Post-Concussion Syndrome

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Post-Concussion Syndrome
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concussion migraines & pressure

Hello all, hope everyone is doing alright. Ontop of my already chronic health issues ( EOE, GERD, IBS, anemia ), I suffered a pretty bad blow to the back of my head around 2 weeks ago in my ncaa lacrosse game. Have had a lingering migraine with loads of pressure in my head that won't go away. Was told I have a concussion. Any suggestions for migraine and pressure relief ? I eat super healthy and was told to not do much excersise because it will make the pressure worse. I fear I may have post-concussion syndrome developing. I am very behind in school (nursing major) because of this, so any tips for studying with migraines would be helpfull to!

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I’m new here. I sustained a brain injury in 2017, then ruptured a disc in my back in 2021, and sustained another brain injury in March of 2023. I’m also now facing IIH and a potential POTS diagnosis. Glad to be part of this group.

#BrainInjury #IntracranialHypertension #PostconcussionSyndrome #PosturalOrthostaticTachycardiaSyndrome #DegenerativeDiscDisease #Migraine #Depression

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I'm so torn

My husband and I live in Maine, our parents live 4 hours away in CT. My husband was in an accident long ago which left him with post concussion syndrome. He did 20 years in the Air Force and retired so we live on his retirement and VA benefits. I have been his caregiver although he doesn't always see it that way, struggles with his mental health but doesn't realize he needs help. 3 years ago he had a psychotic episode that lasted months, has mostly recovered but still really needs someone around to keep him on track. After 27 years as a homeschooling stay at home mom, last year I earned my masters in Counseling, found an awesome part time job doing exactly what I had dreamed of doing, and I'm part of an amazing community here. Now my parents...we've noticed over the years that mom was becoming more and more forgetful. This past spring she was diagnosed with alzheimers. She still recognizes people but she cannot be on her own at all, can't do the simplest tasks without direction, although she insists she can and tells everyone she does do everything. My dad takes care of her 24/7. My brother lives there as well but is little help to them and often moreover burden. Mom is becoming very mean, especially to my dad. She calls him a liar, has threatened to hit him, gets angry when he directs her to do something. Dad is getting tired, and I'm learning now that it's always been kind of a challenging relationship. But dad's not going to leave her. They don't have money to go into assisted living, they're still paying on their home as they've had to refinance a couple of times because of stuff my brothers done. I'm afraid this is taking a huge toll on my dad. They had said last week that they were going to have people come in to help and mom could go to a day program. Today dad told me they canceled all that except the meals on wheels. When I asked why, he said "mom's not ready to go to the day program" which I think really means that mom put a kabosh on the whole thing. She may not have a memory but she can definitely still demand her own way and keeps insisting they're perfectly fine. Dad has so many things he'd like to do but can't because of mom. We thought about moving them up here with us, but their support is mostly down there. I don't really want to move down there because I've got my support system here, my husbands doctors are here, I'd have to change my counseling license to CT and wouldn't find this kind of job and i don't want to be sucked into the drama of my husband's family too (they don't believe in mental illness but whew! they should!). We try to visit at least once a month. Am I being selfish not moving down there? Oh and our kids are all here in Maine as is my grandbaby and my oldest son, I'm pretty certain, is on a crash course with his own mental health. I've already pretty much lost the mom I know, I'm so afraid I'm losing my dad too and I've also got so much other stuff going on too. I try to be brave for everybody, be strong, but I just don't know how. And secretly I wish someone would work so hard taking care of me. #Caregiving #AlzheimersDisease #MentalHealth

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Holistic Medicine - yay or nay?

What are your thoughts on holistic medicine?

Aside from fibro I struggle with migraines, chronic fatigue, hypermobility, etc. I went to a chiropractic/brain wellness/nutritionist/gut health doctor yesterday for a consultation (not covered by insurance of course). She validated my pain and experiences (rare with most doctors). Maybe she can help like she claims but I am hesitant with no guarantee and paying out of pocket. Has anyone tried something like this before? Is there any hope for relief?

#Fibromyalgia #Migraine #ChronicFatigue #PostconcussionSyndrome #PTSD #ChronicPain #HypermobilitySyndrome #Anxiety

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Broken Emotions

On November 8, 2015 when I was 14 years old, I sustained life changing injuries in the last minute of a soccer game. I dislocated 3 right ribs, my left sternoclavicular joint, and my left acromioclavicular joint. However, the worst of my injuries was a concussion. In a state of shock and with disrupted thoughts, I was left disoriented. I could not process or understand my detrimental injuries, so I continued with school and sports. Nine weeks later, I was diagnosed with a concussion, which soon developed into post concussion syndrome.

Post Concussion Syndrome (PCS) is classified as a mild Traumatic Brain Injury (mTBI). It is far from mild. I developed a vast amount of symptoms including, but not limited to: dizziness, insomnia, distorted vision, light sensitivity, noise sensitivity, touch sensitivity, information processing disorder, derealization, depersonalization, fatigue, short and long term memory issues, dysphasia, and celphagia. My symptoms caused my life and mind to unravel. My past, present, and future were in shambles. Unable to remember my past. Unable to live in and handle the present. And without a present, there is no future.

Celphalgia is head pain. I call it brainache. For five and a half years, it is always there. A haunting, debilitating pain that resides within my brain. Living with intense pain makes every breath a struggle to survive. I used to do five things: soccer, basketball, learning, reading, and spending time with my family. I wanted to be a geneticist. Now, I cannot do any of those things. I cannot be any of those things. I could not understand what I had lost. I still cannot. Your brain is everything, and mine is scrambled.

Who are you when your potential is stolen? When you cannot live your life? When you cannot remember your past or present? When you do not have enough words to think quietly and soundly to yourself? I certainly did not know. I did not even know the questions, much less the answers. I never understand the situation with words. However, I feel it with my emotions. Emotions are my only thought process, and they are a stranger to me. Words are crucial. They are how we understand the world and ourselves.

I was never an artistic person. The only art I did was the required courses in school. Despite this, in 2016 I undertook my first attempt to draw. I was unable to decipher my own life and emotions. I was brewing with feelings. Stirring with anguish. It was bubbling out with nowhere to go. No words to leave me. I took my pencil, put it to paper, and the Broken Girl was created. My art book, Broken Emotions, came to be because of this girl. She gave a voice to the agony, hopelessness, and hopefulness that I had no words for. I am still unable to understand what it all means, but through her, the turmoil inside me is now seen. It became known. My battles could be fought with her by my side. The pain I endured, she would understand. She is a reflection of whoever resonates with her emotions. She can be everyone, someone, or no one.

The Broken Girl is never completely whole. She is always missing part of her head and thoughts, although you cannot always tell. She hides it well, but she is broken. With her as my internal translator, I continue to fight to understand my thoughts, to survive the pain, to rebuild my life, and one day recover and heal my brain and body. I plan to steal back my potential and my brain. The Broken Girl is for those in pain — an expression of the shattered fragments of broken emotions.

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Me a few hours from now. 🤪😴🥱

Whenever I “nap” it’s usually at least 2-3 hrs. I don’t know how some people can take a 1/2 hr nap and be good. Once I get in bed & actually fall asleep, I’m there for hours! 😹🙌🏼 How bout you?

#Fibromyalgia #ChronicFatigue #CPTSD #PostconcussionSyndrome

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The good ole days! 🥪

Needed a laugh today. 😸Well… every day actually. Feeling tired & unmotivated but hey, I took a bath so I accomplished something right?🙌🏼

#Fibromyalgia #ChronicFatigue #Anxiety #Migraine #IrritableBowelSyndromeIBS #PTSD #PostconcussionSyndrome #Depression

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Time gets away from you

About two weeks ago, I wanted to do a post a day, to get back into the feel of writing and processing and just dealing with this lovely process of living with a chronic illness.

Then, I had a bad Friday, and I long weekend, fatigue hit hard and then an appt , then another appt….

Then, just CRASH…

All the best intentions, gone.

Now, I’m slowly coming up for air and it’s like …. Wow, it’s been almost 2 weeks.

It’s so easy to lose time, and then when you’re ready to start again … you feel disappointed…

Starting over…
And over
And over


Here we go

Starting over

#Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression
#TraumaticBrainInjury #TBI
#AnkylosingSpondylitis #ADHD
#ChronicPain #
#Endometriosis #PMDD
#COVID19 #ChronicFatigue

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