Transverse Myelitis

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    Unstoppable Courage: Our Battle With Chronic Pain

    The most amazing thing I see in myself and others with chronic pain like CRPS is our courage to do all we do, knowing the firestorm of relentless pain and suffering that awaits us day in and day out.

    Yet, we still get up every morning, tip our cap to the hellish pain and despair that awaits, and accomplish all we can; we put on a brave face and struggle with a smile everywhere we go. We still ask ourselves if going out tonight is worth the few days it will take to recover. But to feel normal, if only for one night, is worth the price of admission.

    While most are scared to fail, crippled by it even, we march on, failing hundreds of times for every accomplishment we can muster. Yet, here we are, continually beating ourselves up for all the things we can't/ failed to do and not patting ourselves on the back for the courage it takes to do what we do.

    Instead of seeing the beauty and scarcity that kind of courage requires, all we see is our inadequacy. So, we strive for perfection constantly in our lives, not because we want to be but because we feel like anything less is admitting we are flawed. Flawed by something we don't understand, flawed by something we didn't cause nor ask for, yet flawed non-less.

    We're tired of feeling inadequate, judged, doubted, and misunderstood; I know I am. And want to be seen for who we are and aspire to be, not what we suffer from.

    Although we can only acknowledge our true strength, endless courage, and untapped potential when we realize, accept, and move past the illusions we hold. There is a purpose in our pain; let's identify it and help one another realize its potential together.

    #ComplexRegionalPainSyndrome #Anxiety #RSD #PTSD #Anxiety #Depression #TransverseMyelitis #ChronicPain

    14 reactions 2 comments
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    Hi I'm new first time posting

    It's been really difficult, keeping a positive mindset through all of this. But I'm glad to find a place to talk about my journey. With others going through the same
    #TransverseMyelitis

    Post

    I’m new here!

    Hi, my name is corbin710. I'm here because if become a hermit and I really just want to get my life back.

    #MightyTogether #TransverseMyelitis

    2 comments
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    How many of you are first diagnosed with transverse myelitis and then a few years later they say you had it but now have myelopathy or stenosis etc?

    #TransverseMyelitis

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    My "caretaker"

    This is Booba, whose given name is Mera, but none of our babies, human or otherwise, ever get called by their actual names. She's the baby of our seven cats, and she's always right next to my wheels. She even likes to "help" me in the bathroom by licking my hair and pulling the washcloth off my face to make sure that I'm still there. She sleeps on my legs and, at times, on my head.

    It's funny what we all find comforting, isn't it? 😊

    #ChronicPain
    #Upallnight
    #TransverseMyelitis
    #FibroFog
    #MyalgicEncephalomyelitis

    6 comments
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    Epilepsy

    Yesterday I had an EEG and my neurologist called today, saying I have epilepsy. This just happened, so I don't know the cause of it.He put me on 250 MG Devalproex. I also have transverse myelitis and a couple of kinds of brain lesions. This is a whole new journey,

    7 comments
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    Anybody else have MS and Transverse Myelitis

    I was diagnosed with Transverse Myelitis in June 2004 and MS upon a relapse in January 2016. Just wondering if anyone else finds themselves in my particular illness boat.  All the best to every one of us
    #MultipleSclerosis

    1 comment
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    Fellow TM Warriors

    How is everyone doing with TM? I picked it up in June 2004 and have been fighting it like hell since then.  All the best to every one of us!
    #TransverseMyelitis

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    Hospital Life, Anyone else doing time for your condions?

    I am currently in the Hospital. Very lonely and bored! Anyone else? Looking for connections with people with similar conditions. Hospital or not.

    #Gastroparesis #EhlersDanlosSyndrome #Dysautonomia #TPN #Gtube #HospitalLife #TransverseMyelitis

    10 comments