silverliningspoonie

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Finding the silver lining... even when it’s hard

First- my story is posted to the mighty! If you or anyone you know has had struggles with chronic illness, I think it would make a good read.
Second- I’m getting my hair dyed today! You’ll never guess what color it is! (Spoiler alert: I’m going back to pink!) I’m currently sitting with a bunch of tinfoils on my head waiting for the bleach to process.

I share this because it’s a good reminder, even to myself, that there can be silver linings to bad situations, even if it can be hard to find. My eye surgery isn’t happening tomorrow, and that now has graduation and prom plans dangling in the air. I’m choosing not to dwell on it, because I have no control over the situation. All I can do is focus on those silver linings, and get through as best I can.

#RareDisease #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Silverlining #silverliningspoonie #pinkhairdontcare #mightystory #CheckInWithMe

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Sleep and sleep

So I'm back in bed after getting my first post surgery check and I'm exhausted. fatigue from fibro and the surgery combined means I'm out of it most of the time and barely with it the rest. It's frustrating and heavy on my conscience that I'm not able to be with my little ones and that the sleep I'm getting isnt restorative, so when I get back up none of the rest will have helped. I'm always at square one. 2 more weeks and then we see again if this resting has done its job. trying to see the silver linings, because they're always there. #Fibromyalgia #frustration #Fatigue #Sleep #silverliningspoonie

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It’s the little things, everyone

There is only one feeling better than removing a bra at the end of the day and that is taking off your compression  garments. #NeurocardiogenicSyncope #PosturalOrthostaticTachycardiaSyndrome #Syncope #silverliningspoonie

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