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#hi #Hello #goodevening #hardday #inneed #Injury #injured #needhelp #HomeCare

Hi there, friends🙋 #mighties #mightywarriors ....my knee went out last Friday (a week ago) & my Homecare Company has abandoned me. I usually have a Helper assist me food with shopping, carrying groceries, running errands, etc. ....last Friday,with my Helper, I bought too much ,I guess. My knee went out carrying too much weighty groceries up my 3 flights of stairs. & I haven't had anyone to get me where I can purchase a cane & knee brace. I am afraid to leave the apartment more than ever, now. And refuse to without assistance. Until I get a cane & knee brace.


No rest for the weary

Another night no sleep. I’ve been in bed for days. No shower in two weeks. Hair is still half done. No self care at all. My partner and caregiver has died...I don’t miss him but I’m so lonely. The fear of death is looming overwhelmingly, but I’m not ready. My tears won’t stop but I can’t let my grandson see them. I laugh through the hurt for my grandson’s sake. The recent diagnosis of CHF doesn’t help. Drink more water says one dr...drink less fluids says another. Dishes in the sink but I haven’t cooked in more than a week. Floors needs sweeping and mopping. Did I feed and water my furry and feathered babies? Why do they have to suffer? In my prison with no bars I sit day after day “what day is it”? I’m not hoarding, I just need more storage. My body aches from the 100lb weight gain “side effects of the medications!” Take a walk, get some fresh air. I can’t, I’m scared! Anxiety and corona?! No energy! From the bed to the toilet, from the toilet to the bed. Sit at the table for a minute, eat a sandwich, something quick, minimal effort. Mad dash back to bed. When, why, how! I need help! Please don’t leave me to my own devices. Why don’t they hear me? I’m screaming inside.

#self care


Taking care of an Alzheimers patient

Today has really been a rough day.
I work in in home care for the elderly and many of them have Alzheimers or Dementia. You kind off get used to it after a while but some days are just really hard.
I have a patient that has been doing very well these last few weeks. He remembered me and my name and knew why I was there. Today he was completely lost and scared. In his mind I was a stranger, an intruder that came to help him with things that he thought he could do himself.
In January this year he moved from his lifelong home to a small apartment in the same neighbourhood. Today he was really confused and angry that he was alone in some strange place and thought that I was locking him in there. He wanted me to go get his mom so she could explain to me that he lived with his parents. He is 86 years old.
It was completely heartbreaking for me to see that things could get so bad in one day. That a friend, a person that I care for and meet every day was so lost and scared. And the hardest part of all is to pretend that what he is saying is true. To calm him down by saying that I will contact his mom and let him think that there is nothing strange about him not knowing me.

Today was rough. But the only thing that is important is to keep calm, keep going and just hope for the best. ##AlzheimersDisease ##alzheimers ##Dementia #HealthCare #coping #HomeCare #Rough #Workplace ##Work #Pretending


Three things I'm grateful for...

1) My #truefriends ; who do everything they can to #understand what I'm faced with and continue to be #Accepting and #supportive .

2) Having my own #home , where I #feelsafe ; it's warm, calm and #comfortable , I can receive my daily #HomeCare with confidence, and live in the catchment area for an awesome #carecompany . All the standard services are reliable, there's decent internet here and my abusers have nooo idea where I am!

3) That I'm still able to be #creative from time to time; even with #multiplechronicillnesses that leave me mostly #housebound #Disabled , it gives me something to look forward to, knowing that as long as I continue to listen to my body, I can do what I enjoy most when I'm able to.

#52SmallThings #3thingsimgratefulfor #myalgicencephalopathy #ME #pwme #HEDS #restlesslimbsyndrome #Migraines #Fibromyalgia #FibroFog #BrainFog #Tinnitus #ehlersdanlossyndromev3 #POTS #eds3 #CPTSD #PTSD #MillionsMissing #Potsie #Zebra #Spoonie #theunchargables #InvisibleIllness #invisibledisabilities #thedruidessofmidian #thespooniedruidess #disabledmodel #creativemodel #altmodel #spooniemodel #DomesticAbuseSurvivor #rapesurvivor #domesticviolencesurvivor #escapedtoxicfamily


Now working

When I posted my profile here I was not working. I am happy to say I have been working since April of last year. I am working two part time jobs, equaling full time hours. One position is as a delivery driver for pharmaceutical meds throughout Philly. This gives me autonomy I like and social opportunities to meet persons from all walks of life. My other position is for a home health company. The work suits me very much as I enjoy serving others. #HomeCare