Wegener's Disease

In seven years, I have had 10 separate airway surgeries to treat my #WegenersDisease. The last 3 were in  #2019 alone - January, July and November.

Since November, I've had two airway steroid injections. The last one was in February.

My 3rd injection was canceled due to #COVID19. I'm now scheduled for May.

But quite frankly, it's too late. I can't breathe again. I need surgery again.

#COVID19scares the crap out of me. My anxiety about it grows each and every day. If I end up on a #Ventilator , I'll never come off. This disease will kill me.