Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
235K people
0 stories
11.1K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

List four intentions for the week ahead.

Happy Monday, Mighty family! 🗓️

Let’s welcome the week by setting some intentions. As you look toward the days ahead, what do you want to remember to do, to be, to create, or to embody? What’s on your agenda for this week?

Share your intentions for this new week and new month in the comments below. 📝

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 11 reactions 8 comments
Post
See full photo

Life goes on

One of the hardest parts of adulting is realizing that life doesn’t slow down when we’re struggling — the deadlines, bills, and responsibilities keep piling up. But here’s a gentle reminder: you don’t have to take giant leaps to keep going. Break your day into the smallest possible steps — send one email, drink a glass of water, write down what’s stressing you. Progress isn’t about perfection, it’s about momentum.

What’s one small thing you can do right now to remind yourself you’re still moving forward?

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactionsMost common user reactions 27 reactions 11 comments
Post
See full photo

Who or what inspires you to keep going?

Hi Mighties!

A new week means a new theme, and the topic for this week is 💫 inspiration 💫.

In its simplest definition, to inspire is to spark or create a feeling of confidence, motivation, or desire to do something. Inspiration can come from many different places, such as art, the environment, other people, books, and music, and can influence a myriad of ideas, both new and old.

Today, let's share who and what inspires us to keep moving forward.

Mighty staffer @sparklywartanks says that her dogs, family, and passions inspire her to keep going.

What about you? 👀

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 4 reactions 6 comments
Post
See full photo

__________ has been the most impactful in navigating my health.

Hi Mighties!

If you could identify what has been the most impactful in navigating your health — whether related to specific conditions or your overall wellness — what would it be?

Share your own or choose from the options below:

1. Treatment 🏥
2. Connection/Support 💌
3. Validation ❗
4. Distractions 📺
5. Mindset/Perspective 🤔
6. Self-advocacy 🗣️
7. Rest/Pacing 🛌
8. Education 📚
9. Spirituality 🙏
10. Creativity 🎨

Let us know in the comments!

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 27 reactions 21 comments
Post
See full photo

How do you manage or cope with negative self-talk?

The way we communicate, engage, and connect with ourselves—how we relate to our thoughts and process our experiences through inner dialogue—is all part of our self-talk. Whether positive, negative, or neutral, it can influence and affect how we perceive ourselves, navigate challenges, and move through the world.

I’ve struggled with negative self-talk for a long time, especially in how I interpret difficult experiences and respond to mental health triggers. I often catastrophize, sometimes unknowingly, because it feels safer to anticipate the worst than to be caught off guard. I’m also very hard on myself when I make mistakes or don’t meet perceived expectations.

Since entering recovery a few years ago, I’ve been learning how to be kinder to myself. Using neutral and self-soothing affirmations has helped me cope with cycles of depression, anxiety, and panic. It takes a lot of intentional effort, and sometimes it still feels unnatural after years of being so self-critical, but I’ve come a long—and I know I’m in a much better place than I was in my teen years.

Do you struggle with negative self-talk? How do you manage or cope with it? What has helped you?

#Selfcare #CheckInWithMe #Grief #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #EatingDisorders #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Migraine #Fibromyalgia #MultipleSclerosis

Most common user reactionsMost common user reactionsMost common user reactions 22 reactions 7 comments
Poll

Select all that apply
4 weeks left
General practitioner
Geneticist
Rheumatologist
Cardiologist
Physical therapist
Neurologist
Gastroenterologist
Pain management specialist
Occupational therapist
Other (share your experience below!)
2 reactions
Post
See full photo

Tell us about your "found family."

Familial relationships can be complex, even more so for those of us who have experienced some level of trauma/abuse, or who have set boundaries with our immediate or extended biological families for a variety of reasons. Thankfully, this doesn’t necessarily mean we can’t create a family of our own.

A "found family" (also called a "chosen family") is a family we create ourselves with people we meet who help us to feel safe, protected, and loved.

Do you have a "found family?" Tell us about them. What makes your relationships with them great?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 9 reactions 6 comments
Post
See full photo

🎯 What Jealousy Is Really Trying to Tell You

Feeling jealous or insecure doesn’t mean you’re weak — it means you’re human. But most people either shame themselves for feeling that way or let it eat them alive.

What if you could use that emotion as a tool for self-growth?

In this video, I share how to turn jealousy into fuel — to help you find direction, spark ambition, and grow into the person you want to become.

🎥 If you want to learn more, click on one of the links below to watch the full video:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 6 reactions 1 comment