Peripheral Neuropathy

I was never one for vanity trying to look my best for the world around me. I do wear clean clothes and shower daily hygiene being the goal. Now my hands and feet are contorting as my muscle disease attacks the intrinsic muscles as well. I don't like the way my foot is shrinking and my toes point in different directions and I'm sad because I don't remember what it used to look like. Deformity that effects your daily tasks and activity is disheartening I don't even remember what my hands look like.##ChronicIllness #ChronicPain #OCD #MDD #DegenerativeDiscDisease #Anxiety #PeripheralNeuropathy #Disabled #RareDisease

I felt so stupid what happened to me on Instagram at the beginning of this year. I only went on the site to follow my favorite country music artist Wille Nelson I am avid music fan all kinds Reggae Rock and country so finding out about Willie on a social media platform seemed normal . I abandoned Facebook in 2020 after a year I found it to be artificial not like the Mighty where people lift you up instead of tearing you down. So I went on Instagram against my gut feeling because I bought tickets to go see him last year and because of my progressive condition I can't attend any concerts anymorre it's been 15 yrs since I saw him in concert. I made a profile for myself and started scrolling or searching for Willie's Instagram post and sure enough I found one but what this dumb farm animal didn't know it was a fake.

I texted back and forth with someone pretending to be Wille and fell for the whole rouse until they started asking me more personal questions and I became suspicious. The whole thing broke my heart you know with chronic illness we only have very few things we can engage in and someone was impersonating w one of my idols that I first met when I was 16 face to face. You can tell by the story I'm over 55 maybe it was my fault for not knowing that fake Instagram Accounts existed. If you read this story thank you for taking the time it's way too long I know #OCD #DDD #ChronicPain #Anxiety #RareDisease #MDD #BP d#PeripheralNeuropathy #bilateralfootdrop

Some mornings the pain is so bad I just want it to end but I know the only way it will end is when I die. Rare disease with no cure or treatment a genetic mutation that slowly takes out all your muscles. You don't think every muscle in your body can be affected it's sometimes unbelievable but this gene MYH7 is responsible for instructing muscle structure for skeletal muscles and cardiac muscle. I feel so trapped in 58 so who cares I guess they are finally noticing congenital heart failure in the genetic sense in adults. If they do find a cure it will be too late especially since funding for research is being taken away .#OCD #BPD #RareDisease #ChronicPain #MuscularDystrophy ##MDD #DegenerativeDiscDisease #PeripheralNeuropathy #

I know many people have a wide variety of health and mental onditions on this forum who turn to the Mighty to get some insight.

Many times I go onto the Mighty for these same reasons and more and I like welcoming new members because I was shown the same kindness and compassion.

I have to tell you that today someone on this forum that I follow, said that he appreciates my comments and to keep fighting the good fight. It really hit me hard you know, I'm so isolated because of my health and these words today were so kind and inclusive.

You see sometimes it's a few kind words that can stop someone from giving up on life it's good we lift our fellow man when he or she is in a struggle.☀️🙂💙##BPD #OCD #ChronicPain #Muscular dystrophy #Rare disease #MDD #PeripheralNeuropathy #myoconfritis #loely