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    I'm new here!

    Hi, my name is LUVMYNYX2. I'm here because I've been suffering from Fibromyalgia and Syringomyelia for over 10 years. My day starts with waking up feeling very stiff in my whole body. It feels like Rega Mortis is setting in. I force myself up feeling tired all the time. My right arm is the most painful, a burning, stinging, scrapping feeling. Very tender to the touch. It feels like the way Shingles is described, except without a rash. Then there is pain around my ribs and pressure in the middle of my spine. It feels like a dagger is in my back. Sore breast too. This pain is every day all day. I work and drive all day and every bump in the road intensify the pain. I take Lyrica 200mg three times a day along with over 1100mg of acetaminophen and Ibuprofen. I get very little relief with that. Doctors have no idea how much hell I'm going through with this horrid pain. When the pain is more intense it raises my blood pressure to stroke range and I don't have high blood pressure. My treatment has been consisted of dry needles on top of my shoulders, vitamin injections in my hands were the worst treatments and very painful. I've had physical therapy 4 times. I was taking also units of Vitamin D three time a week and 2500 of Vitamin B12 3 times a day for pain and protection of my liver and kidneys. Doctor's are only concerned with not giving opioids to protect their licenses while I suffer but yet there is treatment for substance abusers still being served Meth to avoid the issues they go through, I'm not drug addicted, don't want to be high or out of my mind. I just want somebody somewhere to treat my pain so that I can live my life. All I do is work and off to the bed. I have to work with prices getting higher and higher. I'm only 67 and feel bad when my grandchildren want me to do things with them. I also have asthma and stays out of breath here lately. Thanks for listening.

    #MightyTogether #Fibromyalgia

    17 reactions 7 comments

    I'm new here!


    Hi, my name is Podiceps73. I'm here because I have been very active all of my life and enjoyed outdoors immensely. And now things have changed. And no one can put a finger on exactly what has happened- but a few people have their opinions which is all that they are.

    In January 2022, I received my booster injection for Covid 19. Within three days I developed a slight rash on my abdomen. Two days later it was confirmed that I had Shingles. I was 72 years old and was ignorant of the need to be double immunised and my Doctor (who is a dedicated physician) failed to see the warning on my health pages. I had Shingles twenty five years earlier so never thought of it recurring. The latest Shingles rash passed and no more skin pain occured. I had moderate pain and a rash of about 50mm diameter on my LHS abdomen and a few spots on the side and back.

    A fortnight later I was finding it difficult to speak normally and when I did speak I was so slow getting the right words out that it was becoming a serious concern to say the least. My movements had also slowed down and we described at as the speed of an old sloth- I was truly very very slow. I was checked out by the local Hospital ED and no identifiable issues found.

    Two or three weeks later I was referred to a Regional ED with suspected mini-strokes. I spent three nights in hospital and a thorough assessment occured including MRI of my brain. Still nothing found. One prior experience that I had was videod to show the Doctors just what was happening. I was sitting in a lounge chair reading and I had my legs crossed. I thought I will put them straight- in other words my intention was to lift my right leg off my left leg. Pretty simple procedure. We normally just automatically get on with it. But for some reason try as I might, I could not lift my right leg for even one millimetre- it was stuck there for about 15 minutes.
    By this time I was wondering if this was just a load of "it's all in your head" stupid! But I sensed that it was real. This became my new reality and I had repeated episodes.

    When I walked my legs felt as if they weighed a tonne and I could at best shuffle along; my arms also just hung heavily and required a bit of mental assistance to be lifted; my turning movements were slow just like a sloth- lifting my arms and legs required planning because my automatic functions had stopped working. I wondered if there was one part of my brain wanting to move and the other normally responding part failing to coperate.

    The next four months saw the arrival of new changes that suggest I have to get used to this long term. And still no one has an answer.

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    These are my precious furry companions. Do you have any fur companions that are your life?

    Wow this time I was able to post a picture and they're together. In foreground is Gracie 13 yo we've been together for 12 1/2 years. The black blob at the top left is Merlin 9 yo I adopted him 2 years ago. He was considered unadoptable bc he's a black cat, overweight (20) lbs & has feline asthma. He was 20 lbs when I adopted him and weights the same no matter what I try. These furry creatures are my life. Gracie is my cuddle bunny after we lost both her fursisters (within 4 months of each other) who she grew up with, she literally stayed with me for the times I just cried for days. I felt badly for her bc she would search for her sisters everytime we had a shared time like meals or nitenite treats. So I got Merlin. No background on him,he's vocal loves the sounds of kittens crying makes biscuits while trilling hated being picked up no cuddling. I Taught him to use an inhaler for his asthma attacks. He recently had mini stroke, his personality changed for the better. Now likes to cuddle, calls for Gracie when it's nitenite treats or if he sees me outside or it's 5 minutes past time to eat he meows pitifully. Thank goodness for them.
    #ADHD #Anxiety #Arthritis #Fibromyalgia #Gout #Osteoporosis #Osteopenia
    #congenital Kyphosis #PeripheralNeuropathy
    #Bastrop Syndrome
    #bone spurs
    #Reynards Syndrome
    #Shingles # Shoulder impingement Syndrome
    #spinal stenosis #Cataracts

    1 reaction 20 comments

    What's one thing you wish you knew when you were diagnosed with chronic pain?

    If you've been working through your own chronic pain for a while now – what would you tell someone who's just been diagnosed that you wish you had known?

    I'll start...

    I wish someone had told me to NEVER compare myself to others who were also sick. Pain management looks different for everyone. #ChronicPain #Neuropathy #neuralgia #ComplexRegionalPainSyndrome #Fibromyalgia #Nervedamage #MultipleSclerosis #Arthritis #Shingles #Migraines #BackPain #Cancer


    So much pain

    Once again I woke up nothing but shooting chronic pain on top of all this bone internal pain shingles have have got me burning inside and out I don't know if I can take it anymore #ChronicPain #Shingles #Suicide

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    Never let anyone tell you can't do?

    Over past years I've accomplish things I never did in my life? With nobody's help? This is one example? I've mile my own wood everting on here is hand carve? This is a rustic bird house? Shingles are singkes? There is easier ways but at this point I like to push my self to do things out of my comfort zone? It was a long project but I don't care? The flower pot are slivers of wood scrap from shingles.

    I've got 2 more house to make but taken a time out and I'm presently woodburning project free handed.

    Spent over 25 years in a kitchen with stupid amount of hours never had chance and now I'm pulling my self out of my depression and doing things that makes me feel good about my self?

    Thomas sent me a link did not understand that at first I said I did but I did not? I've had 4 appointment from therapy cancels one after another so I gave up in that and whemt back to link thomas sent me I've watch still was not for me but I whent on youtube and started how to stop being toxic? Those videos to who pay attention to what they say could be your ticket? Sabrima waibel she is great along with many more but I like her what she say its clear to me due to language berrier? I've had appointment with doctor?

    What I said is I've pull my self out of that therapy it was not helping? I said that screw with meds? He ask what are you doing? Well I said you tube 4hours daily? That's what I started with so know I'm at 3to 4 time weekly for 2 hours max unless I'm struggling? Man 😊😊 I'm coming out cause of me? With my own research with tips of thomas cause if he would not have sent me that? I would not be here today telling you guys this? I'm greatfull for that link Thomas I know you will see this thank you❤❤❤. I will fall there will be things that will push me into the deep end? Will I let it? I don't know? But I will pick my self up faster and faster has time goes?

    What I'm going to say is? Moving forward I will not let others tell me I can't do this? Tell me I will fail? Here is example I did my sister wedding few weeks ago? 115 ppl alone for most part I had someone doi f late night snack but app entree was done by me buffet style? I was 15 minutes late no big deal for my step back in kitchen? I'm a executive chef that did high numbers some time alone? I got drive for this big time and I did not lose my drive.

    Point of this is you can do it what ever you wamt ?

    I pray to the lord for some help for who is still struggling and to who hey pick your self up and go you can do this? I was lost to point anything I sent did not make senses? English is a problem but going back at work will help and with be taking a english grammar course.

    Thanks to all messages from padt .

    Hey we can?do you know that? If you don't hey you can do it just do it☺☺💪💪💪💪


    More Shingles

    Have been having Shingles outbreaks for the last 2 years…now on my 4th attack. So painful. Wonder if it is connected to Lymes?


    I'm new here!

    Hi, I’m new to The Mighty and look forward to hearing about your stories and sharing my story.






    Breaking the cycle

    Part 1 of 2 Growing up as a little girl, I wished for one thing my entire adolescence; a happy family. The kind that doesn’t hit, scream, or demean. The kind of family that doesn’t make you instantly cry as you step off the school bus because you know what hellish nightmare awaits you. I had given up hope at a young age that I would ever attain this dream. The endless cycle of #Abuse was bound to continue. I was certain I wasn’t going to make it to 18 anyway. I had no plan for adulthood, because why plan for something you will never obtain anyway?

    I was wrong. Not only did I end up making it to 18, but I also worked hard on an escape plan. I worked 60 hours a week cleaning vacation homes, mansions, camps, basically any building I could find, because that was all I was qualified to do. Every day while scrubbing toilets I would dream about no longer having to clean 14 houses in 12 hours. I wanted a desk job more than anything. One day, one of my clients took a chance on me and gave me my first office job helping her out at her business. This position led to another job, which eventually got me into healthcare, which I was always interested in. Those years I walked 2 miles to and from work, rarely had anything in the fridge and went some winters without heat, but at least I didn’t have to break my back and hands cleaning houses anymore. I struggled to find myself and still didn’t hold much value to my life. When I was 21 years old, I met a guy. He had the same sick sense of humor as I did, and little did I know, he was battling his own inner demons. The first time we spoke, it felt like I had known him all my life. Still, I told myself there was no way I was going to be in a #Relationships . I just was not wired for that. He similarly had the same thoughts and we decided it was best that way.

    Again, I was dead wrong. Our #Relationships was off before either of us knew what was happening and things moved quickly. In the back of my mind, I asked myself, how I could allow myself to trust someone like this. What was I doing? I’m not supposed to get married or have children. I don’t know how to have a healthy #Relationships , let alone raise another human being. I’m not even remotely equipped, but why can’t I picture myself without him? Why did he have to ruin my eternal plans of solitude where I would never again have to rely on someone else or allow them to let me down? Against my own judgement, I decided to take a chance on him, and myself respectfully. A couple years passed, and we were married. A year later and our daughter was born.

    Finally, for once, I was right. Still, we struggled as young couples do. We were two kids with a lot of #Trauma that was never unpacked and were a recipe for disaster. We also worked opposite shifts for many years so that one of us could be home with our daughter at all times, barely making it mentally and financially. After having our daughter, I was in severe pain constantly and extremely fatigued. I saw many doctors and had so many tests done with no explanation. I was 29 years old when I was finally diagnosed with an autoimmune disease #RheumatoidArthritis . #PsoriaticArthritis followed shortly after that and most recently I have acquired #Lupus . I’ve had about 15 surgeries, hundreds of infusions, injections, staph infections, influenza several times that almost killed me, #Shingles , and countless other ailments. As if that wasn’t enough, my husband has his own health struggles physically and mentally and so does our daughter.

    Throughout all of this, we somehow worked our way up at both of our jobs and on my 34th birthday in 2020 we finally did something wehad been actively trying to do and dreaming for the past decade. We purchased our dream house. It’s been over a year now since we moved in, yet we still find ourselves waking up almost every day and asking each other if this is a dream. How did two, once lost souls get here? Perseverance? Stubbornness? Luck? I’m sure there are plenty of people that wouldn’t’ understand how something as basic as a house and functional family could be considered “making it”, but for us it is everything.

    I’m still not sure how nearly 14 years have gone by since that day two dysfunctional souls met, but I constantly think about how much everything would be different if neither of us took a chance on life. I truly believe we could have easily ended up dead or in prison. Even worse, I’m afraid we even could have repeated our

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    Why Doesn't Anyone Care? #OCD #depression #panicdisorder #anxiety #menopause #emotionalabuse #mentalabuse #abuse #cptsd #obesity

    I'm so anxious when I can't use my phone, because I have no one in real life to talk to, to hang with. They can read my words, but what I'm feeling, only I can feel. People say I might need to do this or that, but they don't comprehend what I'm feeling. Yesterday, I had a nice waitress, but she said, "I have OCD, too!" which may be true, but you know how often you tell someone you have certain issues, and they claim to have them (or "have a little bit of" them). She said I might have to go to a shelter for just a little while and put my stuff in storage to get away from my boyfriend. I can't get it across to anyone what feeling the way I would in terms of ocd in a shelter and why putting more stuff in storage is a problem. My boyfriend pays for my storage right now. He usually pays it (and my Internet) when it's overdue.

    I didn't go out today, and I'm trying to stay awake. What is it about this room? I just get so drowsy, no matter how much sleep I get. I fell asleep early this morning looking for a GIF for an online friend. I sit up, and just start nodding off, leaning forward or falling back.

    The skin infection/shingles I have is still there. It's better, and the worst bump is mostly a small, scaly bump now, but I can still feel some bumps. I'm on my last day of meds for the conditions. I need to call a doctor Monday but they may not be able to take me for weeks.

    I need a new phone. I'm so anxious not being able to post when I need to talk. I also have other things I both need to do and want to do. I have to find a new psychiatrist very soon, because mine retires in June.

    I have more to say, but I'm having a hard time staying awake, despite sleeping for hours. It usually goes this way all around the clock when I stay in.

    Why doesn't anyone want to be my friend? Why doesn't anyone like me? Why am I alone in the world? Why does no one care?