Caregiving

Hi, my name is TessAmara. I'm here because caregiving—especially at the end of life—is both the hardest and most sacred work I've ever done.I’ve spent countless nights holding my mother’s hand through sundowning, pain, and silence.I wrote a book called Let the Weak Be Strong to preserve the truth of those moments—the love, the grief, the fight to stay present.I'm looking for others who understand what it means to show up when everything hurts.I believe in legacy, emotional honesty, and the power of storytelling to heal.#MightyTogether #Caregiving #Grief #Hospice #Memoir
#MightyTogether

After five years of fighting untold hours and endless meetings a pricy educational advocate we finally finalized my sons out- of- district placement for the upcoming school year. For the non Americans let me explain: the local public school is obligated to provide an education for every child within their district. If you choose private great, but otherwise they must accommodate you. If they are unable they must place your child in a school/ or with a district that is able and willing. The problem happens when they think they can but you disagree. Thank god we are here. #Autism zebra #unusual #Worn out

Napa community rallies to deliver new kitchen to bakery owne...

It's surprising when you open up about your condition. When people see that you are trying your level best, often they rally to your side.

I used to hide my diagnoses. Even when I long passed the point where something was obviously wrong, I would stubbornly push ahead and insist that it was an old football injury. Doing so actually made my life harder, and harder on those around me. I became exhausted with everything and no longer cared what people thought.

When I just started telling people, leveling with them, just matter-of-factly, things were so much better. It felt like a weight lifted off of my shoulders.

But the surprising part was when people would just start coming up to me with support. I never looked for any, never wanted any, still don't. But people, even in small ways, will do nice things to support, or to support others who they know are struggling — they have told me so. They have brought up people in their lives going through the multiple sclerosis experience. And I think that sometimes just telling people what it's about, instead of brushing them aside or staring them down (I've got a lot of practice with both), humanizes it to them, brings it home even more.

People dear to me have even surprised me with bigger things, like accessibility home makeovers or repair projects (building a covered porch, converting a bathroom, pouring a small, accessible concrete landing). I've argued with them not to do so, but after a point I've also learned that it's better to stop fighting others away and accept their heartfelt support graciously.

MS life can be such a struggle, and people can be hurtful. It's tricky but important not to wall ourselves off from the rest of the world. There are plenty of supporters waiting for you out there too.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Hello everyone,
It’s with a heavy heart that I share the passing of my beloved husband. He battled both stroke and traumatic brain injury, and for years we did all we could to keep him comfortable at home, surrounded by love. Losing him has left an emptiness I can’t explain—but I hold onto the peace that we gave him comfort and dignity in his final days.

Now, I have a collection of medical equipment that supported him—items that were well cared for and still have so much to offer. I would be honored to give these to someone who truly needs them.

Available items include:

Foldable power wheelchair

Hospital bed

Portable oxygen concentrator

CPAP machine

Recliner lift chair

Bedside commode

Walker with seat

Suction machine

Blood pressure monitor

Feeding pump

Overbed table

Pulse oximeter

Adult shower chair

Nebulizer

If any of these can help ease your burden or a loved one’s, please don’t hesitate to reach out. Giving them a second life would mean the world to me.

Grief has many layers. One of the hardest is sitting with the quiet after all the care and love you’ve poured into someone. I’m choosing to let some of that love keep moving—by giving away the medical items that once brought my husband comfort. If they can ease someone else’s pain, then something good still grows.

#griefsupport
#Caregiving
#medicalequipment
#disabilitysupport
#strokerecovery
#TBI
#Loss
#ChronicIllness
#HomeCare #MightyTogether #giveaway #WidowSupport