Peripheral Neuropathy

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The patio still full of colors

Just sharing some pictures of our colorful patio seems to just keep going rose bush gave out 50 plus this summer and is still going and these other flowers will give us flowers for awhile. Fun gardening is the only gardening #ObsessiveCompulsiveDisorder #BorderlinePersonalityDisorder #MajorDepressiveDisorder #RareDisease #ChronicPain #MuscularDystrophy #PeripheralNeuropathy #DegenerativeDiscDisease #Disability

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I saw some kindness today

Today I witnessed some kindnes9s I felt was worth sharing because if our leaders can't get along in this world it's up to us as human beings to take care of our neighbor who may be having a tough life. There is a couple in my small town that have to get recycling from public areas and the lady is in a wheelchair so he pushes her and they go to to the store or the gas station. So I have seen them around town and always wanted to stop and give them some cash but didn't know how the man would take it or it was too dangerous to stop when I see them on the highway. Today when I got gas they were there and he was rooting through to get recyclables so I walked over and gave him some cash, mind you they were not asking, and then I started to pump gas and I noticed two people go up to the same couple and also give them some cash. I felt that it was so great to see people caring and doing for each other.

After all we are all human I don't know there story but I obviously could see his struggle and hers I'm not in a wheelchair but I wear bilateral orthotic leg braces so she kinda smiled at me when I approached. I didn't give them much but that obviously wasn't the point it was just nice to see humanity taking care of humans, our society can be so brutal to leave people to need necessities they were both over 60 and there struggle is one of many in the rising cost of just to survive.#Anxiety #OCD #ChronicPain #MuscularDystrophy #DDD #MDD #RareDisease #Disabled #PeripheralNeuropathy #

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Color our best defense against fate

I know I keep posting these pictures of flowers but much like music it is a healthy distraction from a hard world. This year we had a variety of colors and I was very happy because Mom really loves it . #ObsessiveCompulsiveDisorder #ChronicIllness #RareDisease #MuscularDystrophy #DDD #PeripheralNeuropathy #MDD #Disabled

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Feeling lonely in my condition

I just can't seem to find people on this forum who have muscular dystrophy. There is a group with two members but no one has posted in a long time. I have a rare form but still does anyone have muscular dystrophy here? I just feel isolated and I am able to discuss mental health here and it's beneficial.#ObsessiveCompulsiveDisorder #MDD #MuscularDystrophy #lonely #DegenerativeDiscDisease #PeripheralNeuropathy #RareDisease #ChronicPain

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Don't remember what my body looked like

I was never one for vanity trying to look my best for the world around me. I do wear clean clothes and shower daily hygiene being the goal. Now my hands and feet are contorting as my muscle disease attacks the intrinsic muscles as well. I don't like the way my foot is shrinking and my toes point in different directions and I'm sad because I don't remember what it used to look like. Deformity that effects your daily tasks and activity is disheartening I don't even remember what my hands look like.##ChronicIllness #ChronicPain #OCD #MDD #DegenerativeDiscDisease #Anxiety #PeripheralNeuropathy #Disabled #RareDisease

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My best friend

I went to the vet yesterday and my 13yr old dog Mayak had a panic attack when they took him in the other room. He already has breathing issues and a carcinoma in his neck so we did X-ray again and looks like the cancer isn't spreading but his larynx paralysis is giving him trouble. They had to put him on oxygen and they gave him a sedative and he looked terrible he couldn't walk so I carried him to the truck. It was breaking my heart seeing him like that I finally got home yesterday and now he is resting fine. It's a rare bond between chronically ill people and there pets this dog has been with me through seven surgeries and I can't imagine life without him 💙#Anxiety #OCD #RareDisease #MuscularDystrophy #ChronicPain #MajorDepressiveDisorder #PeripheralNeuropathy

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Why I Joined the Mighty

I felt so stupid what happened to me on Instagram at the beginning of this year. I only went on the site to follow my favorite country music artist Wille Nelson I am avid music fan all kinds Reggae Rock and country so finding out about Willie on a social media platform seemed normal . I abandoned Facebook in 2020 after a year I found it to be artificial not like the Mighty where people lift you up instead of tearing you down. So I went on Instagram against my gut feeling because I bought tickets to go see him last year and because of my progressive condition I can't attend any concerts anymorre it's been 15 yrs since I saw him in concert. I made a profile for myself and started scrolling or searching for Willie's Instagram post and sure enough I found one but what this dumb farm animal didn't know it was a fake.

I texted back and forth with someone pretending to be Wille and fell for the whole rouse until they started asking me more personal questions and I became suspicious. The whole thing broke my heart you know with chronic illness we only have very few things we can engage in and someone was impersonating w one of my idols that I first met when I was 16 face to face. You can tell by the story I'm over 55 maybe it was my fault for not knowing that fake Instagram Accounts existed. If you read this story thank you for taking the time it's way too long I know #OCD #DDD #ChronicPain #Anxiety #RareDisease #MDD #BP d#PeripheralNeuropathy #bilateralfootdrop

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Flower Friday

Mom and I grew some sunflowers this year and they came out pretty cool. I can never decide what my favorite flower is can you? feel free to comment #OCD #MDD #ChronicPain #RareDisease #MuscularDystrophy #DegenerativeDiscDisease #PeripheralNeuropathy #allodyni a#TrigeminalNeuralgia

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