Caregiving

We're so glad to have this now with my wife and her post-surgical shoulder. Since she insists on still #Caregiving for me, with her now using the red nylon sheet called a "slide sheet" makes moving me around much easier and safer, thank goodness. If you’re a caregiver, or know a caregiver, then you need to know about this one.

I reviewed it here: wheelieoutthere.blogspot.com/2025/07/girl-its-so-worth-it-th...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Go to this website for videos, info, supports and parenting resources.

www.nationalmssociety.org/understanding-ms/newly-diagnosed/p...

There's a webinar this week but it's already full. Next week I'll post the video online.

Together we can do this.

#PediatricMS #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Hello everyone

It’s with a shattered heart that I share this: my beloved husband has passed away. He was the gentlest soul I’ve ever known, and watching him fade day by day was a pain no words can fully capture. We did all we could to keep him comfortable at home, surrounded by love, prayers, and quiet moments that now feel like treasures. Now, in the stillness he’s left behind, I’m left with the medical equipment that helped him through his final days—items that gave him dignity, peace, and comfort when everything else felt uncertain.

I would be deeply grateful to pass these on to anyone who might need them. They were well cared for and still have so much to give. Available items include: a foldable power wheelchair, hospital bed, portable oxygen concentrator, bedside commode, blood pressure monitor, CPAP machine, walker with seat, suction machine, nebulizer, feeding pump, recliner lift chair, overbed table, pulse oximeter, and an adult shower chair. If any of these can ease someone else’s burden, please don’t hesitate to reach out. It would mean the world to me to know they’re bringing comfort once more.
#PseudomyxomaPeritonei #ADHD #Anxiety #Lupus #ChronicFatigueSyndrome #DandyWalkerSyndrome #Caregiving

Celebrate by exploring these favorite books chosen by the Chicago Public Library highlighting authors with disabilities as well as authentic reads on the disability experience.

chipublib.bibliocommons.com/v2/list/display/199702383/2779039077

#DisabilityPrideMonth #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #ChronicIllness

Right now times are rough. It's vital we connect, get involved and share our personal stories here on the Mighty and elsewhere.

By helping others understand us, we'll strengthen our rights, programs and dignity. We are Mighty!

#DisabilityPrideMonth #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #ChronicIllness

We all medically rely on electricity: AC, mobility devices, ventilator, CPAP/BiPAP, medical devices, mattress pump, etc.

Check with your utility company as some power companies offer a Medical Backup Program and/or Medical Power Discount that gives discounts on utilities and provides a whole-house backup battery or generator at no cost or a discount if you have a medical need.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

with neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmunewith neurologist Deja Rose, MD of the Cleveland Clinic and Emory University.

Sign up — secure.nationalmssociety.org/site/Calendar

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

The newest meds and research aim to stop and reverse damage to the myelin tissue that coats and protects the nerves of the spinal column. You can think of the myelin sheath like the coating on electrical wires that lets them conduct signals properly. Read about the strategies to stop the damage at the earliest possible time and even to repair that coating.

Let go my wires!

www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Streaming on Facebook, YouTube and Twitch.

The website also has recorded episodes on a long list of topics like how to tell loved ones; off-label treatments; job incentives and long-term financial planning; sleep health; Spanish-language programs and a lot more.

www.nationalmssociety.org/resources/get-support/education-pr...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune