Life is passing me the bill. I’m going for a cardio catheterization on Aug 21. The cardiologist has me on four drugs, 😣 opening up the door to more illnesses, aka side effects. Anyhow, life is passing me the bill and my proverbial bank account was meant to be for walking through greener paths. Oh, well… #CoronaryHeartDisease
I go to quite a few doctors offices. Some may seem to be a little over zealous with your condition, checking everything and anything for you to get a proper diagnosis. But then there are the doctors that try to make you seem like you don't have anything wrong with you. I had that experience today.
I have #SystemicLupusErythematosus and it entails a ton of medications to help keep your pain under control plus keep your immune system from attacking your healthy cells and organs. I have spent five long years with many doctors trying to figure out the best medications to help me to live day by day. In the last year we found a mixture that works. There has never been any discrimination from any of my physicians. There was understanding of my pain and a willingness to help.
Recently I have been having heart palpitations and there was a concern since I had been on Prednisone for quite a long time. I was referred to a cardiologist and everything seemed to work out. I got in quick and they began with a holter monitor. Showed signs of some stress on my heart. Next a stress test. Results showed some ischemia. They already put me a beta blocker and an antiarrhythmic so I knew that when I saw him for our follow up that he was going to tell me to just maintain my medicine and see me in 6 months.
Today I went in to see him and waited much longer than usual. Short staffed. After being called in a very nice nurse came in to get some info from me and to assist the doctor. When the doctor came in he looked at my stress test results and proceeded to tell me how I am a healthy young woman. I tilted my head and said "with some issues" and then everyone giggled. He blew it off and started looking at my chart. He noticed that my TSH levels were off and said that I should get with my PCP to get my thyroid checked again. It could have something to do with my palpitations. Okay. No problem.
That's when he notices all the medications I'm on. " Why are you on Ultram, Flexeril, and Lyrica? Is there REALLY that much pain?"
"Yes. I've had Lupus for five years."
"Is there REALLY???....................." With a direct look into my eyes and a little crooked smile.
As he turned I looked towards the nurse who had rolled her eyes and covered her face in what looked like embarrassment.
At that point I agreed to contact my PCP and kept quiet through the rest of the appointment. I think I was in a bit of shock.
He left and she turned towards me. "I hate it when people don't understand pain. That was rude of him to question you like that. It was like he was accusing you of lying." she said as she finished putting in the notes in the computer. I told her I'm not faking it and that I thought maybe I took it wrong but I'm glad she heard it too.
I'm still in shock. I'm definitely not going back to him. I think it's time for a second opinion.
This last month has been a roller coaster ride for me. My RA has been giving me fits and to top it off my electrolytes keep getting out of wack. I’m on Simponi infusions every 8 weeks, have hyperthyroidism, osteoporosis, osteoarthritis, PsA, thrombocytopenia and heart problems. I’m fused from C-3 to T-1 and L3 to S1. I need a hip replacement and that is not possible due to my severe osteoporosis so my rheumatologist is starting me on Prolea my next infusion at the end of June. I just had an injection in my left hip to try to help alleviate some of the pain but the general anesthesia caused all kinds of havoc with my heart and a trip to the ER for chest pain. I have had two stints placed and still have a 50 % blockage in the LAD that they did not stint because it needed to be @ 70%. I’ve finally been able to reverse the electrolyte imbalance which helped with some of the spasms and bone pain but the anxiety I have from all the above is going to throw me completely over the edge lately. I have two bad heart valves. I’m so tired of being sick and tied and not being able to do the things I want to do. I’m a retired ER/ ICU nurse so idle time has never been in my vocabulary. I’m going insane here. I haven’t posted in a long time I’m more of a reader and do pray for each of you daily. I just feel so lonely here. Just needed to vent that’s all. I appreciate your time if you read this far 😁 #Anxiety
#Hip bone on bone
Hi everyone, today one year has completed of my operations. Last year on same day angioplasty has done of mine i.e one cp stent has fitted in my arota. then my all friends, girlfriend left me only my parents has stood with me . I cried for some days but god did to me..but now i m confident that God has done everything for right..when i found this app ,then i found that I'm not alone . So please who wanna talk to me.. please talk... #heart problem # congenital #CongenitalDiaphragmaticHernia #CongestiveHeartFailure #InvisibleDisability #invisible diseases #CHDAwarenessWeek #Diabetes #BornThisWayFoundation #Achondroplasia #CoronaryHeartDisease #Depression #Anxiety