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    Shine Bright Like a Diamond

    #ChronicFatigue #Fatigue #fibromyalgiafatigue #exhaustion

    So on a personal note we flew high accomplished many things sent love out in many directions only to land on the couch and that’s IT. #crash #Drained #nap

    What IT all means is while we feel like we are getting better trying to do the things we use to do or remembering things that we could have done before diagnosis. We find ourselves in the cycle of #Updays #Downdays .

    This is incredibly frustrating and irritating to say the least. How does one do all the things one is supposed to do when they don’t have enough #Energy and suffer from #ChronicIlless ?

    Like seriously we have to be able to get through a week or two without being completely #overwhelmed .

    Ok like we have taken on some extra #Stress #Work #MentalHealth and sure some #Caregiving . But common like surly we can still get things done. #DoEverything right?…

    Wrong !!!

    This is the reminder that we are in this situation because you didn’t look after yourself #rest #Health #Breakes #timeOff #timeout .

    That’s right super hero you’re going to have to passé a bit better. Not everyday! Not every hour! Not every minute!

    So we are sorry! Please take time to say you are sorry for not looking after You!

    See while you would love to help and save the world… You forgot!

    You have to save you!

    IT is true and the year is ✨2022 IT is true.

    Please 🙏 be kind to you.

    Please 🙏 look after you.

    Please 🙏 take time for you.

    There is only one ☝️ you.

    Someone out there needs this so this is for U

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    Take Time for You, You Should Matter to You, So Accept That!

    So often we emotionally and physically spread ourselves thin by helping other people mom dad sister brother co-worker's friends, but when do you give yourself me time. Everyday try to a lot yourself 30 minutes to 1 hour of me time. Rather it's at home or just out doing something only you benefit from. This is a healthy way to balance out your emotions. #Emotions #yourtime #rest #MentalHealth

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    What he/she/they/you think of me is None of my business, and here is why:

    We all know the #struggle it is to #Love ourselves, to even find and hold onto #Selfworth is a great challenge fr most of us. In a civilization saturated by a culture corporate/business model norm that our worth, our #value is based on #Productivity and we come to define productive as getting dressed, brushing our teeth, COOKING, and the true miracle- going for a #Walk . The opinions of those who can not “walk a mile in our lives” COMPLETELY lack any value to us. Oh, you will encounter fakers who will mock our lives, as if they have given it thought. However, when you whisper to their bravado the reality their minds are too small to absorb it. A shout on f how dramatic you are!
    Again, the opinion of him/her/they or them is utterly meaningless. Only YOU know your truth, your effort given your #resources . Our remaining #resources whether it be #Fibromyalgia , #Asthma , #MajorDepression , #AnxietyAttack , #longcovid , #ChronicFatigue , or one f the many combinations of #AutoimmuneDisease with so much else, NO ONE knows how much is in our tank on any given day, r the #courage it takes to #rest !!!!

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    Embracing the Roomba

    Mom passed 7 months ago and grief isn’t simple (for anyone). Since early May, my grief has tangled so tightly with my bipolar depression, anxiety, aging, chronic pain, and highly sensitive nervous system that I’ve been left with a knotted ball, growing heavier and heavier.

    I move between rooms of our home, no routine, no logic. I will do one-quarter of a task before leaving for another spot where I’ll notice another thing to do and before it’s finished I retreat to the couch. It's a great deal like a Roomba (and if I could fit under the couch like the Roomba, I'd hide there some days).

    In one room I will cry because I can’t tell if it’s a King sheet or a Queen and leave the bed unmade. So I'll pull out all my nice Sharpie markers to draw but then can't think of anything to doodle. So, I'll go for a walk only to turn back by the end of the street because I’m just too physically weak (or it’s much hotter than I thought). Eventually, I'll make it into my office to edit an essay but go online to research my local politicians instead. Soon I'll start crying again and go outside to pull weeds. On the porch, I’ll read a single paragraph of the same book I’ve started and stopped four times since Mom passed and then give up and take out the trash but not the recycles.

    Perhaps it is post-pandemic, empty-nest, aging-brain induced ADD? I am certain my friends and family with ADD can relate to this Roomba feeling. Grief itself brings a disorientation as the brain accepts that someone should exist that does not anymore.

    And while I’m not ready to call this thought "hope," at least today, in this moment, I find comfort in the ways of little Roomba:

    move forward a little at a time,

    spin away from obstacles to find another path,

    be patient with the process, and

    return to base to recharge your batteries.

    #Bipolar #Grief #funwithanalogies #patience #Depression #OnedayAtaTime #Analogy #KeepMoving #rest

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    Long weekend plans

    Anyone else find you just sleep away your days off?

    #Weekend #Sleep #rest #timeOff #Fun #MakeMeLaugh

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    What kind of rest do you need?

    I recently took a week off work - my first break in two years. It was hard to let go of my responsibilities and it took over three days before my anxiety started to calm down. So then I tried to rest. I discovered that "rest" is a lot more than just not going to work for a week.

    What kind of rest do you need? Does something on this list sound like just the thing for you right now?

    #Selfcare #rest #MentalHealth #Depression #Anxiety #PTSD

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    What was I saying about no drama parenting?

    Whew! What a day! I think I came inches away from losing my… well you know. Four year old running from me saying, “noooo! I don’t want a nap!” Backed up toilet that looks like hell vomited all over the place, and a tub full of previously moistened turtle food now dry. Another chewed up pull-up found by the family Bassett hound, Seven year old telling me he’s waiting for dad to help him with his homework and it is okay if he watches YouTube, thinking he’s pulled the wool over grandma’s eyes. And the six year old was actually pretty calm today. Small favor for sure. I managed to get the laundry done (including the laundry stuffed behind the armoire). Cleaned the bathroom and texted mom and dad. All kids took showers ate dinner (no dessert, which shocked the kiddos!) “wait! What? No dessert?” Surprise! Desserts aren’t usually part of the daily meal menu! All kids in bed by nine! That’s amazing. It’s quiet now, my physical pain is starting to calm after taking 1200 mg Motrin. I’m hoping for a good nights rest and a day off tomorrow. I feel all I’ve learned about mindful drama free parenting went out the door today. Maybe tomorrow or Wednesday. #rest #ChronicPain #GeneralParenting

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    Rest When Weary

    So much time spent balancing the need to rest and the press to be and do. I find my need to take a break, retreat and just feel safe and warm in my own bubble has increased. So much to process and keep hearing the chants of fellow warriors. For me, Clean sheets and soft pjs with my fav blanket is the best feeling and i retreat when needed into this safe zone. #rest #superherowarriorsneedresttoo
    #Spoonie
    #balance
    #CPTSD
    #PTSD
    #ChronicPain

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    Back to work tomorrow #worklifebalance #rest #routine #earlymornings

    So….I have had ten days off and it was good but man oh man they flew by. Now I love my job but even so it is very hard for me. So, I am feeling a little anxious about going back tomorrow. I am so grateful to be employed as I know so many people who can’t work. But I struggle with routine and I have to wake up by 330am to get to work in time. Sooooooo…..IT. IS. HARD. I thank my lucky stars that my job is somewhat flexible because I am late AT LEAST twice a week….sometimes I am late every single day. I know my lights need to be out at 7pm to be able to get up on time. I have NO IDEA why that is so difficult for me🤦‍♀️. Anyway….I am going to make that my main goa this week. LIGHTS OUT AT 7pm!!!! Wish me luck.

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    Who told us that it should be easier than this?

    There’s something I haven’t quite put my finger on. Where did we learn that life / relationships / work / health etc should ‘be easier than this?’ And … when we ‘come up against what we want’ that we feel ‘shame / rejection / guilt’ about it? Why do most humans believe this? It’s a myth in our western societies isn’t it? It does take active maintenance to create meaningful relationships. It takes daily maintenance to stay connected to our truth in a material consumer obsessed culture. It takes meaning maintenance to love ourselves. Especially, if you’ve experienced c-PTSD as I have. I appreciate the label as it gave me new knowledge about how my brain 🧠 works. This takes daily maintenance to heal. I’m starting to see such depth of healing some days I feel like crying with gentle joy. I hope it continues this way. Eitherway, if it becomes ‘hard’ or I start to wish it was easier, I would ask myself- why do you believe this myth? This is a teachable moment. I’m starting to find such meaning in the day to day, week to week maintenance that is my medicine. #Healing #CPTSD #rest #Recovery #Love #SpeakmyTruth