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John
 • 
@themightyjohn
Multiple Sclerosis Connections 1d
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My MSed up Life: My knee gets engine knock!

Like a car in wintertime, it doesn't want to turn off = tremors.

Sit down —> engine knock

Cross my legs —> engine knock

Sneeze —> engine knock

Things that have helped: Heat/warmth (a blanket, sunning yourself). Stretching or exercising the leg. Holding or pressing the knee in place. Oral baclofen.

What has finally stopped it was getting a baclofen pump. Like what has helped country star Clay Walker (search for our recent post about him), this hockey puck-sized implant feeds powerful micro-doses of baclofen (a muscle relaxant) directly to your spinal cord. If the tightness, pain and fatigue of spasticity starts taking over your life, ask your specialist about this option. I've had this for eight years and it has changed our lives. Hit me up if you have any questions.

#MultipleSclerosis #Disability #Pain #Spasticity #Caregiving

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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 2d

Actress Jamie-Lynn Sigler, Living With Multiple Sclerosis, Will Play Doctor With MS on Grey’s Anatomy

Jamie-Lynn will guest-star in the medical drama's Jan. 15 episode (ABC, 10/9c). The star of "The Sopranos" and "Entourage" was diagnosed with MS at age 20.

Jamie-Lynn Sigler Playing Doctor With Multiple Sclerosis On ...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Jamie-Lynn Sigler Playing Doctor With Multiple Sclerosis On Grey's Anatomy - Copy Invisible News

Jamie-Lynn Sigler is coming to "Grey's Anatomy" in a role that hits very close to home. The actress, who was diagnosed with Multiple Sclerosis at age 20, will
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happywhenitrains
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@happywhenitrains
Life’s Little Joys 3d
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Took a trip to a small zoo yesterday with my client and his wife. He is a Vietnam war vet who suffers with dementia, and I'm his caregiver for 20 hours a week. This has been a challenging experience for different reasons, but we've had so many wonderful moments. Coloring, racing Hot Wheels, bird and butterfly watching, finding toys for him to play with, and exploring local parks. He even got a new puppy this year (a chihuahua named Pita). Him and I got to feed flamingos together for the first time, and we were tickled pink (pun inteded) by this (really, it was weird and amazing, would recommend lol). I just wanted to share this because it means so much to me, so thanks for reading. I hope you're all doing ok out there ✨️

#MentalHealth #ADHD #Depression #Anxiety #Autism #ComplexPosttraumaticStressDisorder #PTSD #Trauma #Caregiving #MightyTogether

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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 5d
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This week: How MS Affects Men (Spanish program), 11-11:30 AM CST

Facebook, YouTube, Twitch links here — www.nationalmssociety.org/how-you-can-help/get-involved/cale...

Living with MS can affect men in unique ways, both physically and emotionally. Learn about male-oriented treatment options, symptom management, and adapting to changes in family, work and daily life from Dr. Roberto Alejandro Cruz, neurologist and neuroimmunologist at DHR Comprehensive MS Center in McAllen, Texas, and board member at the Latino Alliance for Neuroimmunology.

If you can't attend, the recordings of all programs are available online.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Lori M
 • 
@positivethruthepain
Anxiety, Stress, and Me 6d
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Happy holidays!!!

Have a wonderful season in all of the celebrations. This is a time of peace and kindness 🙏✨️💗
#PTSD
#Anxiety
#Arthritis
#Caregiving
#Headache
#ChronicVestibularMigraine
#DistractMe

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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 6d
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Mighty Leader
Nina
 • 
@sparklywartanks
Spoonie Life Hacks 1w
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Story of the Week: What tips would you share for parenting with a chronic illness?

Parenting is hard work that takes effort, patience, and a lot of energy — and doing it while managing a chronic illness adds an extra layer of challenges that often requires additional compassion and support.

What advice, tips, or encouraging words would you share about parenting with a chronic illness?

📖 Need a Mighty read? Check out today’s Story of the Week for more tips and insight:
4 Guilt-Free Tips for Parenting With a Chronic Illness

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis
#Cancer #Anxiety #PTSD #CheckInWithMe

4 Guilt-Free Tips for Parenting With a Chronic Illness

"Your family isn't going to look like everyone else's and that's OK."
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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
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Info on MS and symptoms, and how to manage and live well with MS. Ask your questions, share your experiences with others.

Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune #MultipleSclerosis

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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 2w
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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 2w

Feeling deflated after her dx, doctors & bills, Sarah Q. found her groove again -- as an MS advocate. And she learned she's really good at it!

"It helps my self-esteem. It helps me feel like ... I’m fighting for all of us," she says. “It turns out I’m really good at sharing my story and putting a face to someone living with MS on behalf of all of us."

The California mother of two shares her stories with members of Congress, or on social media. Doing so helps her counter the self-doubt that sometimes makes her feel like a burden to her family. She feels empowered stepping forward as a voice on behalf of the newly diagnosed and those with long-term MS.

Right now, Sarah's focus is on advocating for affordable healthcare. "It shouldn’t be something we have to stress out about or have to be worried about how we’re going to be able to pay to see our doctors or fill our prescriptions,: she says. "As a mom with MS, I just want someone to feel hopeful."

www.nationalmssociety.org/news-and-magazine/momentum-magazin...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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