Post-Concussion Syndrome

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Holistic Medicine - yay or nay?

What are your thoughts on holistic medicine?

Aside from fibro I struggle with migraines, chronic fatigue, hypermobility, etc. I went to a chiropractic/brain wellness/nutritionist/gut health doctor yesterday for a consultation (not covered by insurance of course). She validated my pain and experiences (rare with most doctors). Maybe she can help like she claims but I am hesitant with no guarantee and paying out of pocket. Has anyone tried something like this before? Is there any hope for relief?

#Fibromyalgia #Migraine #ChronicFatigue #PostconcussionSyndrome #PTSD #ChronicPain #HypermobilitySyndrome #Anxiety

7 reactions 6 comments

Broken Emotions

On November 8, 2015 when I was 14 years old, I sustained life changing injuries in the last minute of a soccer game. I dislocated 3 right ribs, my left sternoclavicular joint, and my left acromioclavicular joint. However, the worst of my injuries was a concussion. In a state of shock and with disrupted thoughts, I was left disoriented. I could not process or understand my detrimental injuries, so I continued with school and sports. Nine weeks later, I was diagnosed with a concussion, which soon developed into post concussion syndrome.

Post Concussion Syndrome (PCS) is classified as a mild Traumatic Brain Injury (mTBI). It is far from mild. I developed a vast amount of symptoms including, but not limited to: dizziness, insomnia, distorted vision, light sensitivity, noise sensitivity, touch sensitivity, information processing disorder, derealization, depersonalization, fatigue, short and long term memory issues, dysphasia, and celphagia. My symptoms caused my life and mind to unravel. My past, present, and future were in shambles. Unable to remember my past. Unable to live in and handle the present. And without a present, there is no future.

Celphalgia is head pain. I call it brainache. For five and a half years, it is always there. A haunting, debilitating pain that resides within my brain. Living with intense pain makes every breath a struggle to survive. I used to do five things: soccer, basketball, learning, reading, and spending time with my family. I wanted to be a geneticist. Now, I cannot do any of those things. I cannot be any of those things. I could not understand what I had lost. I still cannot. Your brain is everything, and mine is scrambled.

Who are you when your potential is stolen? When you cannot live your life? When you cannot remember your past or present? When you do not have enough words to think quietly and soundly to yourself? I certainly did not know. I did not even know the questions, much less the answers. I never understand the situation with words. However, I feel it with my emotions. Emotions are my only thought process, and they are a stranger to me. Words are crucial. They are how we understand the world and ourselves.

I was never an artistic person. The only art I did was the required courses in school. Despite this, in 2016 I undertook my first attempt to draw. I was unable to decipher my own life and emotions. I was brewing with feelings. Stirring with anguish. It was bubbling out with nowhere to go. No words to leave me. I took my pencil, put it to paper, and the Broken Girl was created. My art book, Broken Emotions, came to be because of this girl. She gave a voice to the agony, hopelessness, and hopefulness that I had no words for. I am still unable to understand what it all means, but through her, the turmoil inside me is now seen. It became known. My battles could be fought with her by my side. The pain I endured, she would understand. She is a reflection of whoever resonates with her emotions. She can be everyone, someone, or no one.

The Broken Girl is never completely whole. She is always missing part of her head and thoughts, although you cannot always tell. She hides it well, but she is broken. With her as my internal translator, I continue to fight to understand my thoughts, to survive the pain, to rebuild my life, and one day recover and heal my brain and body. I plan to steal back my potential and my brain. The Broken Girl is for those in pain — an expression of the shattered fragments of broken emotions.

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Me a few hours from now. 🤪😴🥱

Whenever I “nap” it’s usually at least 2-3 hrs. I don’t know how some people can take a 1/2 hr nap and be good. Once I get in bed & actually fall asleep, I’m there for hours! 😹🙌🏼 How bout you?

#Fibromyalgia #ChronicFatigue #CPTSD #PostconcussionSyndrome

70 reactions 13 comments
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The good ole days! 🥪

Needed a laugh today. 😸Well… every day actually. Feeling tired & unmotivated but hey, I took a bath so I accomplished something right?🙌🏼

#Fibromyalgia #ChronicFatigue #Anxiety #Migraine #IrritableBowelSyndromeIBS #PTSD #PostconcussionSyndrome #Depression

51 reactions 17 comments

Time gets away from you

About two weeks ago, I wanted to do a post a day, to get back into the feel of writing and processing and just dealing with this lovely process of living with a chronic illness.

Then, I had a bad Friday, and I long weekend, fatigue hit hard and then an appt , then another appt….

Then, just CRASH…

All the best intentions, gone.

Now, I’m slowly coming up for air and it’s like …. Wow, it’s been almost 2 weeks.

It’s so easy to lose time, and then when you’re ready to start again … you feel disappointed…

Starting over…
And over
And over


Here we go

Starting over

#Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression
#TraumaticBrainInjury #TBI
#AnkylosingSpondylitis #ADHD
#ChronicPain #
#Endometriosis #PMDD
#COVID19 #ChronicFatigue

5 reactions 2 comments


I'm thrilled! That's all!

I worked hard to navigate college and then graduate school with various disabilities, and somehow.... I did it! I am continuing to write a novel and now looking for a new job as I finish my mental health IOP !

#writer #Disability #ChronicIllness #MentalHealth #ComplexPosttraumaticStressDisorder #ObsessiveCompulsiveDisorder #Autism #ADHD #Dyscalculia #TicDisorders #EatingDisorders #PolycysticOvarySyndrome #GenderDysphoria #Migraine #PostconcussionSyndrome #BipolarDisorder #BorderlinePersonalityDisorder #GeneralizedAnxietyDisorder #NonverbalLearningDisability #Trauma #DependentPersonalityDisorder #Recovery

108 reactions 25 comments

Thinking on Thursday… 🤔😄

I think I’m doing pretty good for the one post a day. I have almost made it a week. 😂✍️

This is progress.

I have a bunch of appts today, so I am preparing to be poked and prodded and make “nice conversation” 😂😂

It’s not the best day though, fatigue is high and I would really rather be in bed, because every moment will be a tiny mountain I have to climb.

Dealing with one chronic illness is frustrating enough, but when they start to combine on any given day, that’s when your body becomes your own personal torture chamber.

Today, it’s joint pain plus the PMDD and the spine pain… and with the PMDD there is the endometriosis… and there is always the foundation of it all , the Asthma…

You have to take it all in, balance it and then try to present yourself to the world as


Life , right..🤔😂

I look forward to the adventure of today. 🥰

##Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression #TraumaticBrainInjury #TBI
#AnkylosingSpondylitis #ADHD #ChronicPain #Endometriosis #PMDD #COVID19 #ChronicFatigue #DiabetesType2

2 reactions 3 comments

Well, Wednesday ✍️🤔

“What do you do all day?”

I’m a little late but I’m holding strong with my post a day …

Fatigue is definitely hitting hard today… I’m still hoping to be a little productive…

An old friend asked me that question, and I answered her once, I told her it depends on the day.

But, then she was like but I’m just wondering how do you spend your days….

That question has been haunting me like the ghost of a life gone past…

Because as a severe asthmatic just coming out of two months of dealing with the side effects of having CoVid….


is really , surviving… struggling to hold on to the little bit of breath and life that you have…

Laying in bed and distracting yourself from the pain and the struggle of breathing and pain…. Is fighting for your life….

“Be still”

is really being a warrior, holding on to all the Hope you have left and get your “One more day”


… when so many things are broken inside of you that taking a full shower without struggling to breathe or stand up straight is cause for celebration..


When you’re used to multitasking, and being in charged of a business or people and getting things done… When you’re use to creating things that did not exist before your mind said, “Let there be, and it was…”


Does not feel like an acceptable answer…

It is a text message still left on “Read”, the tiny bubbles keep showing up and disappearing…

I’m still looking for the right answer to that question… ✍️✍️

#Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression #TraumaticBrainInjury #TBI #PostconcussionSyndrome #AnkylosingSpondylitis #ADHD #ChronicPain #Endometriosis #PMDD #COVID19 #ChronicFatigue #DiabetesType2

22 reactions 4 comments

Fatigue and pain won

I had plans.

I had great intentions. I got started and just getting dressed was painful but I was going to push through… but the fatigue won.

Sometimes it’s hard not to be disappointed in yourself for not being able to complete simple things.

I mean overall pain is not simple, and heavy fatigue is not simple but when it’s chronic you think to yourself, you can get used to it and push through it.

It’s a control factor, you’re sure you have some control… It’s crazy sometimes to realize it’s not always a matter of will…. You can’t just “Will yourself through” sometimes your body wins …


You try again tomorrow….

And that’s ok…

#Asthma #Arthritis #ChronicIlless #Jointpain #ChronicDepression #TraumaticBrainInjury #PostconcussionSyndrome #AnkylosingSpondylitis #ADHD #ChronicPain #Endometriosis

12 reactions 5 comments
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Exercise W/O Punishment, Really??? #ConqureYourMind #Guilt #free #Anxiety #free

It was pitch black in my room at 4:45AM. I was wide awake reminiscing about my work schedule before being placed on medical leave. By 4:00AM, I would typically be outside walking and then cycling, for HOURS. So, this morning, after being on medical leave for nearly six months, as normal, my body was ready for action. But a new concept for me, self-compassion, interrupted my anxious mind.

As I sat on my bed deciding what to wear in the below freezing temperatures, I figured I will make myself walk some hills for early morning exercise. But a soft thought entered my mind: Why? Well, I pondered, because…? I…I really…don’t…know.

Typically, I motivate myself to do early morning outdoor exercise as a punishment for some THING. Let’s see, I must have sat still too long yesterday; even my watch tells me “it’s time to move!” I must have ate more than I should have, yesterday; but today’s a new day. I’m too fat due to this unexpectedly longgggg medical leave, which is actually allowing my brain to heal. Or some other reason that qualifies as some type of punishment against myself. Why! Oh, because I am convinced SOMETHING is wrong with me!

But this morning, I prayed. And I then thought, “What would you really like to do?” The self-compassion definition floated through my mind, and I thought, “Man, this cold cloudy almost snowy morning, I would LOVE to stay in bed.” And guess what???

I opened my eyes and the sky was bright. I slowly looked at my clock, it was 8:00AM on a Sunday. I was well rested. And before I knew it, with excitement, I was on my (now) stationary Specialized Sirrius bike cycling in my bedroom. I can no longer cycle the city streets due to the many concussions I have sustained from “bike-car” collisions. But as I cycled and listened, and watched, an Inspector Lynley episode, I realized I was exercising with JOY simply for the fun of exercising! Wow!!! It was then that I thought of sharing this experience with you, #TheMighty !!!

This site is helping me learn new skills. And exercising w/o punishment is DEFINITELY a new self-compassionate way of living for this #ComplexPosttraumaticStressDisorder #ADHD #TBI #PTSD #PostconcussionSyndrome #Anxiety , and #Guilt laden survivor!!!

22 reactions 5 comments