clot

Join the Conversation on
9 people
0 stories
1 post
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices

    Sorry for the long post, kind of an intro, kind of a seeking support, mostly a vent/rant, not really a way to TLDR this though

    In my process of trying to get pregnant (3.5years) we went to an infertility specialist, she had me go for some testing, where they found I have a blocked left fallopian tube, and my ovaries had endometriomas. I had been trying for over a decade to get someone to take my period pain seriously and agreed to have them go in remove the endometriosis. They preliminarily deduced that it likely had spread to other organs.

    Background: I have 1 runted kidney, scoliosis, lordosis, a bulging L4-5 disk, partially bulging T1-2 and T2-3, chronic unknown cause migraines, bells palsy (initial occurance in May), unknown cause muscle/nerve issues in my left leg, left lower back, and left fore-arm. I am hyper-mobile (31yo and can stick both feet behind my head when my body is not otherwise in pain) and for 2 years I have suspected a connective tissue disorder. my belief is ethler danlos syndrome, for which I got laughed out of the geniology office after missing the test for it by 1 point, and she didn't run any others.

    They scheduled my procedure as out patient on the 30th, laprascopic, as would normally be scheduled. With the concern of a connective tissue disorder (my gyno was the first to take that concern seriously) she ordered an echo of my heart to check for aortic problems. They found some minor (like barely detectable) excess fluid on the heart, but nothing else was wrong, my new cardiologist cleared me for surgery.

    My surgery went ahead as scheduled Sept 30th, they cleared the endometrioma from my right ovary, the outside of my uterus, the outside of my bladder, and a small bit on my abdominal wall. They did not detect any on my fallopian tubes or GI tract. They drained the endometrioma from the left ovary prepping to remove it at some point, but did not get to removing it because of course, something went wrong.

    My left illiac artery developed a tear and started pumping blood into my abdominal cavety. They sliced me open belly button to groin and sutured the tear, the sutures tore, then they got the next set to stick. They closed me up and sent me to recovery. Where they decided to also keep me overnight for observation.

    Overnight I developed a thrombosis (clot) and had to be taken for emergency surgery the next day. By mid-day I'm under the knife again. This time they had ambulanced me to the other location for the hospital which had the trauma 1 center with the imaging equipment in the same room as the surgery theater. My father (an anesthesiologist and intensivist) said this single decision probably saved my life.

    (see comment for the rest)

    #Infertility #Pregnancy #Surgery #Endometriosis #clot #stent #almostdied #NearDeathExperiences #Depression #MentalHealth #Anxiety #frustration #Insomnia #Scoliosis #lordosis #bulgingdiscs #nervepain #BellsPalsy

    2 people are talking about this