Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

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Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
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Sanctified by Melanie R.

Sanctified by Melanie R.

My Lord, Our God, Our fortress
Stands watchful over all.

Rock of ages,
past and present,…
and time that’s yet to come.

His faithfulness forever
His plan for our lives complete.

Drawn up before the sands of time;
His blueprint plan for my life.

Many challenges rise
and through-
His loving grace abounds…

shielding us,
guiding us,
providing assurance!

Covering us through the night-
Sanctified In unity!

A shout of hopeful praise-
The bridge to salvation was laid

For God has summoned His faithful,
His chosen ones to follow.

God, our strength, and shield;
In love and faith, our spirits healed

With God our Father,
We embrace the future,
cast aside all our fears.

Only through the love and life of Christ-
we’re sanctified!

Thank you Jesus!

You saved my life!

It was You all the time-

I give you my life!

Sanctified!

Sanctification:
the process by which believers are set apart for God's purpose, made holy, and conformed to the image of Jesus Christ.

It is an ongoing work of the Holy Spirit in the life of a believer, enabling them to live a life that honors and glorifies God.

The process of sanctification involves:

Regeneration:
At the moment of salvation, the Holy Spirit regenerates a believer's heart, giving them a new nature that desires to please God.

Justification:
Through faith in Jesus Christ, believers are declared righteous before God.

Transformation:
As believers continue to grow in their faith, the Holy Spirit works to transform their thoughts, desires, and actions to align more closely with God's will.

#InsideTheMighty #PrimaryImmunodeficiency #MitochondrialDisease #MightyPoets #MightyTogether #CheckInWithMe #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #ChronicIllness #

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Story of when I went to a residential program in Florida

So like I remember this one girl that was working at the center I was in who was really friendly. She told me to make a wish and it will come true. I think it might actually be coming true but to be honest I should have made a better wish because my life right now is like I am barely living. It would mean the absolute world to me if I got more wishes that can be granted so I can live a more happy fulfilling life. I have always been a spiritual person and I really need so many more wishes to come true. I hope I do get more wishes from someone that will be granted. I am not telling ya’ll what I wished for haha #CheckInWithMe #Disability #MentalHealth #Depression #MajorDepressiveDisorder #Mania #ComplexPosttraumaticStressDisorder #SchizoaffectiveDisorder #Schizophrenia #Psychosis #Bipolar2 #BipolarDepression #BipolarDisorder #Anxiety #PTSD #BorderlinePersonalityDisorder #GeneralizedAnxietyDisorder #ObsessiveCompulsiveDisorder #PostTraumaticStressDisorder #Selfharm #PostpartumDisorders #SuicidalIdeation #SuicidalThoughts #Suicide #ChronicIllness #ADHD #Addiction #Autism #AutismSpectrumDisorder #AnorexiaNervosa #BingeEatingDisorder #AspergersSyndrome #AnkylosingSpondylitis #ChronicFatigueSyndrome #Arthritis #Cancer #BreastCancer #Caregiving #CerebralPalsy #CrohnsDisease #EhlersDanlosSyndrome #Endometriosis #Epilepsy #Dysautonomia #Grief #Stroke #WarmWishes #MightyTogether #ChronicInflammatoryDemyelinatingPolyneuropathy #Fibromyalgia #Gastroparesis #Loneliness #CongenitalHeartDefectDisease #ChiariMalformation #FunctionalNeurologicalDisorder

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Til’ We Meet Again by Melanie R.

Til’ We Meet Again by Melanie R.

Our hearts come together.
somber reflections,
As we mourn lives lost-
and what used to be,
a remembrance replaying on our heartstrings.

The pain of grief cuts so deep,
And bleeds each tear we cry…
So hard to be here in this moment to have to say goodbye.

For we know even in the depths of this sorrow,
Jesus holds them close,
holds hope for tomorrow.
For death is not the final end-
Not goodbye, til we meet again.

Lord promises restoration,
redemption, all things new.
A life of peace.
Hopeful mercy new.

And death no longer can take away
in the midst of grief;
sorrowful pain.
May we find strength to rise again;
to celebrate their lives again!

Holding onto hope's embrace,
And trust in God's unfailing
grace.

(In honor of Marge and Tom -
We love you!
Til we meet again!)

#Grief #MightyMoment #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicIllness #ChronicPain

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Fire! By Melanie R.

Fire! By Melanie R.

Forged in the fire for impact.
The test before the throne through the wilderness…into the wonder.
Stay faithful!!
Not to breakdown,…
but breakthrough.
Pass your test!
Take your place in the kingdom.
Holy fire to awaken!
We rise!
We endure!
We over come as pure gold!
Revived for glory!
Broken chains of shame!
Shaking thundering voice,
declaring that this will birth me!!!

The crushing that unlocked the oil-
To burn through the darkness,
and burn through the night.
Consecration-
and burned in our bones,
for His will, and processing light!

Fire!

Power clarity!
Marked by glory!
Reflecting the spirit in praise!
Fire!

1 Peter 1:6-8
In this you greatly rejoice, though now for a little while, if need be, you have been grieved by various trials, that the genuineness of your faith, being much more precious than gold that perishes, though it is tested by fire, may be found to praise, honor, and glory at the revelation of Jesus Christ.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #MightyTogether #ChronicPain

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Chosen Soldier by Melanie R.

Chosen Soldier by Melanie R.

I am a chosen soldier
in the army of The Lord
Presence,
Spirit lifted
Sovereign Word,
my trusted sword.

I put on Ephesians armor;
Found ready,
as we stand.
Together He battles with us,
fight for good, and Glory land.

The breastplate of righteousness
adorned across my chest
Protects and helps guide us.
My heart source brightly cleansed.

The helmet of salvation
Covers and Keeps watch.
Shielding darts,
casts down arrows,
diffuses negative thoughts.

Washed robes of White.
Mercy’s priestly gown.
Anointed Oil of Righteousness,
Lamb Sheared without a sound.

Unblemished armor,
Clothed in strength.
Mercy’s knight-
Shield of faith;
provides a fortress to
Reflect His Holy Light!

Covered by King’s glory.
Truth belt buckled in.
Following His Story,
fueled this fire from within.

Yielded body
Willing forge.
Faithful soldier;
Unsheathed sword.

Marching onward
torrential battles…
crushing giants forThe Lord-

Designed to knock down strongholds,
Conquer fear, and destroy doubt.
Anoint us as we travel,
steadfast martyrs for the crown.

To God be the Glory!

#InsideTheMighty #MightyPoets #PrimaryImmunodeficiency #MightyTogether #MitochondrialDisease #ChronicPain #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy
#RareDisease

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The Shepherdess Keeps Watch By Melanie R.

The Shepherdess Keeps Watch
By Melanie R.

In darkness deep and shadows cold;
shepherdess stands, brave and bold.
A chosen instrument of the Lord,
strengthened,
guided
by His Holy Word.
Thought of like David, last, but not least.
God’s proven strength.
Power to teach.

A guardian now,
for His flock;
for His kin.
Holy Spirit’s light flowing from within!

Faithful prayer and intercession,
She’s trained for this intention:
To watch and care,..
trust His way
The Lord's own sheep…
His legacy.

Filled with Spirit’s Holy Might.
From dawning day, through darkness;
She helps cover the night-

The shepherdess keeps watch-

No enemy gets by…

Leads us to pastures green,
calm waters clear-
But she’s ready to fight!

He carries us in His loving arms,
Protecting-
keeping His sheep from harm.

Isaiah 40:11
He will feed His flock like a shepherd.
He will gather His lambs with His arms;
And carry them in His bosom.

John 10:11-12
I am The Good Shepherd!
The Good Shepherd lays down
His life for His Sheep.

#MightyPoets #MitochondrialDisease #SjogrensSyndrome #AutoimmuneImmunodeficiency #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain

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So needed today.
Today marks 5 days post-IVIG.
A mentally taxing week always follows subsequent to infusions for me; but Day 5–Day 5 is the absolute worst.
I’m exhausted, migraining, nauseated, every flare flaring, body so heavy, yet so weak. && Even though I practice, & preach, being kind to yourself—It’s easy to lack positivity, feeling hopelessly defeated when you don’t feel good.
#ChronicInflammatoryDemyelinatingPolyneuropathy

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Soldier by Melanie R.

Soldier by Melanie R.

I am a chosen soldier
in the Army of The Lord.
Presence,
Spirit lifted,
Sovereign Word-
my trusted sword.

I put on Ephesians armor
Found ready,
as we stand.
Together He battles with us,
fight for good, and glory land.

The breastplate of righteousness
adorned across my chest,
protects and helps guide me.
My heart source brightly cleansed.

The helmet of salvation
Covers, and keeps watch.
Shielding darts,
casts down arrows-
diffuses negative thoughts!

Washed robes of white ;
mercy’s priestly gown.
Anointed Oil…
Lamb Sheared-
no sound.

Unblemished armor,
Clothed in grace.
Mercy’s knight
holds shield of faith!

Covered by King’s glory.
Truth’s belt buckled in,
Following His Story
Shoes of readiness tread again!

Yielded body
Willing forge,
Faithful soldier-
Unsheathed sword.

Marching onward
torrential lands
crushing giants,
heads in hand!

We’re designed to knock down strongholds,
Conquer fear,
destroy doubt.
Lord, anoint us as we travel,
steadfast martyrs for the crown.

Thank you Lord for equipping us with the tools to endure!
Stay Strong Mighty Warriors!

Ephesians 613
Therefore, take up the whole armor of God.
That you may be able to stand in the day of evil, and having done all you can, stand firm.

2 Corinthians 10 3-4
For though we walk in the flesh we do not war according to the flesh. For our weapons of warfare are not carnal, but mighty in God for pulling down strongholds.

Isaiah 53:7
He was oppressed and afflicted, yet he did not open his mouth; he was led like a lamb to the slaughter, and as a sheep before its shearers is silent, so he did not open his mouth.

1 Peter 1:18-19
You know that it was not with perishable things such as silver or gold that you were redeemed from the empty way of life handed down to you from your ancestors, but with the precious blood of Christ, a lamb without blemish or defect.

1 Corinthians 5:7
Christ, our Passover lamb, has been sacrificed.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #PosturalOrthostaticTachycardiaSyndrome #IrritableBowelSyndromeIBS #PrimaryImmunodeficiency #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe

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Crimson by Melanie R.

Crimson by Melanie R.

Crimson red-
against the snow.
My heartache bleeds,
and nearly froze!

I turn to you
and say a prayer,
release me Lord,
from pain
and spare…
my heart from this deep suffering…

the ache,
the hurt…,
my mind
wandering.

Crimson red,
down and blue.
White of snow,
thoughts of you.

Buffalo blizzard…
A frozen cry;
of time felt lost,
and days gone by.

I reach for you;
long to hold you….
Still feel your love around.
It wasn’t just the ordinary,
pure love is what we found.

Although time goes;
will never fade.
Swirls like wind,
still falls like rain.

Our hearts hold onto memories.
Days up,
then down,
like swaying trees.

Crimson red,
Hearts of truth.
Cold of snow,
Thoughts of you.

Red cardinal singing
love’s song of faith.
Holy Water springing,
by pearl o’heaven’s gate
.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.

Consecrated,
Soul guided.
As He too heard our cries,
He knows of all the suffering,
every groaning,
every sigh.

Crimson red
the blood was poured;
robes washed white-
Calvary brought forth!

So shout. Hallelujah!”
and say, AMEN!
to Our Sovereign Lord,
and most earnest friend!

Heart crimson red;
Lord’s Promises True.
He carried The Cross…
and message for you!

John 16:22
Now is your time of grief, but I will see you again. And you will rejoice, and no one will take your joy away.

Romans 8:26
In the same way, The Spirit helps us in our weakness. We do not know what we ought to pray for, but The Spirit Himself intercedes for us through wordless groans.

Psalm 145:18
The Lord is near to all who call Him.
To all who call on Him in truth.

Mark 9:3
His clothes became dazzling white, whiter than anyone in the world could bleach them.

Revelation 7:14
These are they that have come out of great tribulation, they have washed their robes and made them white in the blood of the lamb.

#MitochondrialDisease #HypothyroidismUnderactiveThyroidDisease #RareDisease #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #CheckInWithMe

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