Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Hi, my name is Jackie. I'm here because I found an IG account that brought me here after sharing about this community. Living with CIDP/chronic illness is so lonely sometimes, I can't wait to explore more here on the Mighty.

#MightyTogether #Anxiety #Depression #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy

I’m not sure how to keep going on some days. I’m usually an upbeat person but lately I just want to cry. The burning pain and not being able to walk is taking its toll on me.
#ChronicInflammatoryDemyelinatingPolyneuropathy

Looking to share knowledge and supports with each of you!

Hi, my name is Loubylou42. I'm here because

#MightyTogether #Depression #Migraine #RheumatoidArthritis #Fibromyalgia #CysticFibrosis #infflamatorydieseas #Psoriasis #tumoronthepenialgland #RheumatoidArthritis #ChronicInflammatoryDemyelinatingPolyneuropathy

Hi, my name is GatorHater. I'm here because
I began falling in 9/2020 progressed rapidly and now bed bound 90% of time. Loss muscle mass, fine motor skills, ability to walk, care for self independently. Have constant numbness, dead weight heaviness, neuropathy, constant feeling of being squeezed like I have a body cast on from chest to pelvis. At first dx with CIDP after a year of IVIG no change actually worse as time progressed. Then dx w Conversion Disorder/FND by a different dr but my original neurologist says no. Now I’m recently dx w Hereditary Spastic Paraplegia but I just don’t know anymore. So I’m here to research and advocate in hopes of true dx and treatment. 🤨#MightyTogether #HereditarySpasticParaplegia