tonic clonic seizures

In honor of 💜 Purple Day for Epilepsy Awareness 💜 tomorrow, we'd love for you to share what it's like for you to live with a seizure disorder. What do you wish others knew?

Warm Reminder:
Your voice, feelings and experiences matter 💜. You are a valued Mighty warrior.

#Epilepsy #SeizureDisorder #GrandMalSeizures #TonicClonicSeizures
#ChronicIllness #Disability

Like other invisible conditions, epilepsy has a substantial impact on the people who live with it. That impact is also felt by the people who are parents or caregivers for those who have epilepsy too.

What’s your epilepsy story? When were you or your loved one diagnosed? How does it affect your daily life?

P.S. A warm Mighty welcome to our new group! We’re excited to meet you. 🧠

#Epilepsy #SeizureDisorder #GrandMalSeizures #TonicClonicSeizures #ChronicIllness #RareDisease #Disability #Parenting #Caregiving

I don't have my seizures quite under control, so of course I can't drive. I'm going to be getting my own place soon, though, and I'm interested in any tips on living alone with seizures? I have Partial Complex seizures coming from the temporal lobe, generalized tonic-clonic seizures, and psychogenic non-epileptic seizures. I see my new nuerologist next month, but will most likely be living on my own before then.
#Epilepsy
#SeizureDisorder #Seizures #complexpartialseizures #TemporalLobeEpilepsy #TonicClonicSeizures #PsychogenicNonepilepticSeizures

What an adorable photo. Two exchange students and their little host brother and sister at a Quinceañera. No one knew that the the next day, that little girl in front would spend her day in the emergency room.

I just wanted to play a computer game; apparently that was too much to ask for an 11 year old. Looking back now it was a seizure triggered by the lights and graphics in the game. But October 28, 2007 was an agonizing day for my mother. I imagine nurses have hard days like anyone would. But a nurse watching their child convulse, make choking sounds, and roll their eyes back into their skull. That would frighten anyone to tears. If you've ever seen someone have a convulsive seizure, it can be pretty terrifying; even if you've seen them before. I'm not talking about the ones on TV where they dramatically fall off of something and someone pins them down so they "don't hurt themself". I'm talking about a friend, family member, or peer has collapsed and you are right there with them. My seizures have frightened off potential friends, my dancing partner at senior prom, my dorm mates, and just the thought of them scares people from hanging out with me. But after 12 years, I know those people were never supposed to stay in my life.

I only have a handful of friends. Not friends like we get along and occasionally hang out, friends like we remember each others birthdays and mi casa es su casa. Those friends are the ones I can count on to know what to do. They know their basic seizure first aid and that's all I can ask of them. I work in an environment where my peers are eager to learn. I live with my sister and she drives me to my epileptologist. The key to this stage of my life is being surrounded by a good support network. People who are willing to accept me, not be scared, and people who will let me practically preach epilepsy 101.

I know my triggers, my body, my seizures, and my pills. Epilepsy has been my constant companion for half of my life and we still haven't found just the right concoction of things to stop the seizures for even 20 hours. Now that Jeavon's Syndrome and Depression/Anxiety have officially joined the crew, I'm ready to be the biggest advocate ever and bring people on my journey! #TonicClonicSeizures #GrandMalSeizures #Depression #Anxiety #JeavonsSyndrome

My Neurologist calls me a mystery because I have no auras like others with epilepsy have and these seizures strike me out of no where I’m on meds for my Tonic clinic seizure but now I’m having absent seizures once in awhile.. I’m 3 years free but recently I had a absent seizure I still get concerned about having them and my doctor is not sure what causes them and I get no auras.. but I’m looking if anyone has used the empatica watch thing and if it has helped any of you! I’d love to hear all your stories aswell! Thank you! #Epilepsy #AbsenceSeizures #TonicClonicSeizures