Communication Disorders

Join the Conversation on
Communication Disorders
2.1K people
0 stories
290 posts
  • About Communication Disorders
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in Communication Disorders
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Jade Wright

    10 Things Under $100 That Help With Functional Neurological Disorder

    Living with a disability can be expensive and aids such as wheelchairs or bathroom renovations can really break the bank to make life livable. Here are ten of the most useful tools and services I use to make my life with functional neurological disorder, sensory issues, and a disorder of the corpus callosum easier to cope with. 1. Spotify and Audible Subscriptions These might seem like obvious answers to this question, but when my body refuses to co-operate and my fine motor skills go out the window? Spotify and Audible have saved the day, grounded me, and distracted me from the tics and grunts that fill my days. As an added bonus, living in regional Australia means I have to travel for specialist appointments quite often and these apps are an excellent companion on those long drives to the nearest big city. 2. Earplugs (and learning how to put them in properly) Earplugs made of either silicone or foam have been a disabled girl EDC staple for me for a long time. Cheap and effective, these earplugs cushion the blow of loud, overwhelming spaces and make trips to the grocery store possible. An important note though is that proper insertion of earplugs makes a world of difference! Check out the short clip below from the National Institute on Deafness and Other Communication Disorders for a step-by-step guide to getting a proper seal with your earplugs. 3. Laminated Emergency Card This one is essential for giving me the confidence to go out in public knowing I will be taken care of during a pseudo-seizure — and it’s practically free! I have written out a short set of need-to-know facts on a business card for strangers to read if I am unable to communicate with them properly. I used some clear sticky tape to cover the card completely and make it more durable. You could also laminate the card. This item gets tucked in my phone wallet or on a lanyard with sunflowers on it (a common signal at airports internationally that a person has additional needs when traveling.) Now, when I leave the house I know that my day won’t end with an unnecessary hospital visit! 4. Medical ID Band In this same vein, a Medical ID band gives me the confidence to leave the house, knowing that in a true emergency, paramedics will understand my health conditions and treat me in the most effective way possible. This one is especially important. Mostly though I wear this band to assure myself that even if the worst case scenario really does come to pass, I have the best chance of surviving it. 5. Medication Container for Keyring I have PRN. That stands for Pro Re Nata which is some medical Latin for “take as needed medication.” As another self-assuring measure, I like to have these medications on me at all times while in the stress-inducing environment which is the outside world. So I found a small metal container with an O-ring seal that attaches to my house keys. This small item keeps my pills dry while also being conveniently unforgettable when combined with my house keys. 6. Stuffed Toy Heat Pack Weighted soft toys that double as reusable heat packs? Yes, please! These toys come in a variety of sizes and species (including unicorns!). snuggly and comforting as well as soothing for sore joints or aching innards. This is an upgrade from your favorite teddy that is well worth the investment. Add a few drops of essential oils to the microwaveable pouch and you’re got a scrumptious sensory experience! 7. Pop-Up Flower Cards One of the benefits of connecting with disabled friends is that you meet a lot of people who are going through the same struggles as you. However, this also might also mean more visits to those friends in hospital wards. I like to have a stack of cards that I can send or hand-deliver to flower-free wards that open up and become a vase of sunflowers or a jacaranda tree. This gift takes up next to no space in your drawer and can really make someone’s day while they’re stuck in the hospital. As an added benefit? You’ll make friends with the nurses too who will appreciate not having to go find a vase for you during hand-over! 8. Harmonica This is a bit of an odd one, especially since I can’t actually play the harmonica, but hear me out. If you struggle to “focus on your breath” to ground yourself and have found that you never really seem to get much comfort from deep breathing? Try getting an inexpensive harmonica. Since harmonicas make a sound both on the in breath and the out breath, it’s a sensory cue of how your breath is going. I try to pucker my lips to include two or three notes, and breathe as quietly and consistently as I can. This auditory cue really helped me to distinguish between fast, shallow breaths and deeper ones. You can even get harmonica necklaces for a portable reminder to pause and open your lungs every once in a while. 9. Webster-Paks or Pill Organizer I used to go to the cheapest, franchise pharmacy I could find and resigned myself to the judgmental looks from clerks and customers. Why does such a young person have so many medications? I bet she is selling them. How sad… and on and on. That was until I swapped to a family-owned pharmacy with the added benefit of Webster packs. Now, every month, the pharmacist portions out my medication into one convenient sheet. This is especially useful for the tiny pills when my fine motor skills are being tested by FND. Rather than popping out four, tiny tablets, I know to just press open the bubble labeled “BEDTIME” and we are off to the races. Another benefit of this system is if you have carers dispensing your medication, you need not worry about getting the wrong doses! The transition to your local, family pharmacy, despite the increased cost, is extremely worth it in my opinion. 10. Flowers for Someone Who Helps My mum is an unpaid carer for me. She is an absolute saint who makes my life liveable in a very real sense. For this reason, when I learned that Mum really appreciates fresh flowers in the home, they became a must-have item for keeping the peace. Keeping Mum happy and letting her know I appreciate everything she does for me through flowers is my small way of giving back to a woman who gives me so much.

    Community Voices

    10 items under $100 that changed my life with a disability #FunctionalNeurologicalDisorder #AgenesisOfTheCorpusCallosum

    Living with a disability can be an expensive and aids such as wheelchairs or bathroom renovations can really break the bank to make life more liveable. Here are ten of the most useful tools and services I use to make my life with Functional Neurological Disorder, sensory issues and a disorder of the corpus callosum easier to cope with.

    1. Spotify and Audible subscriptions


    These might seem like obvious answers to this question but when my body refuses to co-operate and my fine motor skills go out the window? These apps have saved the day, grounded me and distracted me from the tics and grunts that fill my days. As an added bonus, living in regional Australia means I have to travel for specialist appointments quite often and these apps are an excellent companion on those long drives to the nearest big city.

    2. earplugs (and learning how to put them in properly)


    Earplugs made of either silicone or of foam have been a disabled girl EDC staple for me for a long time. Cheap and effective, these ear plugs cushion the blow of loud, overwhelming spaces and make trips to the grocery store possible. An important note though is that proper insertion of earplugs makes a world of difference! Check out the short clip below from the National Institute On Deafness and Other Communication Disorders for a step-by-step guide to getting a proper seal with your earplugs.

    -
    3. Laminated Instruction cards


    This one is essential for giving me the confidence to go out in public knowing I will be taken care of during a pseudo-seizure- and it's practically free!

    I have written out a short set of need-to-know facts on a business card for strangers to read if I am unable to communicate with them properly. using some clear sticky tape to cover the card completely and make it more durable, This item gets tucked in my phone wallet or on a lanyard with sunflowers on it (a common signal at airports internationally that a person has additional needs when travelling.) Now, when I leave the house I know that my day won't end with an unnecessary hospital visit!

    4. Medical ID Band


    In this same vein, a Medical ID band gives me the confidence to leave the house, knowing that in a true emergency, paramedics will understand my conditions and treat me in the most effective way possible. This one is especially important.

    Mostly though I wear this band to assure myself that I even if the worst case scenario really does come to pass? I have the best chance of surviving it.

    5. medication container for keyring


    I have PRN. That stands for Pro Re Nata which is some medical latin for "take as needed medication". As another self-assuring measure I like to have them on me at all times while in the stress-inducing environment which is the outside world. So I found a small metal container with a O-ring seal that attaches to my house keys. This small item keeps my pills dry while also being conveniently unforgettable when combined with my house keys.

    6. stuffed toy heat pack


    A weighted soft toys that double as reusable heat packs? Yes, please! These toys come in a variety of sizes and species (Including unicorns!). They are snuggly and comforting as well as soothing for sore joints or aching innards. This is an upgrade from your favourite Teddy that is well worth the investment. An a few drops of essential oils to the microwaveable pouch and you're got a scrumptious sensory experience!

    7. pop-up flower cards


    One of the benefits of connecting with disabled friends is that you meet a lot of people who are going through the same struggles as you. However, this might also mean more visits to those friends in hospital wards. I like to have a stack of cards that I can send or hand-delivery to flower-free wards that open up and become a vase of sunflowers or a jacaranda tree. This gift takes up next to no space in your drawer and can really make someone's day while their stuck in hospital. As an added benefit? You'll make friends with the nurses too, who will appreciate not having to go find a vase for you during hand-over!

    8. harmonica
    This is a bit of an odd one, especially since I can't actually play harmonica; but hear me out. If you struggle to "focus on your breathe" to ground yourself and have found that you never really seem to get much comfort from deep breathing? Try getting an inexpensive harmonica. Since harmonicas make sound both on the in breath and the out breath, it's a sensory cue of how your breathing is going. I try to pucker my lips to include two or three notes then breathe as quietly and consistently as I can, for as long as I can. This auditory cue really helped me to distinguish between fast, shallow breaths and deeper ones. You can even get harmonica necklaces for a a portable reminder to pause and open your lungs every once in a while.

    9. Webster Packs
    I used to go to the cheapest, franchise pharmacy I could find and resigned myself to the judgemental looks from clerks and customers. Why does such a young person have so many medications? I bet she is selling them. How sad... and on and on. That was until I swapped to a family-owned pharmacy with the added benefit of Webster packs.

    Now, every month, the pharmacist portions out my medication into one convenient sheet. This is especially useful for the tiny pills when my fine motor skills are being tested by FND. Rather than popping out four, tiny tablets, I know just press open the bubble labelled "BEDTIME" and we are off to the races. Another benefit of this system is if you have carers dispensing your medication, you need not worry about getting the wrong doses! The transition to your local, family chemist, despite the increased cost is extremely worth it in my opinion.

    10. flowers for mum


    My mum is an unpaid carer for me. She is an absolute saint who makes my life liveable in a very real sense. For this reason, when I learnt that mum really appreciates fresh flowers in the home? It became a must-have item for keeping the peace in this house. keeping mum happy and letting her know I appreciate everything she does for me through flowers is my small way of giving back to a woman who gives me so much.

    Community Voices

    Why can't companies make commercials without deliberately insulting people?

    #Disability #Discrimination #Ableism #TV #CommunicationDisorders The problem of ableist and/or otherwise inappropriate tv commercials has been getting to me again lately. Some of them are blatantly offensive/rude ones, others are utterly inappropriate ones for the cultural and social messages socitey claims to want to promote in this day and age. Including about physical health!

    These days there are several of them that are getting to me. It seems like companies are incapable of making commercials without deliberately trying to insult part of the population. For example, the pistachios one, where they are making fun of the turtle for being "too sensitive", and then talking to him as if he is deaf or intellectually impaired. Or the "International Delights" one, where they insult people for liking their coffee with "only cream and sugar." By loudly proclaiming that "Boring!" As if there is a "right way", and a "wrong way" to drink coffee (and assuming one drinks it at all).

    I don't understand why in this day and age, when we are theoretically, as a society (or several of them, actually) trying to accept and embrace diversity, companies seem so opposed, or unable to make commercials without intentionally trying to insult other people! I'm sure it is possible to make the claim "our product is wonderful, and you need it" without saying "you're an idiot if you don't have/use it." !!!

    ... and then there are the ones that glorify inappropriate, even dangerous activities, such as multitasking during dangerous activities like mowing the lawn or parachuting, or etc. And what are they multitasking at? Shopping on Amazon!! Yes, I realize this is intended to be humorous, or at least I hope it is! But, at the same time, in this time and place so many of us in North America find ourselves, where so many people are apparently incapable of any kind of critical thinking, and accept whatever they are told, without applying common sense or fact-checking, it seems highly inappropriate to glorify shopping on a mobile device while doing activities that require one's full attention for safety, and basic self-preservation! Especially given how many people probably really do have ther faces glued to their phones for unimportant reasons when they need to have them focused on their external environment! (Say, when crossing a busy street, or walking on a sidewalk where there are other people who won't take kindly to being walked into!)

    Other, more recent examples come from Skip the Dishes, which are suggesting that people should order take out so that they can watch the Olympics, rather than cook homemade (likely much healthier!) food!! The deliberately insulting tone of voice used to say "soup" to identify the contents of a person's blender is apparent even to me, with my difficulty reading nonverbal communication!

    Deriding people who have learned to cook during the pandemic, and have decided they prefer real food seems like a poor message to be promoting.

    Community Voices

    Mental health, developmental health and criminal behaviors

    To say that mental health and neurodevelopmental disorders is not the cause for criminal behaviors is too broad.

    Short answer is that most mental health and neurodevelopmental disorders is not the cause for criminal behaviors, but long answer is that mental health and neurodevelopmental disorders is the cause for criminal behaviors, but it depends on what mental health and neurodevelopmental disorders we are talking about.

    The problem is that there are a lot of mental health and neurodevelopental disorders and each mental health and neurodevelopmental disorders are not the same to each other.

    Statistically, most people with mental health and neurodevelopmental disorders are more likely to be victims than being perpetrators. There are however small-subgroup of people with mental health and neurodevelopmental disorders that commit crimes.

    There are however some mental disorders that is related to criminal behaviors, it includes specific command hallucinations, specific delusions of paranoid and grandiose themes, and Erotomania, specific pathological jealousy , but criminal behaviors is more related to Distributive, Impulsive Control and Conduct Disorders, especially Antisocial Personality Disorder, Narcissistic Personality Disorder and specific Paraphilic Disorders. About Bipolar Disorder, criminal behaviors is more associated with Distributive, Impulsive Control and Conduct Disorders, and specific Paraphilic Disorders. Symptoms of Bipolar Disorder includes impulsively and risky behaviors.

    About Communication Disorders and Autism Spectrum Disorder, criminal behaviors in Communication Disorders and Autism Spectrum Disorder is mostly related to lack of social skills, not out of maliciousness or sadism.

    Statistically, most people with mental health and neurodevelopmental disorders are more likely to be victims than being perpetrators. There are however small-subgroup of people with mental health and neurodevelopmental disorders that commit crimes.

    There are however some mental disorders that is related to criminal behaviors, it includes specific command hallucinations, specific delusions of paranoid and grandiose themes, and Erotomania, specific pathological jealousy , but criminal behaviors is more related to Distributive, Impulsive Control and Conduct Disorders, especially Antisocial Personality Disorder, Narcissistic Personality Disorder and specific Paraphilic Disorders. About Bipolar Disorder, criminal behaviors is more associated with Distributive, Impulsive Control and Conduct Disorders, and specific Paraphilic Disorders. Symptoms of Bipolar Disorder includes impulsively and risky behaviors.

    About Communication Disorders and Autism Spectrum Disorder, criminal behaviors in Communication Disorders and Autism Spectrum Disorder is mostly related to lack of social skills, not out of maliciousness or sadism.

    12 people are talking about this
    Community Voices
    James Hayden

    Why Documenting Stuttering in Medical Records Is Important

    A couple of months ago I went for my yearly well visit. On my “after visit summary,” I noticed that stuttering was listed under the medical history section. If that had been on my previous after-visit summaries, then I never noticed it. At first, I found it interesting because I had never disclosed to my doctors that I’m a person who stutters (PWS). I’ve had the same medical team for a few years and they know I’m a PWS; however, I’ve never directly disclosed it to them. Yes, I sometimes wear stuttering-related t-shirts to my appointments, but I never said, “Hi, Dr. Smith. You probably know this, but I’m a person who stutters.” In fact, the only time I disclosed to a medical professional that I’m a PWS is to the paramedics that checked me out after I was involved in a hit and run (I was fine, my car wasn’t). There are a couple of reasons (or excuses) for why I never told my doctors that I’m a person who stutters. The first is that it’s obvious. I tend to not hide the fact that I’m a PWS and if you talk to me long enough, you’re going to figure it out. The bigger reason was most likely embarrassment. For the majority of my life, I didn’t want to acknowledge or own this part of myself to myself, so why would I acknowledge it to someone else? Over the past couple of years, I’ve gone from being embarrassed about this part of myself to now embracing this part of myself. With that said, I’ve never felt the need to re-introduce myself as a PWS to those who knew me when being a PWS was the last thing I wanted to disclose. Although younger me would disagree, I’m glad this fun fact about me is documented. In the event something happens to me, my doctors would expect me to stutter and not assume that something far worse is happening. This gives me peace knowing that tests and resources will be spent on those that need it and not me. It also further cements the trust I have in my medical team knowing that they will address what my real issues are and not my perceived issues. However, this isn’t the case for everyone. In a 2014 article by Dr. Lena Wen, we see what happens when a medical team is unfamiliar with stuttering. What was a simple block was treated as a heart attack. Time and resources were spent on someone who didn’t need them all because of a lack of knowledge of stuttering. So, what can we do to prevent the story Dr. Wen told from being told again? The first step is educating medical professionals about stuttering and other communication disorders. But in order to educate them, we need to have proper and factual information about the disorder. The Johns Hopkins definition of stuttering is the exact opposite of education. To say their definition of stuttering would be a problem is an understatement. Talking to others in both the medical community and the stuttering community, stuttering and how to interact with patients who stutter are rarely discussed. I think it’s important to have these discussions so people know what stuttering truly is and not what Johns Hopkins thinks it is. People who stutter and/or Speech Language Pathologists can speak to doctors, nurses, medical assistants, and other medical professionals. These presentations can be part of continuing education training or new employee orientation. If a live presentation doesn’t work, then a video presentation covering the same topics would suffice. Following these presentations, medical professionals will have the basic knowledge to identify a stuttering moment, even if the patient doesn’t want to identify with their stuttering moments. This basic knowledge is the key to differentiating a simple block from a heart attack or stroke. In a field where advancements are made on a regular basis, let’s advance how stuttering is understood and treated within the medical community. Let’s see it as just one part of the person and not a problem with the person.

    Community Voices

    Is anyone else bothered by the increase in ableist tv commercials?

    Lately, it seems that in spite of, or maybe because of society's focus on accepting diversity, there's been a surge in ableist tv commercials. The one that is bothering me most tonight, due to seeing it repeatedly during the Law & Order crossover event tonight, is the one by Rona. (Canadian hardware/construction/home renovation type company for those unfamiliar with them). It makes fun of people with communication disorders, especially word finding difficulties or aphasia. It fails to acknowledge that some people are trying the best they can to communicate, but may not be able to pull the right word(s) out, or be specific with what they say because of these (or other) difficulties. It mocks people who can't properly name objects, and try with other words, even though professionals actually suggest trying other words that you can think of when you can't find the right word!
    #CommunicationDisorders #Disability #Ableism #Discrimination #TV #Trauma #Autism #Aphasia

    12 people are talking about this
    Community Voices

    World Voice Day post #WVD

    <p>World Voice Day post <a class="tm-topic-link ugc-topic" title="WVD" href="/topic/wvd/" data-id="607a544206126400fa9b851b" data-name="WVD" aria-label="hashtag WVD">#WVD</a> </p>
    2 people are talking about this
    Community Voices

    Language proccessing is so exhausting!

    #CommunicationDisorders #Disability #InvisibleDisability #LanguageDisorder #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder just needed to vent at how complicated and exhausting, and diificult language processing is! After a handfull of years of low stress and minimal demands on me from the world, where I got lulled into believing I could rely on my brain and body to mostly cooperate whenever I asked them to do stuff, (for the first time in my life) life has started to remind me otherwise! Today it was watching part of an online comiccon-type thing. Yes I figured out how to turn on the captioning, and even fix the size when it suddenly shrank to infestesimal. But OMG! People, when you are authors or publishers giving panel talks, a little pre-preparation and language organization are called for! Even skipping around to only the important parts, and muting half of what I did listen to, wore me put so much that I needed to lay down in the dark and turn my music on for an hour before I could do anything else today!!! The fact that almost everyone had a British or Australian accent didn't help either, but that's more of a me problem. Accents are really hard for me to decipher due to my auditory processing difficulties.

    Community Voices

    My experience of ableism today. #Ableism

    The more I ponder today's interaction with the phone company today, the more I realize they don't train their service people in how to deal with disability. For the second time in a year I heard "sorry, we don't deal with this very often", meaning any form of communicative disability, I think. In these instances, both were hearing related, #AuditoryProcessingDisorder #CentralAuditoryProcessingDisorder #SensoryIssues #SensoryProcessingDisorder , but today, neither the guy I "talked" to (using #AACDevice ) nor the guy he phoned had a clue what was going on, what their job was, or where to look on the computer to figure out what to do! And, now that I think about it, past the first time, the guy I dealt with didn't have the sense to call, the woman who did know what to do, over to help him again, even when she was nearby!!! Maybe he's trained not to, but seriously??!! It was an experience of utter frustration for me! Never mind sensory overload, never mind near meltdown!

    I am recovering better than I would've even 8 years ago, and did when I got back in mom's car, but still... this should never have happened! If I'd have known they were going to be so difficult, I would've brought my tablet as it is louder, and has a bigger 'keyboard', but I had no idea they were so incompetent!!!

    #Autism #CommunicationDisorders #Disability #DisabilityRights

    4 people are talking about this