Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Create a new post for topic
Join the Conversation on
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
1.6K people
0 stories
311 posts
About Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Show topic details
Explore Our Newsletters
What's New in Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Chosen Soldier by Melanie R.

Chosen Soldier by Melanie R.

I am a chosen soldier
in the army of The Lord
Presence,
Spirit lifted
Sovereign Word,
my trusted sword.

I put on Ephesians armor;
Found ready,
as we stand.
Together He battles with us,
fight for good, and Glory land.

The breastplate of righteousness
adorned across my chest
Protects and helps guide us.
My heart source brightly cleansed.

The helmet of salvation
Covers and Keeps watch.
Shielding darts,
casts down arrows,
diffuses negative thoughts.

Washed robes of White.
Mercy’s priestly gown.
Anointed Oil of Righteousness,
Lamb Sheared without a sound.

Unblemished armor,
Clothed in strength.
Mercy’s knight-
Shield of faith;
provides a fortress to
Reflect His Holy Light!

Covered by King’s glory.
Truth belt buckled in.
Following His Story,
fueled this fire from within.

Yielded body
Willing forge.
Faithful soldier;
Unsheathed sword.

Marching onward
torrential battles…
crushing giants forThe Lord-

Designed to knock down strongholds,
Conquer fear, and destroy doubt.
Anoint us as we travel,
steadfast martyrs for the crown.

To God be the Glory!

#InsideTheMighty #MightyPoets #PrimaryImmunodeficiency #MightyTogether #MitochondrialDisease #ChronicPain #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy
#RareDisease

(edited)
Most common user reactions 18 reactions 5 comments
Post
See full photo

The Shepherdess Keeps Watch By Melanie R.

The Shepherdess Keeps Watch
By Melanie R.

In darkness deep and shadows cold;
shepherdess stands, brave and bold.
A chosen instrument of the Lord,
strengthened,
guided
by His Holy Word.
Thought of like David, last, but not least.
With strength and courage;
Power to teach.

A guardian now,
for His flock;
for His kin.
Holy Spirit’s light flowing from within!

Faithful prayer and intercession,
She’s trained for this intention:
To watch and care,..
trust His way
The Lord's own sheep…
His legacy.

Filled with Spirit’s Holy Might.
Covers in darkness;
Covers the night.
The shepherdess keeps watch-

No enemy gets by.

For like a shepherd,
God is near,
To lead us to pastures green,
calm waters clear-
He carries us in His loving arms,
Protecting-
keeping His sheep from harm.

Isaiah 40:11
He will feed His flock like a shepherd.
He will gather His lambs with His arms;
And carry them in His bosom.

John 10:11-12
I am The Good Shepherd!
The Good Shepherd lays down
His life for His Sheep.

#MightyPoets #MitochondrialDisease #SjogrensSyndrome #AutoimmuneImmunodeficiency #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain

(edited)
Most common user reactionsMost common user reactions 7 reactions 1 comment
Post
See full photo

So needed today.
Today marks 5 days post-IVIG.
A mentally taxing week always follows subsequent to infusions for me; but Day 5–Day 5 is the absolute worst.
I’m exhausted, migraining, nauseated, every flare flaring, body so heavy, yet so weak. && Even though I practice, & preach, being kind to yourself—It’s easy to lack positivity, feeling hopelessly defeated when you don’t feel good.
#ChronicInflammatoryDemyelinatingPolyneuropathy

Most common user reactions 1 reaction
Post
See full photo

Soldier by Melanie R.

Soldier by Melanie R.

I am a chosen soldier
in the Army of The Lord.
Presence,
Spirit lifted,
Sovereign Word-
my trusted sword.

I put on Ephesians armor
Found ready,
as we stand.
Together He battles with us,
fight for good, and glory land.

The breastplate of righteousness
adorned across my chest,
protects and helps guide me.
My heart source brightly cleansed.

The helmet of salvation
Covers, and keeps watch.
Shielding darts,
casts down arrows-
diffuses negative thoughts!

Washed robes of white ;
mercy’s priestly gown.
Anointed Oil…
Lamb Sheared-
no sound.

Unblemished armor,
Clothed in grace.
Mercy’s knight
holds shield of faith!

Covered by King’s glory.
Truth’s belt buckled in,
Following His Story
Shoes of readiness tread again!

Yielded body
Willing forge,
Faithful soldier-
Unsheathed sword.

Marching onward
torrential lands
crushing giants,
heads in hand!

We’re designed to knock down strongholds,
Conquer fear,
destroy doubt.
Lord, anoint us as we travel,
steadfast martyrs for the crown.

Thank you Lord for equipping us with the tools to endure!
Stay Strong Mighty Warriors!

Ephesians 613
Therefore, take up the whole armor of God.
That you may be able to stand in the day of evil, and having done all you can, stand firm.

2 Corinthians 10 3-4
For though we walk in the flesh we do not war according to the flesh. For our weapons of warfare are not carnal, but mighty in God for pulling down strongholds.

Isaiah 53:7
He was oppressed and afflicted, yet he did not open his mouth; he was led like a lamb to the slaughter, and as a sheep before its shearers is silent, so he did not open his mouth.

1 Peter 1:18-19
You know that it was not with perishable things such as silver or gold that you were redeemed from the empty way of life handed down to you from your ancestors, but with the precious blood of Christ, a lamb without blemish or defect.

1 Corinthians 5:7
Christ, our Passover lamb, has been sacrificed.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #PosturalOrthostaticTachycardiaSyndrome #IrritableBowelSyndromeIBS #PrimaryImmunodeficiency #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe

(edited)
Most common user reactions 23 reactions 7 comments
Post
See full photo

Crimson by Melanie R.

Crimson by Melanie R.

Crimson red-
against the snow.
My heartache bleeds,
and nearly froze!

I turn to you
and say a prayer,
release me Lord,
from pain
and spare…
my heart from this deep suffering…

the ache,
the hurt…,
my mind
wandering.

Crimson red,
down and blue.
White of snow,
thoughts of you.

Buffalo blizzard…
A frozen cry;
of time felt lost,
and days gone by.

I reach for you;
long to hold you….
Still feel your love around.
It wasn’t just the ordinary,
pure love is what we found.

Although time goes;
will never fade.
Swirls like wind,
still falls like rain.

Our hearts hold onto memories.
Days up,
then down,
like swaying trees.

Crimson red,
Hearts of truth.
Cold of snow,
Thoughts of you.

Red cardinal singing
love’s song of faith.
Holy Water springing,
by pearl o’heaven’s gate
.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.

Consecrated,
Soul guided.
As He too heard our cries,
He knows of all the suffering,
every groaning,
every sigh.

Crimson red
the blood was poured;
robes washed white-
Calvary brought forth!

So shout. Hallelujah!”
and say, AMEN!
to Our Sovereign Lord,
and most earnest friend!

Heart crimson red;
Lord’s Promises True.
He carried The Cross…
and message for you!

John 16:22
Now is your time of grief, but I will see you again. And you will rejoice, and no one will take your joy away.

Romans 8:26
In the same way, The Spirit helps us in our weakness. We do not know what we ought to pray for, but The Spirit Himself intercedes for us through wordless groans.

Psalm 145:18
The Lord is near to all who call Him.
To all who call on Him in truth.

Mark 9:3
His clothes became dazzling white, whiter than anyone in the world could bleach them.

Revelation 7:14
These are they that have come out of great tribulation, they have washed their robes and made them white in the blood of the lamb.

#MitochondrialDisease #HypothyroidismUnderactiveThyroidDisease #RareDisease #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #CheckInWithMe

(edited)
Most common user reactions 6 reactions 2 comments
Post

Dealing with medical issues

Last year 25th of Feb I was in for an emergency toxic megacolon opp already in septic shock, total colectomy was done. In Aug last year dr. did a hartman reversal ( small intestine link to rectum)

Feeling much better but scared of getting sick again because I was a whole month in hospital.

Dec 2022 I was diagnose with CIDP ( chronic inflammation demylation polyneuropathy). On treatment IVIG every 6 weeks.

This year 18th of Nov my Neurologist diagnose me with PI ( primary immunodeficiency). What I life chancing experience. Now I must get IVIG every 4 weeks for the rest of my life.

Still learning new thing everyday.

I am 45 years of age.

But my parents do not understand what am I going through and do not understand the new choices I must make to stay healthy.

Difficult to except new changes and choices.

And I am dealing with mental health issues aswell because of my medical issues.

So my dad's opinion is the dr's does not do their jobs, but he do not understand what I was dealing with.

So I am depressed and anxious and struggle to cope and have PTSD aswell.

I know their are people with a lot more on their plate.

But I feel so alone in all of this.

(edited)
Most common user reactionsMost common user reactions 40 reactions 8 comments
Post
See full photo

Peaked by Melanie R.

Peaked by Melanie R.

I looked to the hills where great mountains stand.
For all of my help is from God’s righteous hand.
They reach to the heavens as they do declare,
the signs of His wonder,
His glory, and care.

The height of His Majest-
My Rock,
cornerstone.
Atop there with Him,
I’m sheltered…
I’m home.

The Rock that was thrown down;
rejected,
then rolled…
now holds me together,
shows mysteries unknown.

Mt. Tabor’s prominence,
Mt. Carmel stood tall,
proving there’s One God
that reigns over all.

In His holy mountain,
with Him by my side,
in hearing His word
growing faith-
I abide.

The gush of the water that came from the stone,
Rained living water;
restoring me whole.

Psalm 121:1-2
I lift my eyes to the hills. From where does my help comes from? My help comes from The Lord who made heaven and earth.

1 Corinthians 10:4
All drank the same spiritual drink. For they drank from the spiritual rock that followed them, and the rock was Christ.

Isaiah 41:10
…I will strengthen you and help you; I will uphold you with my righteous right hand.

Stay strong Mighty Warriors!
God bless and be with you all on your health journey!

If you enjoy my poems and inspiration please be sure to check out my YouTube channel:
Melanie’s Melody for more of God’s message in suffering.

#ChronicIllness #RareDisease #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #PosturalOrthostaticTachycardiaSyndrome #ChronicPain #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease #InsideTheMighty #MightyPoets #MightyTogether #CheckInWithMe

Most common user reactions 13 reactions 5 comments
Post
See full photo

Bells by Melanie R #ChronicIllness #ChronicPain #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #MightyPoets #InsideTheMighty

Bells by Melanie R.

Bells vibrate in their tolling;
the toll upon its frame.
Spirit sings,
the tone not muffled
by harsh suffering.

It swung to hit,
and deaden sound;
to take away its song.
Clapper’s ding-
piercing pitch,
would strike the headstock strong.

Though hung up in a belfry,
and yanked on by a rope.
The one that had no slack to give,
the one that had no hope.

The pulling down,
forced side to side…
Jolted,
worn down bell.

It didn’t crack,
stayed in rhythm-
swayed til it was still.

The bell’s yoke
heavy laden,
reverberate on rounds.
Called out to my savior,
He heard,
my spirit found!
Prepared 10,000 angels,
Golden bells of faithful noise,
the blowing of the shofar,
a shout of grateful poise.

Lord’s musical procession;
Instruments in hand.
Conducts His Holy orchestra…
Bell’s song will ring again.

(edited)
Most common user reactions 6 reactions 7 comments
Post
See full photo

Words by Melanie R.

Words by Melanie R.

Ink to paper-
Pen to hand;
to carry your message
from wisdom within.

Holy transcription;
scroll raveled in soul.
Aligned with anointing
true wholeness in goal.

Circling.
Fine dotting.
In motion each curve.
Pressing the fountain,
exalted in word.

Sealed with your signet
ascribed for divine.
Preserved in the message,
a seeking-
to find.

True meaning in purpose,
His loving embrace.
With each line completed,
With each word that’s placed.

A journey of knowing,
A song sung in parts.
Transcends human senses
with spirit and heart.

Intwined in the melody,
Composer and song.
Dancing in rhythm-
A harmonic sound.

Pirouette through His timing,
careen under grace.
Knowledge unfolding
of God’s masterpiece.

Audible writing
The ink set to page.
Called forth for this mission,
bright spotlight on stage.

Crossed over the T’s-
Rounded the Oh’s…
Took on the suffering
with message of hope.

(These stories, and many more on my YouTube channel: Melanie’s Melody!)

God be with you all!

#RareDisease #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #HypothyroidismUnderactiveThyroidDisease #ChronicIllness

(edited)
Most common user reactions 9 reactions 5 comments