near death experiences

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    Community Voices

    I post a lot on my reddit account but here's a recent update haha! It's been a rough week for me but I'm happy to still be here! 😁

    <p>I post a lot on my reddit account but here's a recent update haha! It's been a rough week for me but I'm happy to still be here! 😁</p>
    8 people are talking about this
    Community Voices

    Physical pain from depression

    <p>Physical pain from <a href="" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7600553f33fe991123" data-name="depression" title="depression" target="_blank">depression</a></p>
    10 people are talking about this
    Community Voices

    Weather & Health analogy

    <p>Weather & Health analogy</p>
    Community Voices

    Trigger warning ahead:

    I have Hidradenitis suppurativa, Stage 3. It is a chronic autoimmune disease with no cure. It has been untreated my whole life. It started when I was about eight years old. I am thirty-five now. I am terrified and humiliated to tell my story. But it needs to be heard.

    My groin and thighs are covered with boils. My father would restrain me and stab thumb tacks into the boils before he raped me. I have never asked a doctor about them. They are a constant pain, making it difficult to walk. Nothing helps. They never go away. Most of my past partners would act disgusted by me and tease me and shame me about my HS.

    I finally broke down this week trying to figure out what else is possibly wrong with me. Or at least what is causing my chronic fevers and plethora of other horrible symptoms. They look awful. When I came across the HS diagnosis online, I was shocked. I had always just brushed them off as bad ingrown hairs that I needed to simply endure the pain from. I was so thankful to find out that it is not from being unhygienic. I could not go see my PCP because of my fever and COVID-19. So, she said to get to urgent care asap. So, I went, and they sent me to the ER immediately.

    The whole team was female. The doctor told me not to be ashamed or feel dirty. And she said she was proud of me for taking this big step in "coming out" about this horrible disease and the trauma. Because of the depth of the skin scarring and lesions I need reconstructive surgery and skin grafting. I am so scared. I would rather have any other part of me under the knife again. I do not know how to face this alone.

    I also have Rheumatoid Arthritis, Trigeminal Neuralgia, Occipital Neuralgia, Crohn’s Disease, Fibromyalgia, Ankylosing spondylitis, EDS, CPTSD, an inoperable brain tumor, and Endometriosis. I just had emergency surgery that saved my life and removed two of my infected organs last month. And two years ago, I had brain surgery. I am so tired. I cannot handle another surgery on top of the others I need this year. I am also a fulltime student. And my grandfather just passed away from COVID-19. The immensity of my grief is endless.

    The shame I have felt my whole life over this is unbelievable. Just the condition alone without the trauma is enough for anyone to feel enormous shame. The doctor said I must do my best to stop self-shaming and saying that it is gross, that I am gross.
    My rheumatologist is starting me on Remicade chemotherapy infusions in a week. We hope it will lesson the HS, RA, and Crohn’s to a bearable level. I do not want to be alone anymore. I just want hope and I have none left.

    #HidradenitisSuppurativa #HS #HidradenitisSuppurativa #Surgery #braintumors #PTSD #Trauma #Trauma #TriggerWarnings #CheckInWithMe #alone #Abuse #ChildhoodTraumaSurvivors #Chemotherapy #COVID19 #Grief #Grief #NearDeathExperiences

    22 people are talking about this
    Community Voices

    Has anyone received severe anxiety after a near death experience? And if so how do you deal with it?

    <p>Has anyone received severe <a href="" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce5f00553f33fe98d1b4" data-name="anxiety" title="anxiety" target="_blank">anxiety</a> after a near death experience? And if so how do you deal with it?</p>
    5 people are talking about this
    Community Voices

    Sorry for the long post, kind of an intro, kind of a seeking support, mostly a vent/rant, not really a way to TLDR this though

    In my process of trying to get pregnant (3.5years) we went to an infertility specialist, she had me go for some testing, where they found I have a blocked left fallopian tube, and my ovaries had endometriomas. I had been trying for over a decade to get someone to take my period pain seriously and agreed to have them go in remove the endometriosis. They preliminarily deduced that it likely had spread to other organs.

    Background: I have 1 runted kidney, scoliosis, lordosis, a bulging L4-5 disk, partially bulging T1-2 and T2-3, chronic unknown cause migraines, bells palsy (initial occurance in May), unknown cause muscle/nerve issues in my left leg, left lower back, and left fore-arm. I am hyper-mobile (31yo and can stick both feet behind my head when my body is not otherwise in pain) and for 2 years I have suspected a connective tissue disorder. my belief is ethler danlos syndrome, for which I got laughed out of the geniology office after missing the test for it by 1 point, and she didn't run any others.

    They scheduled my procedure as out patient on the 30th, laprascopic, as would normally be scheduled. With the concern of a connective tissue disorder (my gyno was the first to take that concern seriously) she ordered an echo of my heart to check for aortic problems. They found some minor (like barely detectable) excess fluid on the heart, but nothing else was wrong, my new cardiologist cleared me for surgery.

    My surgery went ahead as scheduled Sept 30th, they cleared the endometrioma from my right ovary, the outside of my uterus, the outside of my bladder, and a small bit on my abdominal wall. They did not detect any on my fallopian tubes or GI tract. They drained the endometrioma from the left ovary prepping to remove it at some point, but did not get to removing it because of course, something went wrong.

    My left illiac artery developed a tear and started pumping blood into my abdominal cavety. They sliced me open belly button to groin and sutured the tear, the sutures tore, then they got the next set to stick. They closed me up and sent me to recovery. Where they decided to also keep me overnight for observation.

    Overnight I developed a thrombosis (clot) and had to be taken for emergency surgery the next day. By mid-day I'm under the knife again. This time they had ambulanced me to the other location for the hospital which had the trauma 1 center with the imaging equipment in the same room as the surgery theater. My father (an anesthesiologist and intensivist) said this single decision probably saved my life.

    (see comment for the rest)

    #Infertility #Pregnancy #Surgery #Endometriosis #clot #stent #almostdied #NearDeathExperiences #Depression #MentalHealth #Anxiety #frustration #Insomnia #Scoliosis #lordosis #bulgingdiscs #nervepain #BellsPalsy

    2 people are talking about this
    Community Voices

    After dying

    I was in a horrific car accident July 23, 2018. I died at the crash scene, but they were able to resuscitate me.

    You know what I remember being asked in that moment?
    How did you love?
    Not who, or why, or what, just how.

    There is not a single thing that I can think of even if I live a billion more years that feels as good as death does. I know that sounds terrible, and I get that. But it’s such a unique feeling, and it’s very calm and peaceful.
    #CarAccident #dying #NearDeathExperiences #Afterlife #Howdidyoulove

    5 people are talking about this
    Meghan Bayer

    What Goes Through Your Mind During a Near-Death Experience?

    Near death experiences (NDEs)… This term probably paints a picture of a panicked individual, maybe conscious, maybe not, or maybe somewhere in between. Panicking is a natural physiological response to adrenaline, and some experience a generalized panic at least for a second. You’d probably think everyone stuck between life and death thinks about all the things they haven’t done. In my experience and in the NDEs of the people I’ve spoken to, the things they haven’t done actually take the backseat to how their families and friends will be affected by their death. Yes, that whole life-flashing-before-your-eyes phenomenon is real. I’ve experienced it many times before. I live with over 20 life-altering conditions. The conditions themselves are not considered life-threatening, but the neurological, cardiac, respiratory and metabolic complications are life-threatening and have nearly taken me out a number of times. In fact, according to medicine, I shouldn’t be alive. But what medicine says doesn’t matter to me. What matters to me is what God says. I’m sure many chronic illness warriors who have cheated death a number of times can relate. I got a little sidetracked there. The point is yes, when I had my first NDE, my life flashed before my eyes as I was being artificially ventilated, and at newly 16 years old, I worried I wouldn’t get to drive a car and get my license, attend my junior/senior prom, graduate high school, go to my dream college, see my younger brother grow up and graduate high school, have my dad walk me down the aisle to marry my Prince Charming, have a family of my own and live into old age. Depending on the age of the individual, the life goals may be different, but the foundation for all of this is still the same. Almost everyone still has things they want to accomplish in life. One thing many people don’t mention is that they are most concerned about how their loved ones will cope with their loss. Nowhere are these feelings more prominently than now, as I lie in the neurological ICU on the verge of needing intubation. Whenever I find myself in precarious situations like this, it’s not about me. I worry about my mom, dad, aunts, cousins,  grandma and close friends. Parents often tell their children, “I don’t know what I’d do without you.” “I couldn’t live if something happened to my *insert family member here*.” Patients with conditions that have caused them to experience NDEs think about these situations often because many times we are walking the thin line between life and death. I think in some ways, the sick individual gets the “closure,” but the remainder of the world has to figure out how to move on and remember. Everyone, healthy or not, old or young, will experience death some day. Some may have NDEs. Please know, the point of this article isn’t to be depressing. After the recent loss of a fellow warrior and friend, I thought about our last conversation and felt this was a myth that needed to be debunked. Death is often portrayed as such a selfish, “all-about-me” experience, when in fact, that’s not the case for everyone. We want to hear your story. Become a Mighty contributor here . Getty image by Wavebreakmedia