Congenital Diaphragmatic Hernia

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What It’s Like to Experience PTSD as the Parent of a Medically-Complex Child

What It’s Like to Experience PTSD as the Parent of a Medically-Complex Child

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1y

What It’s Like to Experience PTSD as the Parent of a Medically-Complex Child

Nothing can fully prepare you for the day you receive a medical diagnosis for your child. I still remember ours as if it were yesterday. I was sitting in a room, excited to see my baby on the ultrasound screen, while simultaneously creating a grocery list in my head and talking about dinner plans for [...]

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heart 3y

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Hi everyone, today one year has completed of my operations. Last year on same day angioplasty has done of mine i.e one cp stent has fitted in my arota. then my all friends, girlfriend left me only my parents has stood with me . I cried for some days but god did to me..but now i m confident that God has done everything for right..when i found this app ,then i found that I'm not alone . So please who wanna talk to me.. please talk... #heart problem # congenital #CongenitalDiaphragmaticHernia #CongestiveHeartFailure #InvisibleDisability #invisible diseases #CHDAwarenessWeek #Diabetes #BornThisWayFoundation #Achondroplasia #CoronaryHeartDisease #Depression #Anxiety

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3y

Lonely and tired #CongenitalDiaphragmaticHernia #AloneWithMyThoughts #Love #Relationships #singleparenting #MedicalProfessionals #Cancer

Been a single parent it’s not easy I feel tired and lonely

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When My Baby Received a Prenatal Diagnosis of CDH

When My Baby Received a Prenatal Diagnosis of CDH

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Congenital Diaphragmatic Hernia

6y

When My Baby Received a Prenatal Diagnosis of CDH

This is what I would tell myself on the day my baby was diagnosed with a congenital diaphragmatic hernia (CDH): There is nothing — absolutely nothing — I can say to you today to ease your pain. Even if I could race back to you in a DeLorean, I know today you just have to [...]

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Dear CDH Moms Who Have Cried in the Car Alone

Dear CDH Moms Who Have Cried in the Car Alone

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Congenital Diaphragmatic Hernia

6y

Dear CDH Moms Who Have Cried in the Car Alone

Dear CDH moms who have cried in the car alone: You are not alone. I know what it is like to fax the forms, and read the books (or skim them), and make the appointments and google. I know what it is like to sit in the meetings — and then as soon as that [...]

Story

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8y

When a Fellow NICU Dad Made a Request I’ll Never Forget

It was around day 16 of my son’s 52-day stay at the children’s hospital. He was recovering from his congenital diaphragmatic hernia (CDH) surgery. CDH is a life-threatening birth defect that occurs in one in 2,000 to one in 5,000 live births. It is a condition that occurs during pregnancy when a hole in the diaphragm allows abdominal organs [...]

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mother holding her newborn daughter

mother holding her newborn daughter

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Congenital Diaphragmatic Hernia

9y

When We Received a Life-Changing Diagnosis for Our Daughter

At 19 weeks pregnant, we went in to our anatomy scan excited to find out if we were having a boy or a girl. We found out but were also devastated with the news that our unborn daughter had a congenital diaphragmatic hernia (CDH). Our doctor told us there was a strong chance she would [...]