Breast Cancer

Create a new post for topic
Join the Conversation on
Breast Cancer
58.8K people
0 stories
997 posts
About Breast Cancer Show topic details
Explore Our Newsletters
What's New in Breast Cancer
All
Stories
Posts
Videos
Latest
Trending
Post

I’m new here!

Hi everyone! My name is KenG. I’m looking to connect with others who have MALS syndrome and women who are in remission from estrogen-positive breast cancer. I’ve been in remission for 4 years and would love to hear your stories and connect. 💛
#MightyTogether #Cancer

Most common user reactionsMost common user reactions 5 reactions 1 comment
Post

So far so good

I waa diagnosed with breast cancer in 2023.

To be honest, I'd found a lump a year earlier, and went for mammograms etc: ang it was determined to be a cyst (spherical, soft)

I had my scheduled mammogram the following January.. mentioned the pre-existing lump before the procedure, and happily underwent the boobie-squish. After a moment, the radiographer(?) Looked at me concerned, and I just knew. Lump (who I named Roger the dodgy lodger) had grown, and changed shape.

About 15 minutes later I was in another room, carefully numbed, while nurses took biopsies, before being settled into a room to chat with an Oncologist, and oncology nurse, who explained that it was more than likely nothing: probably the cyst had become infected, but they wanted to be certain; and that I'd be called in a couole of days when the biopsy results came in.

Two days later, I was back in that same room, and before either of them could say anything, I asked "its cancer, isn't it?" They confirmed it, and expressed that they were sorry to give me bad news: I think it took them by surprise, when I smiled and half shrugged "OK. So - what do we do about it then?"

It's funny. I am the most babyish, mardy miserable child if I get a headcold... but that? I had no anxiety, no concern, and no doubts: just a determination to get on with fixing it. We talked about treatment options: surgery was a definite (bye bye nipple...) but until they checked the lymph nodes and ran other tests, they weren't sure what the steps after that would be

I had my surgery the day after valentine's day. Wike up wearing a particularly snazzy bra, courtesy of the NHS, with an absolute gem of a nurse adking if I'd like a cup of tea...

If I hadn't been such a hermit, living alone with no-one nearby to stay with me, I'd have been able to go home later that day. Instead, I spent a night on a small (4 bed) ward, Enjoyed a light lunch, then headed home. I was contacted by someone from the Macmillan Nurses to check in, and offer dome support should I need it. The MacMillan service is an absolute national treasure, and I coukd not be any more grateful for them.

Now, I'm taking a hormone suppressing medication, since the cancer I had feeds on oestrogen. I have a beautifully neat scar (two actually, since they had to remove a lymph node). I'm having yearly mammograms, but I'm actually doing really well. I had, and still have, more issues with my fibromyalgia than I did with Roger.

If, by 2028 there is no recurrence, I'll be discharged from oncology monitoring, and declared to be in remission/cancer free.Until then, I'm going to concentrate on fixing some of my other health issues, and getting myself a hit more fit than I currently am

I consider myself to be extremely fortunate: firstly that Roger was founded so early: and also that I had such a fantastic team of people involved in my care, including an amazing surgeon, and nursing team.

Most common user reactionsMost common user reactions 9 reactions 6 comments
Post
See full photo

How do you ask your friends for support? #CPTSD

I've told a handful of friends that I am undergoing #emdr for my #ComplexPosttraumaticStressDisorder and find it disappointing that no one checks in on me to ask me how it's going. I understand that they may not know what to say or that they don't know what that means--but I don't have to know what it's like to have a mom with breast cancer or Hashimoto's Disease or a mean mother-in-law to ask any of them about their struggles.

I do my best to show up for my friends, to listen to their down days and celebrate their good ones. All I ask is to be acknowledged for my reality and maybe a phone call or text to check in and see how I'm doing. That would go a long way. Instead, I get idle chit chat about what "activities" I'm doing, how my worklife is, general blah blah blah about nothing of import.

Living with CPTSD is a daily challenge and I wish people could not ignore my experience. If you can relate, what are some things you've tried to get support from your friends?

Most common user reactions 7 reactions 5 comments
Post

Don’t Tolerate Abuse # # #Abuse

I respond to abuse hyper aggressively & uncontrollably. I can’t stop myself from viciously telling someone what I deeply feel negatively about them when I feel I’m being abused. Told my selfish 76 year old father off in a voice message, bc he’s selfish & manipulative, and had the nerve to complain to me about his Netflix account & $900 car repair needs (he’s stuck in this pattern over 10 years). He knows my cousin is trying to recover from breast cancer & her husband is having heart surgery tomorrow. I’m personally way worse off than my father on top of it. I exploded via voice message. I then blocked him in every way and warned my sister he’s tripping. I don’t think I can talk to him again until my life/health improves. If that’s months & he passes, I refuse to feel guilty. I’m 55 and he’s been a bastard all my life. All his children are doing him a kindness by even speaking to him. Praying he gets so sick he will have no choice but to move back to America. Get on Medicaid & go to a senior home, where he should be. Otherwise he can go be a burden to his sister. I’ve had enough abuse for 10 lifetimes and I’m not letting anyone kill me, regardless if they’re unwell and unconsciously doing it.

Most common user reactionsMost common user reactions 3 reactions 1 comment
Post

I'm new here!

Hi, my name is ResistFascism. I'm here because 20 years of battling cancer has worn me down. I need time with my tribe of others dealing with the same.

#MightyTogether #BreastCancer

Most common user reactionsMost common user reactions 8 reactions 1 comment
Post

I have a question!

How could I best support my mom who has breast cancer? (I’d especially like to know from people who have gone through something similar)

#BreastCancer #Support

(edited)
Most common user reactions 1 reaction
Post

The shot vs the implant birth control?

Yesterday I met with my gynecologist to discuss different birth control methods. She wants me to stop taking estrogen due to hypertension and interactions with certain meds I’m on. We discussed the iud, implant, shot, and proestrogen only pill. I’m use to having periods only every 3 months and their lighter. Don’t want periods every month nor intermittent spotting. I got put on birth control for my pmdd and to help with bad cramping 20 years ago. I get yeast infections easily espically in the summer with excessive sweating. I don’t want weight gain. I’m already obese and having hard time losing. I already have depression and anxiety along with other health conditions including pots. Don’t want increased risk of breast cancer. It runs in my family. My pots is always worse when I’m on my period making me more dizzy and feeling like I’m going to faint more along with worse nausea. I have back pain but it’s worse when on my period along with bloating. I’m torn between the shot and implant. I have been doing research and both sound good except the weight gain with the shot. I have pain management procedures every couple of months besides other procedures, bloodwork, scans, etc. please help me decide between the shot and implant! #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #PremenstrualDysphoricDisorder #POTS #ReflexSympatheticDystrophySyndrome

Most common user reactionsMost common user reactions 8 reactions 8 comments