Rained living water;
restoring me whole!

Thank You Jesus!

Isaiah 48:22
And they did not thirst
when He led them through the deserts.
He caused the water
to flow from the rock for them;
He also split the rock,
and the waters gushed out.

Stay Strong Mighty Warriors,
and God be with you all! 🙏💪🏻🏔️

#MightyPoets #InsideTheMighty #MitochondrialDisease #AutoimmuneImmunodeficiency #ComplexRegionalPainSyndrome #ChronicIllness #Dysautonomia #IrritableBowelSyndromeIBS #MultipleAutoimmuneSyndrome

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Gabbie’s Blog Post That I Found On The Sisters Of Life Website About Her Life Journey Because I Can’t Sleep (Her sister is a nun)

My Thoughts I miss you Gabbie, but I know you are in Heaven. I can’t imagine what it is like over there it must be beautiful. I mean what could be better than worshipping all day long and finally pain free Amen!
When I was twelve years old, I noticed that my left eye started to droop and my energy began to decline. I was sleeping 12 hours a night and taking three- to four-hour-long naps a day. I went to several doctors to determine what was going on. I was diagnosed with Kearns-Sayre Syndrome (KSS). KSS is a mitochondrial disease that affects my eyes, height, muscles, energy, and heart. My teenage years were difficult as I battled the burden of not being like everyone else. It was overwhelming.
I told my mom I wanted to go to Lourdes, France, to be healed. Lourdes is where Our Lady, under the title the Immaculate Conception, appeared to St. Bernadette in the year 1858. Many who pilgrimage there have been healed in the miraculous spring.
Our family of seven journeyed to France; however, I did not receive the instant healing I wanted. So much effort went into getting our family there, that I felt like I let everyone down when I was not physically healed. I was bitter and heart-broken. I thought God didn’t want me to be healed.
I tried giving Him the silent treatment. I took down all of my holy images of Jesus and stopped praying. I went to church with my family and prayed before meals, but I felt nothing. The way I saw it, God didn’t love me enough to heal me – to heal me how I wanted to be healed. I entered a dark place in my life, telling myself I was hopeless. Several times, I felt I did not want to carry on with my life; I wanted to end it. Little did I know at that time that I was being healed, just in a different way.
I can’t exactly tell you how I conquered my depression and anger. I wish I could remember the exact day, the exact moment my heart softened, but I can’t. I just know that my heart changed when I realized God didn’t want me to suffer. I started praying again and put my holy statues and pictures of Jesus back in their rightful places – back in my heart. I suppose that you can’t have light without darkness; I look back at this time in my life and thank God for never leaving me, even when I tried running from Him. I am grateful He had hope in me.
Even so, I definitely still had hard days when I wished and prayed for miraculous healing. In 2015, I experienced heart failure. It was the scariest day of my life when I heard those words, “Heart. Failure.” I had to prepare for serious heart surgery, and for the first time I was facing and fearing death. I was in the hospital for a month.
When I was in the hospital, Sr. Jordan Rose shared with me these two words: “Take Heart.” It says in Psalm 27: “Let your hope be in the Lord; take heart and be strong; yes, let your hope be in the Lord.” This means, “Have courage! Have hope!” I came to know that “my health may fail, and my spirit may grow weak, but God remains the strength of my heart. He is mine forever” (Ps 73:26) .
My experience of suffering has brought me closer to Jesus. I am strongly inspired and drawn to Blessed Chiara Luce Badano. Her words, “For You, Jesus…If You want it, I want it too”, remind me to trust and have hope in the Lord’s plan for me. When I look beyond myself, I can unite my suffering with that of others, and I can unite my heart with the heart of Jesus. I find myself praying throughout the day, “Jesus, I trust in You.” When I wake up, when I am anxious, when it’s quiet, in all things, I pray: “Jesus, I trust in You.”
This journey hasn’t been easy, but my family and friends have carried me through. In hard times, my family looks for the good. We are a family of hope.
Hope is believing something good is going to happen. If you are struggling to hope, I recommend reading Fr. Michael Gaitley’s book, 33 Days to Merciful Love. This book encourages you to hope like Mary did at the Cross, to believe in God no matter how dark life gets, and to praise God no matter what is happening.

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Soldier by Melanie R.

Soldier by Melanie R.

I am a chosen soldier
in the Army of The Lord.
Presence,
Spirit lifted,
Sovereign Word-
my trusted sword.

I put on Ephesians armor
Found ready,
as we stand.
Together He battles with us,
fight for good, and glory land.

The breastplate of righteousness
adorned across my chest,
protects and helps guide me.
My heart source brightly cleansed.

The helmet of salvation
Covers, and keeps watch.
Shielding darts,
casts down arrows-
diffuses negative thoughts!

Washed robes of white ;
mercy’s priestly gown.
Anointed Oil…
Lamb Sheared-
no sound.

Unblemished armor,
Clothed in grace.
Mercy’s knight
holds shield of faith!

Covered by King’s glory.
Truth’s belt buckled in,
Following His Story
Shoes of readiness tread again!

Yielded body
Willing forge,
Faithful soldier-
Unsheathed sword.

Marching onward
torrential lands
crushing giants,
heads in hand!

We’re designed to knock down strongholds,
Conquer fear,
destroy doubt.
Lord, anoint us as we travel,
steadfast martyrs for the crown.

Thank you Lord for equipping us with the tools to endure!
Stay Strong Mighty Warriors!

Ephesians 613
Therefore, take up the whole armor of God.
That you may be able to stand in the day of evil, and having done all you can, stand firm.

2 Corinthians 10 3-4
For though we walk in the flesh we do not war according to the flesh. For our weapons of warfare are not carnal, but mighty in God for pulling down strongholds.

Isaiah 53:7
He was oppressed and afflicted, yet he did not open his mouth; he was led like a lamb to the slaughter, and as a sheep before its shearers is silent, so he did not open his mouth.

1 Peter 1:18-19
You know that it was not with perishable things such as silver or gold that you were redeemed from the empty way of life handed down to you from your ancestors, but with the precious blood of Christ, a lamb without blemish or defect.

1 Corinthians 5:7
Christ, our Passover lamb, has been sacrificed.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #PosturalOrthostaticTachycardiaSyndrome #IrritableBowelSyndromeIBS #PrimaryImmunodeficiency #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe

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Crimson by Melanie R.

Crimson by Melanie R.

Crimson red-
against the snow.
My heartache bleeds,
and nearly froze!

I turn to you
and say a prayer,
release me Lord,
from pain
and spare…
my heart from this deep suffering…

the ache,
the hurt…,
my mind
wandering.

Crimson red,
down and blue.
White of snow,
thoughts of you.

Buffalo blizzard…
A frozen cry;
of time felt lost,
and days gone by.

I reach for you;
long to hold you….
Still feel your love around.
It wasn’t just the ordinary,
pure love is what we found.

Although time goes;
will never fade.
Swirls like wind,
still falls like rain.

Our hearts hold onto memories.
Days up,
then down,
like swaying trees.

Crimson red,
Hearts of truth.
Cold of snow,
Thoughts of you.

Red cardinal singing
love’s song of faith.
Holy Water springing,
by pearl o’heaven’s gate
.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.

Consecrated,
Soul guided.
As He too heard our cries,
He knows of all the suffering,
every groaning,
every sigh.

Crimson red
the blood was poured;
robes washed white-
Calvary brought forth!

So shout. Hallelujah!”
and say, AMEN!
to Our Sovereign Lord,
and most earnest friend!

Heart crimson red;
Lord’s Promises True.
He carried The Cross…
and message for you!

John 16:22
Now is your time of grief, but I will see you again. And you will rejoice, and no one will take your joy away.

Romans 8:26
In the same way, The Spirit helps us in our weakness. We do not know what we ought to pray for, but The Spirit Himself intercedes for us through wordless groans.

Psalm 145:18
The Lord is near to all who call Him.
To all who call on Him in truth.

Mark 9:3
His clothes became dazzling white, whiter than anyone in the world could bleach them.

Revelation 7:14
These are they that have come out of great tribulation, they have washed their robes and made them white in the blood of the lamb.

#MitochondrialDisease #HypothyroidismUnderactiveThyroidDisease #RareDisease #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #CheckInWithMe

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Peaked by Melanie R.

Peaked by Melanie R.

I looked to the hills where great mountains stand.
For all of my help is from God’s righteous hand.
They reach to the heavens as they do declare,
the signs of His wonder,
His glory, and care.

The height of His Majest-
My Rock,
cornerstone.
Atop there with Him,
I’m sheltered…
I’m home.

The Rock that was thrown down;
rejected,
then rolled…
now holds me together,
shows mysteries unknown.

Mt. Tabor’s prominence,
Mt. Carmel stood tall,
proving there’s One God
that reigns over all.

In His holy mountain,
with Him by my side,
in hearing His word
growing faith-
I abide.

The gush of the water that came from the stone,
Rained living water;
restoring me whole.

Psalm 121:1-2
I lift my eyes to the hills. From where does my help comes from? My help comes from The Lord who made heaven and earth.

1 Corinthians 10:4
All drank the same spiritual drink. For they drank from the spiritual rock that followed them, and the rock was Christ.

Isaiah 41:10
…I will strengthen you and help you; I will uphold you with my righteous right hand.

Stay strong Mighty Warriors!
God bless and be with you all on your health journey!

If you enjoy my poems and inspiration please be sure to check out my YouTube channel:
Melanie’s Melody for more of God’s message in suffering.

#ChronicIllness #RareDisease #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe

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