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The Day My Childhood Changed ❤️‍🩹

I’ve been thinking a lot about where some of my survival responses may have started. One of the earliest memories that still feels incredibly vivid is from 7th grade, when my mom suddenly became critically ill.

My mama had always been one of the strongest women I knew. And I mean strong. 😂 She worked a man’s job, had arms that looked like they belonged on a grown man, and I had literally seen this woman fight grown men.

In my eyes, my mama was pretty much indestructible.

Then one day I found her lying on the bed with her arms and legs stretched straight out, staring at the ceiling like she was looking into outer space.

She was talking about how she thought getting a toilet wax ring in her mouth had made her sick.

I had absolutely no idea what she was talking about.

I just knew something was very wrong with my mama.

So I called 911.

We eventually found out she had severe chickenpox that had affected her brain. She ended up spending around four months in the hospital and about half of that time in a coma.

I’ll never forget the first time I went to see her.

She was in isolation because she was contagious, but seventh-grade me wasn’t thinking about any of that.

I saw those doors and barged straight through them.

Someone yelled at me because I wasn’t supposed to just run into an isolation room.

Too late. 😂

I ran straight to my mama, wrapped my arms around her, and bawled my eyes out.

I just wanted my mama.

I remember that room being dark and freezing. The white blankets. The beeping machines. The tubes. Her body covered in chickenpox sores.

The woman I thought was indestructible suddenly looked completely helpless.

For months, I went to the hospital after school.

I did my homework beside her bed. I carefully dabbed pink calamine lotion onto her skin because I was scared I would hurt her sores.

Sometimes I was nervous to even touch her.

But I still kissed her.

I couldn’t help myself. She was my mama.

I would sit there, do my homework, put lotion on her, cry, and wish more than anything that she would get better.

Looking back now, I realize how young I really was.

I was still supposed to be a kid, but I was already learning how to be a caregiver.

Eventually, my mama woke up.

The tubes were gone.

She survived.

And I remember how emotional it was seeing her awake again.

But there was something I didn’t understand yet.

My mama had no idea who I was.

❤️‍🩹🌱

#HealingOutLoud #Childhoodtrauma #CPTSD #PTSD #TraumaRecovery #Caregiver #MentalHealth

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You are not alone. Come find community and support. 8/27/26 @ 8 PM ET

Email newtoms at nmss.org for details. Share common experiences and concerns. Get info on ways to live well with #MultipleSclerosis. #Caregivers and friends welcome too. #MightyTogether

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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You are not alone. Come find community and support. 8/27/26 @ 8 PM ET

Email newtoms at nmss.org for details. Share common experiences and concerns. Get info on ways to live well with #MultipleSclerosis. #Caregivers and friends welcome too. #MightyTogether

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Women With MS in the Workplace: this week's Ask an MS Expert, Thurs. 8/27/26 at 12:30 PM ET

Dana Foote of KPMG US tells her story and unpacks the realities of women navigating career plus disease management. She'll share lessons she's learned about resilience, self-advocacy and professional growth.

Connect at tinyurl.com/mhm7bya4

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Black Minds Matter Family and Friends Virtual Support Group! 1st and 3rd Monday of the month, 6:30-8 PM ET

Black Minds Matter Family and Friends support group is for adults who identify as Black and have a loved one with a mental illness or symptoms, or any mental health challenge. Share valuable coping strategies and practical information. And get information that helps you support your loved ones living with mental health challenges.

💻 If you'd like more information or would like to join, you can find the link here. Virtual groups are every 1st and 3rd Monday of the month, 6:30-8 PM Eastern Standard Time. Closed captioning is available: naminycmetro.org/programs/black-minds-matter-family-friends

If you have any questions, feel free to comment below!

#Parenting #GeneralParenting #Caregiving #BipolarDepression #BipolarDisorder #PTSD #ComplexPosttraumaticStressDisorder #Schizophrenia #ADHD #Parenting #ChronicIllness #SchizoaffectiveDisorder #BorderlinePersonalityDisorder #Anxiety #ObsessiveCompulsiveDisorder #Depression #MentalHealth #Selfcare #EatingDisorders #CheckInWithMe

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I'm new here!

Hi, my name is WhenIsMyTurn64. I'm here because my partner is incredibly hard to deal with and her negativity and anger/rage never stops.

#ChronicPain #Caregiving

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I work hard and I get nothing. #GroupHomes

I everyday break my back at work and all I ask for is my spending money. But when I ask for it they look at me like I am stupid. I ask while the medication cabinet they keep it in is open but they just get if don't ask over and over again and beg. #Caregiving #neglect #Property #Autism

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Supporting Loved Ones Living with Suicidal Thoughts Virtual Support Group! 2nd Monday of the month, 12:30-2 PM ET

About 12.2 million adults have thoughts of suicide. This group is for their loved ones. Share your experiences and listen to others who are close to someone with suicidal ideation. This group offers support in a welcoming, non-judgmental environment and is facilitated by family members of people with mental health needs.

💻If you'd like more information or would like to join, you can find the link here. Virtual groups are every 2nd Monday of the month, 12:30-2 PM Eastern Standard Time. Closed captioning is available:
naminycmetro.org/programs/supporting-loved-ones-living-with-...

If you have any questions, feel free to comment below!

#Parenting #GeneralParenting
#Caregiving #BipolarDepression #BipolarDisorder #PTSD #ComplexPosttraumaticStressDisorder #Schizophrenia #ADHD #ChronicIllness #SchizoaffectiveDisorder #BorderlinePersonalityDisorder #Anxiety #ObsessiveCompulsiveDisorder #Depression #MentalHealth #Selfcare #EatingDisorders #CheckInWithMe

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MS summer meltdown stories — How does summer heat affect you? Got any true-tales or words of caution for others?

My then-girlfriend and I took an easy 1-mile hike in the Smoky Mtns. during May. When we started, I felt perfect. Halfway through, my mind grew foggy and my legs turned wobbly. I shambled and got dragged by my girlfriend a half-mile back to the car. Sat in the car air conditioning afterward. Good thing I had an appointment scheduled with a neurologist back home. Also, married that girl!

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

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Tomorrow 8/13/26, at Noon, ET — Ask an MS Expert: "Understanding MS Relapses"

Relapses are one of the biggest wildcards when living with multiple sclerosis. Those internal thoughts we have: "Is this a couple bad days in a row — or is it a relapse?" Learning how to recognize them and what to do when they occur can help us feel more prepared.

Join Gabriela Karolidis, DO, board-certified neurologist and neuroimmunologist, as she discusses the role that relapses play in MS and how to navigate them.

Connect at tinyurl.com/hh9y3d3r

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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