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    #My bipolar

    I'm tired of sharing my brain with you!
    You want to be included in everything I do
    Your so clingy!

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    #My son has Collagenous Gastritis. We are celebrating by advocating for rare diseases!

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    #My BIGGEST DREAM.

    Todays post is called my biggest dream because ever since I was told at the age of seven that I had a disability called Cerebral Palsy my biggest dream has always been to learn to walk on my own. I know in my heart of hearts that it may not happen for me but I still till this day hold on to hope that it will even if it doesn't that's ok with me because I've come to the realization that I'm still me regardless if I'm able to walk or not.I have many other abilities that I'm capable of and I'm just going to stay focused on those for right now . final thought everyone has different abilities that they're good at and everyone has the ability to shine when given the chance.

    #CerebralPalsy

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    #My CEREBRAL PALSY PUT TO THE TEST.

    My Cerebral Palsy was really put to the test this past week. I had a pulled muscle and I could not put any weight on my left leg so I had to use my wheelchair to get around. I really saw first hand what it was like to use my chair on a full time basis because I couldn't use my crutches like I usually do to get around.Even though the wheelchair was available to use I had a hard time with it because it's not something that I'm use to and I say it in those words because it made me see what it's really going to be like when the day comes when I'm told by my team of doctors that it's not safe for me to use my crutches anymore not that there is anything wrong with using a wheelchair by any means at all. I know for me it's going to be a change that I will get use to over time and I know it won't be easy but it's going to happen one day and I know that I will be ok with it because I'm still me weather I'm sitting or standing that is something that will never change.

    #CerebralPalsy

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    How long/hard was your social security (SSI) application process?

    Hello! I applied for SSI a few months ago, and not much as happened yet. I know it is a long and grueling process and most people are denied at first and have to appeal. Because I am unemployed, I am struggling greatly financially and I am becoming more and more scared, impatient, and antsy. What helped you all with the social security process whether it's tips that helped expedite the process, tips of information to include/not include, or even just tips of how you coped mentally and practiced self care during these stressful times? I am also currently working with an organization that helps crowdfund for medical and financial expenses specifically for disabled people to try to help me during these trying times. I am trying so hard to make ends meet during this long process and not get discouraged. It's scary having no income and having to wait prolonged periods of time for a lifesaving decision!! #My link for my specific campaign to donate with personal story is:

    helphopelive.org/campaign/19188

    #ChronicIllness #Disability #SocialSecurity #fixedincome #Fundraiser #crowdfund #boost #EhlersDanlosSyndrome #HEDS #HypermobileEDS #Bipolar #MentalHealth #Disabled #financialadvice #Support

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    #My therapy

    Hello all I'm new here I struggle with anxiety and depression. This my fiancee and support dog to be xxx

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    #My apologies.

    I'd like to apologize. I thought drs took care of all you who suffer from chronic pain. Now that my Dr of 10yrs retired no doctors want me :Please keep in mind I don't ask for any specific treatment or medications. I suffer from severe chronic pain and mental health issues but I would eat dirt under the full moon if it would even ease my pain. Idk how much longer I can do this on my own it is mentally exhausting physically excutiating and I'm scared and don't know what to do. .I'm so sorry I didn't know this world existed or I would've fought for all whe I could walk without crying. Stay strong any comments or suggestions would be appreciated (no, hate, judging or anything that would make me feel any worse please) #BarelyHangingOn
    #MightyTogether

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    A rendering of my sons race truck he is building

    Did a rendering of my sons race truck finished and blowing flames out the side #bigpapiracing
    #elbendajo #BPD therapy #My art my mind

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    #JustBreathe

    Learning to be still and close my eyes, just breathing! #My beautiful life!

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    #My Rheumatologist UGH

    I am 65 and brand new to Lupus or whatever "undetermined connective tissue disease" I have causing elevated ANA, SCL-70 and Sed rate. I think I may have had Autoimmune disease for 15 years when I got my first rash. My Dr. Makes me feel stupid even though she put me on Hydroxychlorquine, so when we move to AZ in the Fall, I will head over to the Mayo Clinic and hopefully someone will treat me as if they hear me and see me. I've noticed that I am invisible to people now that I am 65.