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🧡🎹Explaining FND – Piano Analogy🎹🧡

Functional Neurological Disorder (FND) is often a difficult condition to both understand and also explain to other people, however there are some analogies that can help with this. Many people may be familiar with both the ‘Computer Analogy’ & the ‘Smartphone Analogy’ as most people have some understanding of technology. But what if you are not so familiar with technology? How do you explain FND then? Well, there is another analogy that might help – the ‘Piano Analogy’ – which may be easier for people to relate to because it is based on how a musical instrument works.
The Piano Analogy:
Imagine that a person is like a piano – the physical structure of the piano is like the person’s physical body; the keys/notes are like the body’s functioning. A person without FND is like a piano that is structurally correct with all the keys/notes in tune which makes the music that is played sound accurate. A person with FND is like a piano that is structurally correct but with keys/notes that are out of tune or not working which makes the music that is played sound inaccurate, unrecognisable and incomplete.

#FunctionalNeurologicalDisorder #FND #FunctionalNeurologicalSymptomDisorder #FunctionalMovementDisorder #ChronicPain #ChronicIllness #Disability #MightyTogether #AskMe @fndhope

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🧡📱Explaining FND - Smartphone Analogy📱🧡

Like many chronic health conditions, Functional Neurological Disorder (FND) is a difficult condition to explain to people. I like to use the ‘Smartphone Analogy’ because it is usually easier for people to relate to as most people have a smartphone these days.
The Smartphone Analogy:
Imagine that a person is like a smartphone – the hardware of the phone is like the person’s physical body; the software/apps on the phone is like the body’s functioning. A person without FND is like a smartphone that is all structurally correct with all the apps functioning properly. A person with FND is like a smartphone that is all structurally correct with software issues and apps that are not functioning properly.
#FunctionalNeurologicalDisorder #FND #FunctionalNeurologicalSymptomDisorder #FunctionalMovementDisorder #ChronicPain #ChronicIllness #Disability #MightyTogether #AskMe @fndhope

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❓🧡What is FND?🧡❓

Functional Neurological Disorder (FND) is a complex condition that affects the brain and nervous system and how they interact with each other. This debilitating condition affects the functioning of the brain and nervous system resulting in ‘signals’ sent from one being interrupted or not received by the other and vice versa. For example, in my case, the brain sends a ‘message’ to my leg for my leg to move however my leg does not receive this message, so it does not move; likewise, my brain does not receive signals from my leg, so my brain does not register things such as the sensation of my leg being touched. As FND affects the functioning of the brain and nervous system it can cause a wide range of symptoms that varies from person to person and can affect any part of the body and how it functions.
#FunctionalNeurologicalDisorder #FND #ChronicIllness #ChronicPain #MightyTogether #AskMe @fndhope #FunctionalNeurologicalSymptomDisorder

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Coming to terms with the “push-pull” dynamic I’ve been in for over a year. #Relationships #Love #MentalHealth #AskMe

I'll start by asking for ya'll to go easy on me. I fought this fear for so long, and it's been a very difficult and jagged pill to swallow... I'm a female in her 30's and he's a male in his 30's. What started as a FWB thing, turned into a something much more that that. I'll spare you the lengthy details, but we've been seeing each other for over a year-- but we became serious around early spring this year ('26). Everything was great. Our communication, patience and understanding of each others perspective blossomed. We both worked to listen and support and comfort each other (this was a huge turning point from prior "ons".) It really felt like we were on a good path for the most part.

In the "good" three months did have to actively fight against accusations that I was cheating on him. It was devastating to me. I was accused more than once because he thought he heard moaning/humping in the background of our phone calls. To make a long story short, I reassured him time and time again; eventually the accusations stopped. Time went by and I continued to meet his family and go to dinner with them. But he came over one night and he dropped a bomb-- said we need to take it slow (everything had been on the up and up, for a few weeks). He pulled away (sex phased out, not very responsive via text, etc)-- this lasted for about two weeks (I was confused but didn't challenge it). We had made plans to meet up for the first time in a couple weeks, and little did I know, he had planned to break up with me. I took it in stride and was understanding.

He said it felt like he could feel himself slipping into "old patterns" and not being "intentional" and just "going with the flow" and keeping me at "arms length". I was supportive, and expected that to be it. But he continued to reach out, and I unfortunately responded. We met up a few weeks later to say goodbye so he "could work on himself and be the best version of himself for me"-- I know, some red flags were pinging. But I want so bad for that to be true.

Fast forward to Aug 1st (couple weeks ago and a little over just ONE week to "work" on himself) and he tells me he wants me back, and goes onto explain that he's moving away within the year. He then asks me if I would uproot my life, and follow him there. (He also asked to get intimate again, and I explained that I wasn't ready yet to enter that part of intimacy with him after the back and forth that's been between us recently; his demeanor changed (almost "pouty")-- red flag, I know.

Moving on: Then the next couple days were ok and "normal".... until he wakes me up early morning (6AM) and confesses that he has come to terms with the fact that he is a serial cheater. That it is something about himself that he is disgusted with, and doesn't know how to stop it (he says he has not done anything while we've been together). I cry, lose all ability to think, form words, concentrate. Again, another rug ripped out from under me-- especially at a time where I am so vulnerable. I felt lifeless. I was a shell of myself all day... and for days after that.

I know well enough this is a major push-pull dynamic, and it's so painful to love someone in this cycle. I know that there is nothing I could every do to change this. And in my heart, I know how this is going to end...however painful it will be. Please, if anyone out there reads this and has been in this... drop a word of encouragement for me. I am scared, lost and shattered

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Modified Rhupunt, Thoughts???

Howdy
So I’m like not even 24hrs new to this app but I wanted to get others intakes
While trying to figure out what type of poetry I like to do as a challenge, I discovered that I like to do what is called a Rhupunt, except I take it further and it doesn’t seem to actually have a name yet
How mine goes is that I ask 4 random people to give me 1 random word each
Then take that and see just how fast I can get it done (10 minutes is my best (so far)) and the only stipulation I have is that it can’t be too simplified and actually has to mesh/jive well together (so it doesn’t seem like I’m just pulling stuff out of my butt and actually makes sense).
My question to everyone else is that am I the only one who does this or do others (besides myself) do this as well? # Rhupunt #Poetry #AskMe #MightyPoets

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Hope by Melanie R.

Hope by Melanie R.

In the deepest depths of the dark,
bringing life to drowning hearts.
Rescued from the whirlpool.
Lifeline from the flood.
Going through the storm,
swept over-
all washed up.

Jesus reached in troubled waters,
met me where I was.

Now I’m walking with Jesus on the waters in the storm!

Oh, hope from my Jesus, hope from my Lord!

Life for the drowning heart,

Hope if you’re drifting.

Hope if you’re lost.

Now I’m Walking with Jesus on the waters in the storm!

Zechariah 10:11
They will pass through the sea of trouble;the surging sea will be subdued.

Isaiah 43:16
Thus says The Lord, who makes a way in the sea; a path in the mighty waters.

#IfYouFeelHopeless #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #MitochondrialDisease #CheckInWithMe #InsideTheMighty #PrimaryImmunodeficiency #Gastroparesis #IrritableBowelSyndromeIBS #AskMe

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PEG-J Predicament

I'm an EDS patient, and I not-so-recently got the diagnosis of severe gastroparesis with no stomach function. I have been admitted to hospital and got a NJ Tiger tube and a PICC placed for parenteral & enteral nutrition (I also have intestinal dysmotility). My doctors are opting for PEG-J tube placement, but I just can't get over the idea of this going way too fast. Also, I am not doing very well with the enteral feeding, and my doctors are trying to decide between home long-term TPN or me becoming a long term patient.. :( For this reason I'm thinking of starting a blog to share all my experience of having EDS as a teenager! Should I, or should I not? #ChronicIllness #MyCondition #EhlersDanlosSyndrome #Gastroparesis #AskMe #Dysautonomia

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What questions do you have about PH1?

We’re creating an #AskMe video with one of our partners, Alnylam Pharmaceuticals, about life with primary hyperoxaluria type 1 (PH1), a rare disease that mainly affects the kidneys. We’re calling for community questions that may be answered by an expert physician in this upcoming video. That’s why we’re asking: what questions do you have about PH1?

Add yours in the comments below.

Your questions may be used in an upcoming sponsored video with Alnylam featuring a physician with deep expertise in PH1. This video will be published on The Mighty’s Facebook channels. Your questions will remain anonymous in the video. You can read The Mighty’s full privacy policy at themighty.com/privacy

#PH1 #KidneyDisease #RareDisease

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What questions do you have about PH1?

We’re creating an #AskMe video with one of our partners, Alnylam Pharmaceuticals, about life with primary hyperoxaluria type 1 (PH1), a rare disease that mainly affects the kidneys. We’re calling for community questions that may be answered by an expert physician in this upcoming video. That’s why we’re asking: what questions do you have about PH1?

Add yours in the comments below.

Your questions may be used in an upcoming sponsored video with Alnylam featuring a physician with deep expertise in PH1. This video will be published on The Mighty’s Facebook channels. Your questions will remain anonymous in the video. You can read The Mighty’s full privacy policy at themighty.com/privacy

#PH1 #KidneyDisease #RareDisease

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