Shingles

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Getting worse

Hi my name is Heimo and I'm new here. Just wondered if anyone has had the same experience as me and what's helped. I was diagnosed with fibromyalgia and chronic fatigue syndrome/me 30 years ago when I was about 14. At that time there really wasn't any help offered besides, you need to rest. Throughout the years I've had times where I've felt better and been able to do more, sometimes for years, and times where I've been on bed rest for several months. The last few years I feel like my symptoms are getting worse. I have headaches almost constantly, pain in my joints and in all my typical fibro spots, back of arms around my bra line, upper back etc....is all getting worse and I feel like I'm constantly getting infections or feel like I'm trying to fight something off, I've had shingles twice this year also covid. Dr's of course have done all kinds of blood work and find nothing new but I feel like something is being missed. Any suggestions?

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Lonely not alone

I am so incredibly lonely. I am at a gathering with my siblings for the weekend. There are 5 out of the 9 of us here (2 deceased 2 chose not to come). So 10 of us total with SO's. Age range 56- 67. (I am 60). We are in beautiful West Virginia at a cabin/campground. Everyone has taken off for the day to do physical activities. Zip lining, hiking, fishing in kayaks, white water rafting etc. I am alone at the cabin.
I have fibromyalgia, which causes extreme fatigue and pain, limited movement due to neck and spine which results in limited mobility, and yes I am overweight! On top of all my regular daily pain and fatigue I experience, I also broke out with shingles on Thursday. The pain from that is unbelievable.

The reason why I am lonely is I feel like I never have fit in to my family. I have always been the "fat sister", and judged for that. I mean, literally I still get asked, " do you really need that" when or if I take a second helping. While nothing is said when someone else takes a second helping.

I do not look anything like my siblings. Not just facially, my body size , my lack of height, physical structure, even my hair and eyes are different then the rest of the family. I always have felt like an outsider that no one talks to.
When we were younger, it was all"you don't know what your talking about", just because my opinions were different. It still is like this, where I feel dismissed by everyone.
Last night while sitting by the fire everyone is talking, laughing etc. and I just sat and observed. I never feel like I can really share anything. People ask how u am doing, and I just respond, ok, because if I am honest and really tell them what is happening, I start getting the lose weight, exercise more, if you really wanted to you could do it. You are just not trying hard enough. All my life this is what it has been.
Do they think I like how this feels? To get left out of activity, conversation, gatherings? Do they ever take me into consideration when they are planning things? Literally the booked the Whitewater rafting for all 10 of us, and were surprised when I couldn't go. My DOCTOR told me I shouldn't go as I am risking further damage ony neck.
Like I said, I am lonely, not just alone.
Thanks for reading this. I needed to put it out into the universe. Maybe I will heal.

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#green# sick# with# shingles

Sick with shingles brought on by allergic reactions to a severe spider bite and whiplash from a car accident I’m a mess 🤢😢

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Faking it, until I make it

I awoke this morning after yet another night on the sofa with Binks, my wee dog. I have chronic insomnia and so much pain I can’t climb the stairs. I was in luck last night, the start of a meteor shower, so many shooting stars, who needs fireworks? A brief glimpse the Northern Lights and a cup of tea at 3 o clock.
I’ve just kissed my husband, Paul before he goes to work. Every morning I make his sandwich, yes he could do it himself and happily would, but, it’s my little way of paying all his kindness back.
Ever since I had my Covid vaccine 3 years ago I have a shingles type rash in my genital area. It’s so, so painful, it’s like having pants full of fire ants.

It’s been a very, very rough 4 month’s, I’ve fallen down the stairs 4 times, bruised myself very badly, I’ve had Covid, 2 very dear, very fit friends died, far too soon. One a super fit, marathon running woman, days from her pension, had a back ache, went to the doctor and was told she had stage 4 pancreatic cancer, she lived just 11 days after diagnosis. The other a lovely, gentle bear of a man died from heart failure. One 65, the other just 60. It made me reflect that despite this godawful disease of mixed connective tissue disease, fibro, Behçet’s and rheumatoid arthritis, I’m still here. I’m so in tune with my body and its numerous creaks and groans I’d notice change. I miss them and will plant them roses in my rose garden. I’ve planted too many over 3 years.
Today I’m taking Binks my puppy out to the forest, it’s literally just our my door. I use my wheelchair, she runs ahead. I hope to sew butterfly wings for my granddaughter Emma and make a unicorn hobby horse.
I’m grateful for every moment of every day, could it be better? Of course, but, it’s still pretty wonderful.

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Immunity

Hi all!
I’m new here, I’m 28 and newly diagnosed with ET (about 2 months now, if that). Im JAK2 positive and so far my platelet count is relatively low (around 700) so I’m only taking aspirin, but I have had high white cell counts previously.
I don’t have a great support team at the hospital and my GP dosent work weekends, because NHS.

But I have an urgent question I am hoping the mighty community might be able to help me with. We have a 6 year old in the house who woke up spotty… it’s the pox, without a doubt. She’s all over me like a… well chicken pox rash usually, so I’m not a low risk household member.

I had chicken pox at her age, I remember my grandmother trying to scrub the spots off me!

But do I need to get myself the shingles vaccination? IG? Do I need to be contacting my haematologist or GP for antivirals just incase? How worried should I be about my immune system? Or am I totally overthinking this?

Pic of my sisters gato for tax!
#MyeloproliferativeNeoplasms
#immunity #chickenpox

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Roofing Materials and Design Guidelines in LaPorte County

Choosing the right roofing materials and adhering to design guidelines are crucial steps for homeowners and builders in LaPorte County. The region's climate and architectural styles demand careful consideration to ensure durability, energy efficiency, and aesthetic appeal. Whether you're replacing an existing roof or constructing a new one, understanding these factors is essential to making informed decisions.

Types of Roofing Materials

Asphalt Shingles: These are the most common roofing material due to their affordability and ease of installation. They come in a variety of colors and styles, suitable for different architectural designs in LaPorte County.

Metal Roofing: Known for its longevity and durability, metal roofing is becoming increasingly popular. It offers excellent resistance to fire and extreme weather conditions, making it ideal for the region's climate.

Wood Shingles and Shakes: While less common due to fire concerns, wood shingles and shakes offer a natural, rustic look that complements certain architectural styles in LaPorte County.

Slate and Tile: These materials are prized for their elegance and longevity but come at a higher cost. They are suitable for homeowners looking to invest in a durable and aesthetically pleasing roof.

Design Guidelines

Architectural Harmony: The design of your roof should complement the overall architectural style of your home and surrounding buildings. Traditional styles like Colonial, Craftsman, and Victorian often dictate specific roofing materials and pitches.

Energy Efficiency: Consider the energy efficiency of your chosen materials. Light-colored roofing can help reflect heat, reducing cooling costs in summer, while proper insulation can enhance overall energy performance throughout the year.

Local Regulations: Familiarize yourself with local building codes and homeowner association guidelines that may dictate roofing materials, colors, and installation practices in LaPorte County.

FAQs

Q: How often should I replace my roof in LaPorte County?

The lifespan of your roof depends on the materials used and environmental factors. Generally, asphalt shingles last about 20-25 years, while metal roofing can last 50 years or more with proper maintenance.

Q: Are there restrictions on roofing materials in historic districts?

Yes, historic districts in LaPorte County often have strict guidelines to preserve the area's architectural integrity. Consult local authorities or preservation boards before making any decisions.

Q: What are the advantages of metal roofing in LaPorte County?

Metal roofing is highly durable and resistant to fire, wind, and hail, making it a practical choice for the region's variable weather conditions.

Q: How can I improve the energy efficiency of my roof?

Opt for materials with high solar reflectance and consider adding insulation to minimize heat transfer, thus reducing energy consumption for heating and cooling. www.reliableroofingonline.com/city/laporte

Choosing the right roofing materials and adhering to design guidelines not only enhances the curb appeal of your home but also ensures long-term protection and energy efficiency. By understanding the unique considerations of LaPorte County, homeowners and builders can make informed choices that meet both aesthetic and practical needs.

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I’m NOT new. I actually founded this group😉 I have been dealing w/ layers & layers of health challenges. Thoughts, prayers & good vibes appreciated!

It is so exciting to see all the new members joining the group and so many of you introducing yourself and sharing about your journeys. I wish I could be more active & better support you all right now, however I have had to really step back & focus on self care. Big props and thanks to our new co-leader Wendy Love for jumping in to acknowledge and support you all with empathy, care and sharing her great positive energy!

Dealing with layers of health challenges right now can be overwhelming for me sometimes. Some are relatively serious, some have me scared while waiting w/ lots of “not knowing!” I have had very regular health appointments (4-6/wk avg) since November, 1 minor surgery, am getting a biopsy this week, have had 2 ultrasounds, and MRI’s of my neck, shoulder & back which were injured from a bad fall when I also had my second concussion in less than a year . So I’ve been in PT 2x/week since last year then two months ago I was diagnosed w/ a rotator cuff injury🙁

I had debilitating migraines back in 2020 from Long Covid that were finally getting better from working w/ my Neurologist… trying monthly shots, infusions & Botox, finding the right meds - one daily & two as needed at onset, using a special tens unit, and an ice cap, taking OTC painkillers, nutritional supplements, etc. Then after the 1st concussion I went right back to 14-16 migraine days a month🙁

Due to my lack of appetite & insomnia from the concussions, plus the migraines, my doctors made major med changes for 8 months. The challenge was that most were psych meds, leaving me just hanging on emotionally through severe ups & downs as I stopped 2 meds, added 1 & changed the dosages of 3 others! After all of this I have just recently had the migraines decrease in frequency and intensity👍

From the concussions I have also dealt w/ brain fog, and memory & concentration issues that made writing so frustrating, which have also been better recently.

I think it really helps me that from a young age I watched my Dad model how to deal with life threatening health challenges w/ determination, dignity, unwavering positive energy, humor, and being a warrior & survivor who never gave up hope! Then I learned how to survive through decades of health challenges myself… inspired by my Dad’s example. I was diagnosed w/ Bipolar Disorder (1982); I have struggled parts of my life with addiction (almost 12 years sober); along those paths I contracted HIV almost 40 years ago then I was very blessed to survive the 80’s when AIDS was considered a death sentence. With my weakened immune system I dealt w/ many serious complications like Pneumonia, Shingles, Bronchitis, C-difficile, and Neuropathy that had me bedridden for 9 months & told I may never walk again…which I still deal w/ today on a lesser level and in 2020 I got hit with Covid real bad, so I've survived two pandemics.

Earlier this year my perspective about everything I’m dealing with currently really shifted. I came to the realization that all my health appointments were helping me heal, cope, and I believe that they will help me to return to being active and thriving again. The blessing of being on disability is that it enables me to focus on my health and self care. I have accepted that taking care of my health is a full time job! It can be very Physically & Emotionally draining, yet I remind myself regularly of all the blessings I DO have. I take solace in the fact that it could always be worse. I am very thankful to have a roof over my head, food on the table, and to have a strong support network of friends, family & health providers.

I have learned to accept my limitations, and adapt as I live & evolve in other ways like focusing on writing my memoir & other reflections, starting this MHC group and posting regularly. In the first 18 months I made over 80 posts from June 2021 through 2022! I will repost select ones starting soon.

Sending blessings, virtual hugs and positive vibes your way! Please send some back…

Moshe
@moshe222mhc

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selfcare Selflove #BipolarDisorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #Addiction #AddictionRecovery #RareDisease #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe

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Artist with serious nerve pain

I’m a Semi-Professional artist who paints with watercolors and oil paint. I love to paint especially outdoors, but I’m being deprived of this because of my health situation. A serious complication of shingles called PHN has brought me so much pain that I rarely have the desire to paint anymore. I see an excellent pain management doctor, but he has run out of answers. PHN is incurable and there’s virtually nothing that can be done to stop the pain.

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Artist in too much pain to paint

Post shingles pain is so debilitating that I am unable to paint on most days. On days that I am able to paint a little, it is literally a little. I wish I could do more because I have a number of paintings in progress that I’d like to finish. I love producing art that people like.