Caregiving

I hate asking for help … but should I ask for help?

In an amazing New Mobility story, wife and husband wheelchair users resolve to walk the ancient El Camino de Santiago pilgrimage through Spain. They have incredible spiritual and RL revelations along the way.

tinyurl.com/nr27ushb

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"You’ve been taught that effort equals worth. When rest becomes a necessity, not a luxury, it’s easy to feel like you’re not doing enough. Authenticity means separating your identity from your output."

What It Really Means to Live Authentically With Chronic Illn...

Thanks to A Chronic Voice! achronicvoice.com

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What a cool story. We have allies everywhere!

Last night Mendoza was drafted by the Las Vegas Raiders. Last year he won the Heisman Trophy.

In 2008, Mendoza's mother was diagnosed with MS. Since then, the family has raised more than $360,000, working in cooperation with the MS Society.

Story: Fernando Mendoza has already given away $500K of his huge NF...

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Chronic pain can affect many areas of the body—including the back, shoulders, and arms—so even carrying everyday essentials like your keys, phone, and wallet can add extra strain.

What bag, purse, or backpack brand has worked well for you? What do you appreciate most about it, and why does it feel comfortable to carry?

⭐ Your answer may be used to update a Mighty article! ⭐

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

Convenient temperature control is important when living with MS and other chronic conditions. It is affordable with so many Bluetooth & Alexa smartmakeup devices on the market.

Here's an article listing some of them — A Comprehensive List of Alexa Smart Home Devices | SmartMove

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So rowing, for me, was an antidote to that. ... On the river, there's a long experience of my body meeting challenges," she says. "When I'm leaning into a stroke, ... I love that. I can move this boat through anything."

Hear and read Joannah's story. Story and photos by Nancy Eve Cohen. Rowing upriver, leaving the wheelchair behind

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“One misconception is that there is time and patients have time to wait until things get worse before they act,” says Dr. Augusto A. Miravalle, a neurologist at Rush University Medical Center in Chicago. "Prevention is very effective when used earlier in the course of the disease.”

Read veteran journalist with MS Ed Tobias' article recommending we "Hit It Fast and Hit It Hard." www.rarediseaseadvisor.com/patient-columns/take-it-from-pati...

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The ms life community is an online community for all those affected by MS. This volunteer-led community offers a supportive and empowering community for those living with MS, whether they’re recently diagnosed, navigating life with MS, or supporting a loved one living with the disease.

Three things ms life is based on are community, education, and active living.

Expanding your online support network is good!

www.mslifecommunity.com

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Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to attendees, ask questions of a health care professional and a volunteer who is living with MS, and share your own experiences.

Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.

Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS

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