Parttimewheelchairuser

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Permanent Side Effects from Fluoroquinlone

5 years ago I had to take Cipro and Levaquin , each for 6 week durations. My mind went first, then my body. I was a very athletic, active and social person and now can not do ADLs or IDLs without assistance. It is like my body is allergic to physical activity and excersizing. Still trying to figure out how to manage this. I have learned to pick my battles and sometimes that works. Recently I have gained a lot of weight in a small amount of time, so my number 1 goal is to get back in shape so Doctors will not look at me and blame it on that and getting older.

This has been a blessing as much as a curse. I have lost a lot of friends and family, but now see who the truly beautiful people are in my life. I really appreciate the small stuff and have learned to live in the moment. The problem with that, it is very boring when you do not have a lot going on, or, unable to do most of the things you loved to do! It does wipe away a lot of anxiety and that makes it all worth it.

I am so thankful for my home, I love because it has turned into a bit a of a prison. So very , very thankful for my two dogs who keep me company and laughing.

For anyone going through struggles, uncertainty or life changing experiences, stay strong and know you can do this. Most importantly, you are never alone no matter how lonely you feel. Baby steps can take you far so stay positive!
#floxie
#Cipro #Levaquin #fluoroquinoloneassociateddisability #fluoroquinoloneToxicitySyndrome #Parttimewheelchairuser #Anxiety
#Depression

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First Post!

This is my first post so hello everyone. First I'd like to say how thankful I am that I found this community. You all came to me at the perfect time. I have #Undiagnosed #ChronicPain It is nerve pain that affects my arms and hands and legs and feet.

Originally in April 2019 it started in my right forearm. Now 8 or so months later I'm having a difficult time walking. I get extreme numbness and tingling sharp pains pins and needles and intense weakness. Often I can't use my arms or legs and I have a difficult time with dressing myself, eating, walking, or doing much of anything nowadays. When my arms work, folding the laundry makes me so tired and ends up putting me in so much pain from the little work, that nothing is worth doing.

So I'm getting a wheelchair. I want and need to be able to move. I need to be able to go to the bathroom My boyfriend has been having to drag/carry me down the hallway on my bad days. On my good days I limp or crawl. #Parttimewheelchairuser

A lot has happened. No one knows what's going on. There's been a lot of tests, a lot of doctors, and a lot of lost hope. I'm in pain constantly and somehow, it keeps getting worse.
I know this is quite the bummer of a first post, and for that I apologize. I thank you all for being here. Thank you for this.

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Heart Broken #InvisibleIllnessAwarenessWeek #MyastheniaGravis #ADHD #CentralSensitizationSyndrome #SpinalStenosis #ServiceDogs #Parttimewheelchairuser #lonely

I have to let go of my live in assistant of over a year. He gave me independence I love and feel so good about. But he can not seem to grasp ADLs and IDLs disabilities. I do not want to let him go, but his attitude is taking it’s toll on me. Breaks my heart so bad. I know he will not want to be my friend after this. I hate trying to find people who do not understand what I am going through because “I look so good.”

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PUPPY ❤️ ##MyasetheniaGravis #MG #Wheelchair #Parttimewheelchairuser

I don’t have MG; my dog does. He is the one with the saggy face and in my chair more than me.☺️☺️

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