Complex Regional Pain Syndrome

Create a new post for topic
Join the Conversation on
Complex Regional Pain Syndrome
17.4K people
0 stories
3.8K posts
About Complex Regional Pain Syndrome Show topic details
Explore Our Newsletters
What's New in Complex Regional Pain Syndrome
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Pain Anniversary

Here I am, finally, on The Mighty, and celebrating my 31st Pain Anniversary. Yes, you heard me. I am celebrating. It is bittersweet but it is my life. I live with CRPS, a chronic neurological pain disorder, a severe pain. Yet, I live.

I have watched The Mighty from the sidelines. Watched it grow and foster community and support for so many different types of Warriors. I have always been active on Facebook and Instagram. Last year I joined TikTok. But lately I have been on Substack sharing my thoughts and stories about living as a Chronic Warrior. I have begun writing a guest blog on The RSDSA website.
In my eagerness to keep helping our community I want to participate and hear from everyone. That’s what has lead me to joining The Mighty. To be a part of a community that is already doing great work.

How many of us celebrate our pain anniversaries? The thing that changed our lives? It is our personal awareness day. Within it is a cascade of emotions. Another cycle of grief while remembering that my life has purpose and meaning. Bittersweet as I have gained so much while balancing a life with pain.

This Chronic Warrior just wanted to introduce herself to The Mighty community. Thank you for taking the time to read my introduction!

Post

I'm new here!

Hi, my name is JuniperGal. I'm here because I need help. Mentally Physically Spiritually. Been in pain since I was 12. I've been through 22 surgeries, body casting at age 2 for 2 1/2 years the first time. 2nd time age 24 for a year & again at 26 for a year. Then metal brace for a year. First operation was a triple osteotomy of left pelvic area. After a year they realized it was nonunion. Revision of osteotomy. Then 9 dislocations of a hip and 2 of the shoulder. Years of chronic systemic metal ion poisoning. Then came the spine- Compression fracture of vertibre by just putting jeans on. Fell and broke my right shoulder. Fell again, 4 more vertibre compression fractures. Then a failed spinal fusion. Haven't walked since. At age 24 the pain Dr at Rush diagnosed me with Reflex Sympathetic Distrophy of left leg (now called complex regional pain syndrome). My most recent ER visit for falling flat on my back & hitting my head pretty hard. Was a joke. I also lost ability to move left foot (foot drop). They said my muscles were weak and I wasn't an emergency. My constant migraine was just a headache. No x-rays, CT scan, MRI, nothing I was told to call someone to drive me home. Second and third ER visit (my PCP told me to keep going back) accused of being in opioid withdrawal, searching for pain meds. My doctor said to try going to a different hospital ER. 8 hours later, dismissed as usual. FINAL visit; a doc recognized that I had a massive concussion and admitted me for more testing! A couple days later the doctor came in kinda laughing states "Well you're right, there's something wrong and boy your husband is going to be pissed.) " You had a stroke. Would I mind being discharged to a rehab facility. They also said I had sepsis, a hole in my heart, pneumonia, that the constant migraine, and hallucinations should get better soon. At discharge the lovely nurse decides I don't really need to go to rehab. What an idiot. So that brings us to the present 4 months of laying in bed (can't have any pressure on my pelvis)loss of all muscle 💪. Some tendons & ligaments have turned to bone like material.
Stay tuned in for Part 2. *. Fighting for my meds!

#MightyTogether #Depression #PTSD #EatingDisorder

Most common user reactionsMost common user reactionsMost common user reactions 7 reactions 3 comments
Post

I'm new here!

Hi, my name (username) is Ikea. I'm here because as a Mental Health Coach specializing in Addiction, Substance Use, Recovery Coaching, and Grief Coaching, as well as Coaching for clients who are dealing with End-of-Life or Hospice Care and Chronic Illness, I think The Mighty will be a helpful resource to learn about different topics. Originally, I came here because I wanted to read about a blog on CRPS but found the website to be much more than what I thought it was going to be about.

#MightyTogether #BipolarDisorder #Fibromyalgia #Grief #PTSD #Migraine #Depression #Anxiety

Most common user reactionsMost common user reactionsMost common user reactions 6 reactions 3 comments