Caregiving

Some really valuable MS life-skills. Things like self-advocacy and "staying active" took me years to learn.

www.healthcentral.com/condition/multiple-sclerosis/tips-for-...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

“When I run, I feel like I’m taking control - not just of the pain, but of the condition itself," says 26yo Tom Means. He won the Saxon Shore Half Marathon in one hour, 33 minutes and eight seconds.

"Running is one of the only things that eases the heaviness in my legs," he says. He also experiences numbness, brain fog and slurred speech. To help control these symptoms, Tom gets Ocrevus treatments.

He ran in honor of his sister and father, who also have MS. His famous run raised money for his sister's treatment center.

"I firmly believe that exercise and nutrition are some of the biggest factors in living with MS," he says. "It's a small part you can play in your own MS journey that could make a massive difference in the long run."

A #MultipleSclerosis dx does not mean your life is over. Ironically, it often makes you even stronger.

Man, 26, diagnosed with incurable illness breaks Guinness World Record

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

To attract our clicks, Internet writers want to reduce things into small, simple lists: the five things you need to do, the seven things behind such-and-such, the one ingredient that will supercharge your this-and-that. This article was on a very professional- and expensive-looking website. It was a blog, but the hosting website made it look very important. The author had zero credentials. He could be a person with MS, or a doctor, or a freelance writer trying to rake in a few bucks — we just don't know.

I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Especially with MS, where even researchers are coming to understand the complex disease in almost spectrum-type terms, it's dumb and destructive to pigeonhole millions of people with only a few outcomes. Someone newly diagnosed could read this article and its conclusions, and think, 'What's the point in trying?'

End of Thursday rant. Also, get offa my lawn! Ha ha

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Just something to remind us all..
#MentalHealth
#Anxiety
#Caregiving
#PsoriaticArthritis
#Migraine
#DistractMe
#Arthritis
#AnkylosingSpondylitis

My closest friend told me something the other day.

We were having coffee, laughing, and then she stopped. Her voice shook. She said the past months trying to have a baby had been really hard. Full of hope and disappointment. Full of moments no one else could see.

What surprised me was how she found little ways to cope. Talking to people who understood. Reading stories that felt like a real conversation. Finding ways to take care of her mind. She said if anyone wanted to see how people get through this, they could check out stories and support that feel like a real conversation

Hearing her made me think. Feeling anxious or sad while trying to conceive is normal. It doesn’t mean you are weak. And sometimes just knowing someone else has been through it is the first step to feeling #Wellbeing better.

#MentalHealth #PostpartumDepression #Caregiving #Depression #Parenting

“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress, who has been living with multiple sclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.

What's your morning routine, Mighties?

Selma Blair: A Day in My Life with Multiple Sclerosis

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Never forget that change can be beautiful! The Fall shows us that! Hope this finds you well, and remember to take care of YOU! 🧡
#PsoriaticArthritis
#MentalHealth
#Anxiety
#Arthritis
#Caregiving
#AnkylosingSpondylitis
#ChronicPain
#Migraine
#DistractMe

I feel good after I write one of my reps. It was empowering rather than being passive and stewing over things.

Has anybody else interacted with their representatives? I'd love to hear your stories.

nmss.quorum.us/campaign/143536

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Keep being mighty — for yourself and for others. This weekend would have been Reeve's been 73rd birthday.

Sorry I haven't been around this week, buds: lots of work lately and limited energy.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune