I’m new here!
Hi, my name is dizitsma. I'm here because I have Cauda Equina Syndrome
Hi, my name is dizitsma. I'm here because I have Cauda Equina Syndrome
The last few days have been so tough, the pain and fatigue is just too much to bare. I am staying strong the best I can .. Still grateful to you all who care ❤ sending positivity a d hope to you all 🙏
I love this quote so I thought I would share.
I wish everyone peace, positivity and love for your day ahead
Hi guys , had a bit of a shock today , I have been told that I may have CES, it has been just over 2 .5 years since my symptoms started on a constant basis so it has been a slow progress
I was told I had sciatica for years treated with naproxen and Co codamol , it helped take the pinch away for a short spell but it has never gone away . I have had a number of falls because of my left leg not lifting as it should , but we just put that down to my clumsy self. At the beginning of the week my mri results showed I had some bulging discs ..the pain has slowly gotten worse and I am having incontinence issues ( not very nice) I am going In to hospital to have further tests because it could be mistaken for Giltelmans syndrome. I was only talking to someone on the mighty this morning about them having sciatica.. the irony.. fingers crossed guys ..thanks for letting me vent ..so frustrated but I still have hope.
#CaudaEquinaSyndrome meant I had to have emergency surgery 2.5 yrs ago and I’ve managed daily pain ever since. Covid has recently caused a relapse in pain, piriformis syndrome and nerve damage. I’m struggling to stay positive. How do you lot cope? I’ve started with a PT but aside from a few moment I just feel tired, sore and stiff constantly.
This DM is really getting on my nerves. With the exception of one wonderful individual I have been solicited for sex and contacted by somebody who changed their name three times. Then twice two different people have supposedly wanted me to invest in Bitcoin and Cryptocurrency. You can tell if you backtrack on their name and they have not posted on any groups and just have some people that they have contacted I guess through this app. They're not interested in healthcare or any of the things that we discuss on the Mighty. They are interested in trying to catch people who are stuck home are a little stressed out and are in need of money. Unfortunately with these two companies they are the same you have to invest money and it's a very precarious investment. I wonder why the mighty has not picked up on this. We are picked on by the mighty for certain things that we say yet I have had two distinct individuals that have no postings whatsoever and yet jumped onto this group and pretended to be part of it only to try to snag people so please be careful who you direct message and to the mighty staff please be on alert for these scammers.
# Anxiety # ADD #Fibromyalgia #CaudaEquinaSyndrome # Reynard's #Osteoporosis #Osteopenia
# Baastrupt syndrome
# Costachondritis #PeripheralNeuropathy # plica syndrome # pleurisy wet and dry# shingles #Angioedema hives
#CaudaEquinaSyndrome even through rough times and good times and even just regular days are hard for me, I keep having hope. It’s the only thing that I have to hang on to. Especial when those around me don’t understand my struggle is always there. No matter what day it is.
So I was texting (using the microphone)to my daughter. I told her I had an appointment with the
" Prostate dentist" tomorrow for a small issue. 🙄So I sent another text correcting it and said prosthodontist, because I'm mom😂. Then I reread original and started laughing even more..."prostate dentist for a SMALL issue"😂🤣🤣 sorry guys.
# Baastrupt syndrome #Costachondritis
# Cauda Equina Syndrome
# Degenerative Disc Disease
# Hiatal Hernia
# Gerd Acute
# Raynaud's Phenomenon
I did well for the first six months. As a battle hardened trauma nurse, my brain leaped to action mode. It was summer and I was furloughed from work. My five year old helped me make cards to mail to friends/family. Adrenaline fueled me as my fight reaction kicked in.
Now, I CAN’T BREATHE! I don’t want to eat. Working from home with my husband and child in 800 square feet. Isolation due to his high risk lung disease. A new high pressure job adds to the stress. I wake up and cry. I cry at lunch. I bawl before bed. Guilt eats me alive as I see the messes pile up. Shame seranades me knowing my kiddo is watching videos all day. I always wanted to me a mom. It took six rounds of treatment to get our miracle girl. I was so engaged until my spinal column collapse. Everything changed. I was diagnosed bipolar after surgery but, ADHD will always rule supreme in my head.
I miss my social life. There is no fun. Nothing to look forward to. Hugs are my favorite. My husband has to deal with this alone. I want to curl up in bed and be alone for the next 2 days.
#BipolarDisorder #CaudaEquinaSyndrome #ADHD #Isolation
Yesterday I attended the critical care unit at my local hospital after medical advice. They seen me promptly however the doctor attending me wasn’t the best don’t get me wrong I understand waiting and have empathy for all medical staff and clinical staff too whom are often overlooked. Infact i am in my situation now following an injury to my back as a member of the NHS working on a ward. However there is a way to be with people plus a very invasive procedure was done by a scantily hung curtain in a cubicle which I had already seen people looking in. As my head was facing the wall I was unaware to what extent of privacy I actually had throughout the procedure. In 9 years of medical problems I have been to A&E once. So that should speak volumes. However next she basically said she couldn’t examine me properly because I was in too much pain she also said I don’t think it’s it but because you have come here I need to contact neuro which is going to take ages and be a nightmare for her. Also the MRI machine is finished for the day so I wouldn’t get an MRI but if they say I need one to cover them I would have to stay in. I struggled to walk round every where using my stick carrying a large bag with all my medication my coat cause I was red hot severe back and right leg pain. The whole experience was dreadful due to the fact I have chronic back and neck pain, plantar fasciitis, migraine,IBS,severe anxiety,depression,OCD and fibromyalgia. The toilet I had to do my urine test in had urine all over the seat and the floor. I’m sure many of you can understand how hard it was with the pain I had to squat as far away from the toilet seat to pass urine in a sample pot. I found this so disheartening and soul destroying as I would of never let a patient have an inside procedure in them conditions. I understand the waiting, the shortage of staff and the time of year plus winter illness. But Patients dignity was a big deal when I worked there and it still should be. It’s hardly my fault I was in too much pain to be properly accessed. I’m sure and experienced doctor can do these things as I’m sure I am not the only one who would find examinations difficult because of pain. 🤷♀️