Recently I’ve been really overexerting myself. I know I shouldn’t be pushing myself to the absolute limit but if has been necessary.
After I sit and recover I have started trembling. Like full body shaking. I haven’t noticed this before. Does anyone know why this is happening? Does it happens to you?
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The floor is calling...and I must go....
#PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Dysautonomia #ChronicIllness #AutonomicDysfunction #Syncope #OrthostaticHypotension
14 reactions 
What POTS symptoms do you experience? Share your experience in the comments.
Prevalence of POTS symptoms:
Lightheadedness (99%)
Tachycardia (97%)
Presyncope (94%)
Headache (94%)
Difficulty concentrating (94%)
Nausea (90%)
Shortness of breath (88%)
Palpitations (87%)
Memory problems (87%)
Muscle pains (84%)
Foot coldness (84%)
Stomach pains (83%)
Muscle weakness (83%)
Hand coldness (82%)
Chest pain (79%)
Bloating (79%)
Tremulousness (78%)
Hand tingling (76%)
Blurred vision (75%)
Low blood pressure (71%)
Constipation (71%)
Diarrhea (69%)
Skin flushing (69%)
Frequent urination (68%)
Foot tingling (67%)
Dry mouth (66%)
Hand numbness (65%)
Dry eyes (60%)
Foot numbness (58%)
Syncope (36%)
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Hi, my name is DesertGal. I'm here because I'm looking for answers for my syncope problems. I've had this for four years and its becoming more frequent lately. I am not someone who believes in taking medications chronically so I try to handle it by natural means. I haven't actually fainted for the past three years but found the best thing to bring me out of it when I did was Adrenal Tonic by Standard Process. I make sure to drink salt water (celtic sea salt) and I also use Stamina paks by Trace Minerals to balance electrolytes. Licorice (the herb) will keep BP from dropping. I walk daily and try to stay away from processed foods and too much sugar as carbs can bring on an episode. Looking forward to hear what other people might be doing. I have watched lots of videos about this and have learned much from them. I am now about to try craniosacral therapy to see if that will help. I do see a chiropractor regularly as well. #MightyTogether
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My name is Dan. I am here just checking things out. Found The Mighty while searching for info on vasovagal disorder. I have had to syncope incidents in the past year. Not pleasant at all, smashed my head a couple times. Also, I have kidney disease and severe hearing loss as a result of Alport Syndrome.
I'm so jazzed! I've had so much fun making memes during this adventure, and I'm so glad I get to share them!
Here's the link!
themighty.com/topic/postural-orthostatic-tachycardia-syndrom...
#PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #AutonomicDysfunction #LivingWithPOTS #POTS #OrthostaticHypotension #ChronicIllness #Syncope #laughsoyoudontcry
8 reactions Hello there! I'm new to The Mighty and I'm wondering if anyone in a similar situation has a service dog. I've had migraines for many years and was diagnosed with vasovagal syncope about a year and a halg ago, but I was jsut diagnosed with neurocardiogenic syncope and POTS more recently.
I'm interested in having a service dog, but I'm wondering if anything with similar diagnoses has one.
Please let me know how you went about this and what I should know.
Thank you so much in advance
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5 comments
Hi there! I'm new to The Mighty and I'm wondering if anyone in a similar situation has a service dog. I've had migraines for many years and was diagnosed with vasovagal syncope about a year and a halg ago, but I was jsut diagnosed with neurocardiogenic syncope and POTS more recently.
I'm interested in having a service dog, but I'm wondering if anything with similar diagnoses has one.
Please let me know how you went about this and what I should know.
Thank you so much in advance
1 reaction •
2 comments
Hi there! I'm new to The Mighty and I'm wondering if anyone in a similar situation has a service dog. I've had migraines for many years and was diagnosed with vasovagal syncope about a year and a halg ago, but I was jsut diagnosed with neurocardiogenic syncope and POTS more recently.
I'm interested in having a service dog, but I'm wondering if anything with similar diagnoses has one.
Please let me know how you went about this and what I should know.
Thank you so much in advance
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3 comments
Life Goals
Everybody has a game plan for their life. Some people plan to go to college and get a degree. Some are adamant they will carry on the family business. As a child, you may remember thinking you wanted to be an astronaut or a ballerina. For me, I have always had big goals for my life. I was certain that I would go to college, finish with honors, and become a teacher. I had not considered that sometimes goals cannot become reality.
After graduating high school, I was starting college and working full time in a local factory. I could work all day, and still have plenty of energy to spend time with friends and go out. My friends and I would go out hiking on the weekends, and drive around for the fun of it. I was still on track for my dream of being a teacher, and felt like nothing could stop me.
When Everything Goes Wrong
After a few months of feeling great and doing essentially everything I wanted to do, I started to develop some non-specific symptoms. I had a headache and was tired all the time. My doctors were determined to figure out what was wrong. I made every life change possible, tried each medication that was suggested, and underwent countless tests. Meanwhile, the pain was increasing and I was so exhausted I could hardly get out of bed in the morning.
Now, several years later, I am still in pain daily. I have a laundry list of diagnoses and still no clear reason for what is causing my chronic illness. Whereas I was once able to go anywhere and do whatever I wanted, now I am limited. I can no longer drive, and have to plan every day around my pain levels. I cannot go out and work a regular 9-5 position as I would like to do. There have been many times when thinking about everything that I’ve lost, that my mental health suffered and I wasn’t sure where to go next. So, what do you do when your life goals change?
Ways to Cope
### There are a few ways I have learned to deal with my chronic illness and mental health struggles throughout the years. First, look for what you can still do. While I was not able to finish college and become a teacher, I am still able to share my knowledge with others and teach through my platform. I can support my community and volunteer. I am able to make money and support my family.
Second, focus on your strengths. I have the ability to write. I have an innate ability to look at words and piece them together in a unique way. Proofreading and finding errors comes naturally to me as well. I thrive on listening to others in order to figure out their needs and how best to support them.
Third, focus on caring for yourself. While the mention of self care normally brings images of face masks, painting nails, and hot bubble baths, it encompasses so much more than that. You can support yourself by saying no when your pain levels are too high. You can keep a bottle with you and drink water so you stay hydrated. Sometimes, the best self care can be taking a nap and trying again tomorrow.
The last way I deal with my life goals changing is through leaning on my friends and family. Everyone needs a support system, a group of people you can go to when life gets hard and everything feels like too much. You can be the toughest person in the world, feel invincible, and yet still need your people. They will listen to your struggles, empathize, and help you plan for the future. In return, you can support them in the same way. The empowerment this gives is unmatched.
Though life goals can change and frequently do, it doesn’t have to be the end of the world. By accepting your limitations, and making adjustments for your health, you can survive and even thrive. When times are tough, slow down and focus on how you can best care for yourself. Look at what you can still do, and do it to the best of your ability. Lastly, lean on your friends and family. Together, you can get through anything.
#ChronicIllness #alliewritescreatively #ChronicPain #Syncope #Migraine #OrthostaticHypotension #OpticNerveHypoplasia #howtocope #Acceptance #whenlifegoalschange #Disability #ChronicDailyHeadache #chronicmigraine #Writing #writingastherapy #selfcare
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