accessibilityneeds

Having a very bad day. Hormones aren't helping. Had the worst customer service experience with the phone company today. Should've been a simple thing. The ignorance, lack of training, and now difficulty filing a complaint due to the extreme ableism of this company is making me almost want to go nuclear!!! Narrowly avoided a meltdown while in the store today due to denial of my support person, frustration at the ignorance, lack of comprehension of a simple concept ( I know I was communicating clearly. I've had much practice learning the difference over the years.) and clear lack of training of the person I was dealing with, and the person he called at headquarters or wherever, and sensory overload just about did me in!!! Especially when several other customers were all talking elsewhere in the store, and it was echoing!! The lighting wasn't great either, though I don't think it was fluorescent at least.

I was sooo tempted to go get mom and get her to trade places with me! She was in the car since they wouldn't let her in. I couldn't figure out how to make it work though. Thought it might only make things worse.

Thankfully I had put some silly putty in my belt pouch the other day after a different bad day recently. It helped some. Still almost had to dig out earplugs and sunglasses! If my hands were free I probably would've but I had my phone and accessories (landline) in a bag in my other hand.

Without 20+ years of active management of this sort of thing ( many at University) and much help from autistic friends, on practical suggestions, there would've been much more than just signs of agitation and exasperation and frustration for everybody to see!!!

Now to try to get back to writing my complaint. (In a real email, to be cut and pasted into their form once I have sorted it all out and cleaned it up! Because they don't respect people with communication difficulties and language organization an output and processing issues!) #Autism #AutismAdvocacy #Ableism #Meltdowns #SensoryOverload #accessibilityneeds #Accessibility #accessdenied #CommunicationDevices #CommunicationDisorders

November was a month of small accomplishments.

I...
1.) reinstated my state insurance (medicaid)
2.) got my food share reinstated, too.
3.) began the process of applying for SSI/SSDI
4.) started going to the gym to swim, walk on the treadmill, and ride the stationary cycles.
5.) decided to go back to therapy.
6.) became more honest with EVERYONE about my disabilities and chronic illnesses. started writing about spoonie life and how to navigate my “new normal”
7.) am currently preparing the launch of my YouTube channel about my life, disabilities, chronic illnesses, the ableism of our world, and survival. it’s basically just a vlog channel but I’m excited.
8.) started eating healthier (admittedly I did not keep up with the healthy eating this weekend. shrug.)
9.) talked openly with my partner about what my accessibility needs are in our house, in our sex life, and in our intimate emotional life. We had a good, honest, mutual chat.
10.) I SURVIVED ANOTHER MONTH IN AN ABLEIST WORLD RUN BY LATE-STAGE CAPITALISM AND GREED! #monthlycheckin #Fibromyalgia #MyalgicEncephalomyelitis #MyofascialPainSyndrome #DegenerativeDiscDisease #BipolarDepression #Anxiety #Ableism #Capitalism #survival #selfcare #successes #accessibilityneeds #Youtube #vlogs #CripplePunk

Very bad day #Ableism

end of the month check-in #endofthemonthcheckin

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