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Emma
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@emmavsiih
RareDisease 2y
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Finding the silver lining... even when it’s hard

First- my story is posted to the mighty! If you or anyone you know has had struggles with chronic illness, I think it would make a good read.
Second- I’m getting my hair dyed today! You’ll never guess what color it is! (Spoiler alert: I’m going back to pink!) I’m currently sitting with a bunch of tinfoils on my head waiting for the bleach to process.

I share this because it’s a good reminder, even to myself, that there can be silver linings to bad situations, even if it can be hard to find. My eye surgery isn’t happening tomorrow, and that now has graduation and prom plans dangling in the air. I’m choosing not to dwell on it, because I have no control over the situation. All I can do is focus on those silver linings, and get through as best I can.

#RareDisease #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Silverlining #silverliningspoonie #pinkhairdontcare #mightystory #CheckInWithMe

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Seikatsu Askew
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@seikatsuaskew
Anxiety 4y

I want to share my story... #TheMighty #mightystory

.... but it's an epic and I think this is somewhere in the middle. It better be Dammit! I'm Riding into battle on my zebra, and I've heard in numbers we are a bold dazzle.

Today I battled Lawyers and Brain fog, burning zappy spine of Painful-hey-you-stop-moving!!!, SSI, SS/D, catching a pivotal error in my application, apologizing lawyers (not to them but them to you), Fatigue, Pain so much Pain, must.do.more. still.not.enough.to.equal.progress AND Stop! I have to Stop. I've fought today. Thats enough. I know I can do this, I just need more Spoons.

**(And after it all I'm going to restate it all in graphic detail to best friend who it battling a migraine with two children that mind as well be mowgli and tiny merrida! And we will feel sane for a bit. )
#Anxiety #ChronicIllness #EhlersDanlosSyndrome
#Undiagnosed #ChronicPain #Neuropathy #Allodynia #dislocationsubluxationday #Migraines #progress #DepressionAndMentalHealth
#MentalHealth #Zebras #Hypermobility #oww ! #SpoonTheory #Outofspoons

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Super Contributor
Dr. Liz Nissim- Matheis
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@drliz-matheis
5y

#mightystory #DailyReminder #Anxiety #Parenting

Parenting as an anxious parent means that your child's struggles can trigger your own anxiety. Feeling fearful that you won't be able to help. Feeling out of control because your child is hurting. Feeling scared because you felt their fear and worry at their age - your own insecurities and memories become triggered.

As an anxious parent, I am trying to stay aware of why my children's anxieties are triggering my own. Most of the time, it has to do with the fact that I don't want them to struggle the same way I did. I want to shield them from that hurt. It's my parental instinct and it's okay. But it's also my job to help them work through it and learn ways to handle a situation. I'll coach and I'll hug and I'll wipe the tears. In fact, I may have a few of my own tears because I remember the rawness of that hurt like it was yesterday. But validating their experiences will help them to know it's normal and okay to feel hurt and sad, and they can process the situation differently or come up with other ways to handle it.

It will all be okay. I promise.

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