Mitochondrial Disease

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Pass it on by Melanie R.

Pass it on by Melanie R.

Pass it on;
passing the time…
The past is behind,
and time has passed on.
From passages,
past ages,…
all has come to pass.

Not to pass life away,
or have life pass passing the time;
preventing the passing,…
but past to pass.

For Life and time has proven it wasn’t meant to stay, but had to pass on sacrificially for new life to begin.
Pass the test of past, present, and future.
Let go and allow God to pass you through.
The past, has passed, and it was time to let go.
Pass it on.

Get passed it, to pass;
and while doing so,
pass on the passages of wisdom, knowledge, and understanding of truth passed onto you.
Pass it out,…Pass it on.
The cross as the compass in our hearts guiding the way on the map to the righteous road.
A passionate paragon, piously passed,
past depths of spiritual resonance;
a passing of death to life…
Pass it on.

Phillipians 3:13-14
Brothers and sisters, I do not consider myself yet to have taken hold of it; But one thing I do: Forgetting what is behind, and straining toward what is ahead, I press on toward the goal to win the prize for which God has call me heavenward in Christ Jesus.

2 Timothy 2:2:
And the things you have heard Me say in the presence of many witnesses entrust to reliable people who will also be qualified to teach others.

Paul reminds us of the importance of sharing our faith, and Godly knowledge with others. Whether through mentorship, sharing your story/testimony of your affliction, or simply living as an example of God’s power, love, and wisdom. In this time we are given, pass it on!

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #MitochondrialDisease #IrritableBowelSyndromeIBS #POTS #Dysautonomia #HypothyroidismUnderactiveThyroidDisease

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Physical therapy for your mitochondria

I saw a PT today because of my post-exertional malaise (few MDs in my health system will even acknowledge it). He has me doing just a few specific exercises at limited reps that focus on my quads and glutes. Since they’re the biggest muscles in the body, the idea is that they require the most energy in a short burst, which starts re-training the mitochondria to produce more energy like they used to. Here’s hoping! #MitochondrialDisease #COVID -19 #Fibromyalgia

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Mercy New by Melanie R.

Mercy New by Melanie R.

As You wake me in the night,
to speak to me as I write,

brightness covers darkness,
Lord, we thank You for your light.

Each morning
mercy new,
the dawning break of day.

The bread was broken for us,
to restore Your Mighty Way!

Your returning day approaches,
guidance needed most-

Your light has seen us through it,
Our lampstand; Heavenly Host.

A lighted path before us;
Not lost,
You led the way.

Opened eyes;
burning bright…
we praise Your Holy Name.

Father in Heaven,
The light that guides and shows us the way. Thank you for kindling Your Light of purity and allowing Your divine burning light to be seen. Seen to light the way of our path, to shine our testimony in the midst of great heavy darkness the way The Light of Christ anointed our faith.
One spark lights an entire room. Your mercy is fresh and new each morning as The Light of The World. The Great and Mighty Lampstand of constant presence shining before this world! Your light shines above the darkest shadows and empowers us to have the strength to overcome, as you have overcome every work of darkness! Praise God! Your Holy Light pours wisdom and chases darkness out. Heaven let your light shine down on us! We thank you for bringing mercy, life, and light in each dawn of day.
In Jesus’ glorious name,
Amen.

Psalm 106:1
Praise The Lord! O give thanks for He is good! For His mercy endures forever.

1 Peter 2:10
Once you were not a people, but you are now the people of God,… which had had not obtained mercy, but now have obtained mercy.

The Way, The Truth, and Life!
Shine your light! Give Light!

#RareDisease #sjogrens #MitochondrialDisease #PrimaryImmunodeficiency #ChronicIllness #HypothyroidismUnderactiveThyroidDisease #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #Dysautonomia #InsideTheMighty #ChronicPain #RheumatoidArthritis

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Float by Melanie R.

Float by Melanie R.

Punctured balloon.

Slowly dies.

Floats.

Aimless.

Half-filled.

Exiled.

Rubber thinned.

Knotted end.

Static- hair life.

Stretched.

Detached.

Deflated.

Breath of God.

Flowed.

Infused.

Contained within.

Reacted.

Patched Holes.

Renewed purpose.

Refilled life.

Carried on-high.

Rippled rejuvenation.

Exodus.

Faith message.

Proclaimed.

Rings on-high.

Reaches Heavens.

Rejoice!

Thank you Jesus for allowing this journey of floating on grace through rare chronic illness/chronic pain and all of its complexities. Let us all continue to float on in Your mighty strength and purpose!

Isaiah 40:9
You who bring good news to Zion, go up on a high mountain. You who bring good news to Jerusalem, lift up your voice with a shout, lift it up, do not be afraid; say to the towns of Judah, 'Here is your God!

Psalm 68:11
The Lord gave the word; great was the company of those who proclaimed it.

Luke 19:37-38
And when he was come nigh, even now at the descent of the mount of Olives, the whole multitude of the disciples began to rejoice and praise God with a loud voice for all the mighty works that they had seen; Saying, Blessed be the King that cometh in the name of the Lord: peace in heaven, and glory in the highest.

Acts 1:8
But you will receive power when the Holy Spirit comes on you; and you will be my witnesses in Jerusalem, and in all Judea and Samaria, and to the ends of the earth.

Please also visit:
Melanie’s Melody on YT.
Come and view these encouraging Christian stories with music, audio, and animations.

God bless! Thank You!

#RareDisease #MitochondrialDisease #SjogrensSyndrome #ChronicIllness
#ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #IrritableBowelSyndromeIBS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #Endometriosis #HypothyroidismUnderactiveThyroidDisease

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Blind Faith by Melanie R.

Blind Faith by Melanie R.

Like a moth to a flaming light, let us draw close to the,“Everlasting Light”, (Isaiah 60:19-20)

Faith is the blind trusting in God, and His promises to endure in all of our difficult circumstances.

As followers of the light, we can find awe and wonder in the North American Io silkworm. The io moth lifecycle inspires, and has parallels to our spiritual rebirth, because they are also formed as eggs, hatched in growth, and are cocooned/preserved to emerge in rebirth by true renewal of faith!

Trusting God’s lighted guidance and spiritual senses through the darkness; to see beyond what’s physically visible kindling our own illuminated insight.

We are asked to walk by faith and not by sight (2 Corinthians 5:7), and the blind io moth relies on the moonlight to guide them on their nocturnal quest.
Although their blindness is a limitation, their attracting yellow vibrancy, and keen sense of smell can be viewed as a guiding wisdom in their luggage/arsonal to carry, and less of a baggage/burden of flight.

A weightless freedom led to a destination of endless hope and safety….a transcending peace, love, and comforting security.

As in the beginning, in the dirt of darkness,…even as pain lurks in the shadows, a flickering distant lantern light calls for transformation!

Psalm 119:105
Your word is a lamp to my feet, and a light to my path.

A spiritual metamorphosis and rebirth in Christ.

The male io silk worm spreads it wings to reveal it’s “ocelli” or eyes, which are kept hidden and surprisingly then it’s fragile fanned wings open to reveal its beauty! As it has experienced permanent restored change and will never be the same.
As we also open our hidden spirit eyes Christ is revealed to us through this uncovering which ultimately sets us free to take flight; soaring above on the wings of full trust.

Proverbs 16:20
Whoever gives thought to the word will discover good, and blessed is he who trusts in The Lord.

1 Peter 1:8-9
Though you have not seen Him, you love Him. Though you do not see Him now, you believe in Him and rejoice with joy that is inexpressible and filled with glory, obtaining the outcome of your faith, the salvation of your souls.

God be with you all on this journey of discovery and unveiling! Open your spirit eyes and be open to receive a transformative experience through the light of Christ! I pray you all take flight and fulfill your true purpose in pain/disability.
Through faith, we are partaking in the redemptive power of a profound rebirth in purpose to fulfill God‘s plan in destiny.
No longer defined by rare disease, pain, and frustration; but as an heir and testament to God’s promise of faithfulness to those that suffer.
Sackcloth to garments of righteousness under our armour for the Lord’s splendor. Clothed in grace and mercy, and the healing anointed favor of the spoken Word. This faith protects and prepares us to take flight!

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #ChronicPain #RareDisease #IrritableBowelSyndromeIBS #Dysautonomia #SjogrensSyndrome #InsideTheMighty #RheumatoidArthritis #MightyPoets #MightyPoets

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Reactions by Melanie R.

Reactions, Reactions.
Pulsed like contractions.
Not just the pain,
I’ve been through it;
in my body now all of these years.

Just then it hit me.
Wild fire and crippling.
Felt the burn as I waited,
and prayed in the dark suffering.
As My savior led the way,
because reactions were made.

Can’t hold it back now; not the same.
Don’t feel right being this way.
Passed through old familiar strains.
Flooded fields, fluttered gates.
Did my body betray?,
While reactions were made?

Should’ve known it was coming,
Pointed straight to my trusting.
Would’ve loved this to heal me,
and soul-fire fill me;
but reactions-
were no over-reaction.

As it raced through my veins;
He saved me from hurt,
and the poisoning flame.
Rescued out of that day-
because reactions were made.

There He shared in the low,
Shook it off-
He’s in control.
All my asking He Knows-
My reaction through pain.

Started from a reaction,
New life put me in action-
I am healed through His Name!

Please also visit my YT channel:
Melanie’s Melody
to see these and many more stories come to life. Animated and audiobook style.
Thank you all and God bless your health journey!

#MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #IrritableBowelSyndromeIBS #ChronicPain #ChronicIllness #InsideTheMighty #RheumatoidArthritis #MightyPoets #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease

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Pain Girl by Melanie R.

Pain Girl by Melanie R.

The chronically ill that experience continuous pain in multiple areas everyday, myself included, dread the doctor office doodle I have dubbed “Pain Girl!” She’s infamously found in every pain clinic/doctor office and is said to have the ability to accurately depict the agony the chronic illness sufferer experiences with pencil smudges and a 1-10 score! Of course pain can only go to 10… said no rare chronic illness sufferer ever!
We are usually asked to circle the painful areas on a blurry drawing; labeling S for stabbing, B for burning, etc.
Such little information could be drawn for what I was experiencing with rare chronic illness. I usually had a Picasso painting to present most times! (Some say scribbles of frustration,…I say Picasso!) I don’t think I could even see Pain Girl under my swirling circles and slashes of pain. Making your doctor and yourself laugh while struggling in pain is always a plus.

So in the honor of Christ, the healing of the Body that Christ brings, and infamous pain girl, make a Picasso of your pain and healing.
Draw, paint, doodle, or get crafty making a picture of your pain girl/boy. Color the areas where you experience pain, swelling, stiffness, etc., then draw a cross, put a sticker, a heart, (whatever you want) as your symbol that:

-God is aware
-Hears your cries for relief
-you will be fully restored and healed.
-It won’t be long, etc.
Think of your own too.
Make it fun.
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Today could be the last day of suffering. Today could be the day of His return. Living in the body of Christ it proves that even though we are sick in body, we can heal, and be healed already. Suffer well! Healing will come!

Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth.

3 John 1:2

I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord.

Jeremiah 30:17

#MitochondrialDisease #ChronicIllness #BackPain #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #Jesus #suffering #InsideTheMighty #IrritableBowelSyndromeIBS #RareDisease #Hyperthyroidism #RheumatoidArthritis

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Infused by Melanie R.

I plead as I receive.
The blood was shed for me.
I placed it on the cross,
now blessings for the loss.

My spirit, soul, and body-
all healed…
Infused His name.
He carried it all on willfully
my suffering-
for my gain.

An act of faith found worthy.
My savior,…blood was shed.
I take into my body,
the wine filled medicine.

She reached out with one touch.
A faith found strong and true.
For answers in the darkest night,
endurance shining through.

An answered prayer for healing,
soft on the wings of doves.
A witness to her suffering-
sent lifelines from above!

Malachi 4:2
But to you who fear my name, The Sun of Righteousness will rise with healing in its wings…And you will go free leaping with joy…

God is faithful! Rise & stay strong Mighty health warriors! Healing will come!
You’re already free!
IVIG immunotherapy was approved and I received my first dose today!
Praise God for this healing and answered prayer! Thank you Jesus!

#MitochondrialDisease #RareDisease #ChronicIllness #ChronicPain #InsideTheMighty #RheumatoidArthritis #SjogrensSyndrome #HypothyroidismUnderactiveThyroidDisease #IrritableBowelSyndromeIBS #POTS #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #ChronicIllness

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Monitored by Melanie R.

Echoed chambers of my heart;
Centered rhythm deepest part.
Search me Lord, and see I’m true-
Slated clean,
each beat for you.

Five ways count each beats refrain, monitored life both joy and pain.
Set each P,Q,R,S,T…
my heart declares my love for thee.

And if one day my chambers still,
my heart set free-
fulfilled Your Will!

Psalm 26:2
Test me Lord, and try me,
examine my heart and mind.

1 Chronicles 28:9
Acknowledge The Lord of your father, and serve him with wholehearted devotion, and a willing mind. For the Lord searches every heart, and understands every desire, and every thought.

#MitochondrialDisease #MightyMoment #ChronicIllness #ChronicPain #InsideTheMighty #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #PosturalOrthostaticTachycardiaSyndrome #RareDisease

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