Upallnight

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day is still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You are the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Upallnight #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts

If I told you I see the beauty in you, Would you begin to see it too?

Please feel free to comment!

Proof the hurricane was very very bad but not so bad that we gave up.

It was absolutely scary but soooooo blessed to have a house, candles, water, food, and that our power was turned on 2 days before we had estimated. Hallelujah for that my friends!!!

And I kept Rosie close so we would both stay safe if not melted from the insane heat in our area and with extra humidity. Yuck!

Just suck in some air but try not to choke as humidity tries to drown you 😅

I prayed and pray still that all of you can quickly get any help you need.

The best thing EVER was being able to cancel appointments from this week- whoop whooop!!! 🥳🤭

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #Eczema #Upallnight #gallstones #MightyPets #WakingNightmares #Sleepwalking #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

Seeing that big grin on her face even as she sleeps makes my whole soul happy 😊

Knowing I can't have children makes my fur children ever more dear.

So many blessings in looking for the light behind the clouds.

I gave her a nickname of Pill because she is what my doctors should have ordered! 🤣

It still makes me laugh when I think of the reason of her nickname. She is also sassy so sometimes she is a pill 😂

When life is hard, humour helps you laugh away that stress and fear!

Rosie always tries to make me laugh so we have a Lot of games that only us two get.

I am very blessed to have this sweet darling by my side 24/7!
We have each other's back and it is a priceless friendship to get to enjoy 💕💖💕💖✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyPets #MightyTogether #Migraine #Upallnight #IfYouFeelHopeless #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #Sleepwalking #sciatica #ShinSplints #WakingNightmares

I hope to have this as my life motto 💖💕💖💕

#Arthritis #AmplifiedMusculoskeletalPainSyndrome #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #CheerMeOn #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Hypersomnia #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #MentalHealth #MightyPets #MightyTogether #Migraine #MemoryLoss #Upallnight

I just had never gotten around to watching it though I did watch one and two of The Hobbit movies. I really like the actors in that one!

This Lord's of the Rings TV show is set centuries before the first Lord of the Rings movies. 8 episodes per season and currently season two just released the first four episodes!

I have always been a HUGE fan of fantasy books and movies. Especially when there are a bunch of types of creatures. And even better if there is magic and a lot of action scenes!!

This series is SO GOOD for the first time ever I am planning on watching all the movies and episodes and might just be a HUGE fan of Lord of the Rings 💍 💖❤️💖❤️💖

I like it better than the Harry Potter series!!!! 😱😱😱

Which one is your favorite?

It always bothered me that Harry Potter and his friends were able to take down Voldemort even though he had been alive learning all sorts of magic decades before them. Though I really love the characters and by the end most of the characters have done selfless acts that warm the soul💕💕💕

Plus Lord of the Rings has epic music and incredibly wise lessons.

Do you have a favorite movie in either series? Have you seen the new TV series called the Rings of Power? Did you like it or love it?

Talk about an incredible imagination!! Some authors are just awe-inspiring with what they come up with.

Incredible!!!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #AnkylosingSpondylitis #Eczema #bedbound #BoneSplints #ComplexRegionalPainSyndrome #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

Being woken up by scratches is Rosie's favorite!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #Upallnight #IfYouFeelHopeless #MentalHealth #musclespasms #MultipleAutoimmuneSyndrome #MemoryLoss #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

So many adults being mean or cruel because they didn't realize how serious my pain is and was.

Life has been so hard as I have worked hard to stand up for myself because no one else would.

I have struggled with being angry that my parents ever brought me into this existence where every bad health condition on both sides of my family combined in me to maximize misery. Only recently did we learn that at 17 I had arthritis and still do. Genes and environment have worked cruelly together to bring about as many health issues as possible.

Having SO MANY health problems and things to deal with into the hundreds of symptoms has made it so I have had to work incredibly hard to keep wanting to live.

Today my mom said: Can I just tell you how sorry I am you have the body you do?

Suddenly it was like a balm was put on my soul and I had incredible relief after suffering so much these past years.

Vindication is something I crave after all these years of being overlooked and misjudged and so misunderstood.

Today is a good day Mighty friends ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttacks #PanicAttack #Psychosis #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #IfYouFeelHopeless #Upallnight #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

When we first got her I would hide and she would come find me based on my whistling or calling her name. One time I jumped out and yelled 'Boo!!!!'

She raced right up to me no hesitation! Now it is fun to yell boo when I want her to come up to me 😅😍

She is the Best pup!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #AnkylosingSpondylitis #BoneSplints #Upallnight #IfYouFeelHopeless #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyPets #MightyTogether #MemoryLoss #Migraine #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts #RareDisease #RheumatoidArthritis #sciatica