A little about me… Where to start? Perhaps with the diagnoses
Firstly, I must make it clear, I was gaslighted on my pain, my entire childhood and my adulthood. The people who raised me, absolutely refused to believe that I was suffering in any sort of way. mimicking and mocking my pain.
It’s been a long journey.
it does feel like coming out of the closet, allowing myself to be exposed to the truth of my suffering.
My earliest core memories, involved, nerve pain. I have suffered with nerve full body pain my entire life, it’s been a Constant battle since the age of 14.
I’m 30 years young. I can’t remember what it feels like to be pain-free, that’s how long it’s been for me.
life is like a box of chocolates, you never know what you’re gonna get
I’m waiting for medical research from Ucsf, I was diagnosed with superior canal. However, because my surgeon is so wonderful at what he does, he was able to prove that I have very healthy ears.
The question: why is it that I can hear through bone conduction extremely loud? Why can I hear through my feet? perhaps in this lifetime, I will be able to participate in the medical research, once it’s granted.
Recently, I was diagnosed with a heart condition called Neurocardiogenic syncope. this is relationship my brain has with my heart.
and of course, we can’t leave out depression, anxiety, and complex PTSD. For those who have nerve pain, they often experience complex PTSD.
for those of you who suffer with illness, it’s very common to feel anxious and depressed.
on the sunny of our side of things, I love art.
Lady Alexandra Rose is my art name. Collage art is my passion. you can find my art on Instagram @ladyalexandrarose
for the last 8 years of my life, I have either been gardening or caregiving to support myself.
I often find with my clients, they have helped save me. Helping me create a scared space for them, inturn creating scared space for myself.
I have walked people to their deaths. I have given people an immense amount of support through my words and my actions. I have worked with developmentally disabled adults, some of the kindest teachers, I believe.
life is a garden, what will you grow? Lovely lavender, rosemary and thyme?
will you tend to your garden and pull out the weeds that suffocate your beautiful flowers?
will you go forth, and bless each bee that brings your garden life?
I think yes
cheers to life!
#MentalHealth #ChronicPain #HeartCondition #Life #rarediagnoses #Caregiver
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