Paroxysmal Hemicrania

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Woman experiencing a headache or migraine.

Woman experiencing a headache or migraine.

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June 20, 2022

26 Different Types of Headache and Migraine Disorders You Should Know About

People often assume all headaches are the same. However, people who live with headache or migraine disorders know all too well that this isn’t the case. In fact, there are actually over 20 types of headaches and migraines, and knowing which type you have can help you and your doctor determine what type(s) of treatment [...]

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January 23, 2019

Anyone have treatment ideas other than indomethacine and melatonin?

#ParoxysmalHemicrania Im pregnant and can’t use any of these

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January 23, 2019

Within Australia what support services did you find to help manage chronic health issues in pregnancy in which regular medication could not be used ? #Pregnancy #ChronicIllness ##chronicillnessinpregnancy ##chronicpaininpregnancy #Australia ##pregnancysupport #Pregnancysupportaustralia

I have chronic paroxysmal hemicrania with migraines and fibromyalgia. I was unable to continue the bulk of my medication and doctors have been scrambling to give me something to actually preserve my quality of life.
The data being used in recommending medication during pregnancy has a lot of holes that say something along the lines of insufficient records exist and this may or may not cause harm to the baby.
I have instead been somewhat left to my own devices to navigate symptomatic treatment which is not working.