Coronary Heart Disease

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Coronary Heart Disease
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    Community Voices
    Community Voices
    Community Voices

    The bill

    Life is passing me the bill. I’m going for a cardio catheterization on Aug 21. The cardiologist has me on four drugs, 😣 opening up the door to more illnesses, aka side effects. Anyhow, life is passing me the bill and my proverbial bank account was meant to be for walking through greener paths. Oh, well… #CoronaryHeartDisease

    5 people are talking about this
    Community Voices

    Pain discrimination at Doctor's office

    I go to quite a few doctors offices. Some may seem to be a little over zealous with your condition, checking everything and anything for you to get a proper diagnosis. But then there are the doctors that try to make you seem like you don't have anything wrong with you. I had that experience today.

    I have #SystemicLupusErythematosus and it entails a ton of medications to help keep your pain under control plus keep your immune system from attacking your healthy cells and organs. I have spent five long years with many doctors trying to figure out the best medications to help me to live day by day. In the last year we found a mixture that works. There has never been any discrimination from any of my physicians. There was understanding of my pain and a willingness to help.

    Recently I have been having heart palpitations and there was a concern since I had been on Prednisone for quite a long time. I was referred to a cardiologist and everything seemed to work out. I got in quick and they began with a holter monitor. Showed signs of some stress on my heart. Next a stress test. Results showed some ischemia. They already put me a beta blocker and an antiarrhythmic so I knew that when I saw him for our follow up that he was going to tell me to just maintain my medicine and see me in 6 months.

    Today I went in to see him and waited much longer than usual. Short staffed. After being called in a very nice nurse came in to get some info from me and to assist the doctor. When the doctor came in he looked at my stress test results and proceeded to tell me how I am a healthy young woman. I tilted my head and said "with some issues" and then everyone giggled. He blew it off and started looking at my chart. He noticed that my TSH levels were off and said that I should get with my PCP to get my thyroid checked again. It could have something to do with my palpitations. Okay. No problem.

    That's when he notices all the medications I'm on. " Why are you on Ultram, Flexeril, and Lyrica? Is there REALLY that much pain?"

    "Yes. I've had Lupus for five years."

    "Is there REALLY???....................." With a direct look into my eyes and a little crooked smile.

    As he turned I looked towards the nurse who had rolled her eyes and covered her face in what looked like embarrassment.

    At that point I agreed to contact my PCP and kept quiet through the rest of the appointment. I think I was in a bit of shock.

    He left and she turned towards me. "I hate it when people don't understand pain. That was rude of him to question you like that. It was like he was accusing you of lying." she said as she finished putting in the notes in the computer. I told her I'm not faking it and that I thought maybe I took it wrong but I'm glad she heard it too.

    I'm still in shock. I'm definitely not going back to him. I think it's time for a second opinion.

    #Pain #CoronaryHeartDisease #Lupus #PainMedication #Disability #Spoonie #ChronicPain #ChronicIllness #Fibromyalgia #hypothyroidism

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    Community Voices

    This last month has been a roller coaster ride for me. My RA has been giving me fits and to top it off my electrolytes keep getting out of wack. I’m on Simponi infusions every 8 weeks, have hyperthyroidism, osteoporosis, osteoarthritis, PsA, thrombocytopenia and heart problems. I’m fused from C-3 to T-1 and L3 to S1. I need a hip replacement and that is not possible due to my severe osteoporosis so my rheumatologist is starting me on Prolea my next infusion at the end of June. I just had an injection in my left hip to try to help alleviate some of the pain but the general anesthesia caused all kinds of havoc with my heart and a trip to the ER for chest pain. I have had two stints placed and still have a 50 % blockage in the LAD that they did not stint because it needed to be @ 70%. I’ve finally been able to reverse the electrolyte imbalance which helped with some of the spasms and bone pain but the anxiety I have from all the above is going to throw me completely over the edge lately. I have two bad heart valves. I’m so tired of being sick and tied and not being able to do the things I want to do. I’m a retired ER/ ICU nurse so idle time has never been in my vocabulary. I’m going insane here. I haven’t posted in a long time I’m more of a reader and do pray for each of you daily. I just feel so lonely here. Just needed to vent that’s all. I appreciate your time if you read this far 😁 #Anxiety
    #Hip bone on bone

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    Community Voices

    16 people are talking about this
    Community Voices

    Time Neve remains one year completed of operations weak at that time..

    InvisibleIllness #heartconditions #heart defect #chronicilless #congestiveheartfailure #coronaryheartdisease #anxiety #deperession #alone #deafness time Neve remain same ,

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    Jae Cobb
    Jae Cobb @jaecobb

    Why Heart Disease is Ignored in the Black Community

    According to the CDC , African Americans aged 18-49  are twice as likely to die from heart disease . According to the American Heart Association , heart disease and stroke are the number one killer of women, and stroke disproportionately impacts African American Women. 49% of African American Women aged 20 and older have heart disease but only one in five believes she is at risk . Why are these numbers important? Why does this matter? We have a real problem in the African American community that is not being addressed, and that problem is heart disease . Heart disease disproportionately impacts people of color, yet our rates of being diagnosed and adequately treated are lower than our peers in other races. The sad reality is that many are living with this and facing mortality at younger ages because of being misdiagnosed or under treated, thus causing more lifelong issues and severe cases of heart disease . Why aren’t we diagnosed and why aren’t we treated? 1. Medical bias 2. Access to care 3. Lack of resources 4. Ignoring signs and symptoms/signs and symptoms presenting differently There are often many more reasons that are unveiled as time goes on, but these are the most common. Medical bias– believe it or not, this is a thing. Doctors are still making judgements based on a patient’s race, appearance or socioeconomic status. Unfortunately that may lead to a delay in care or being treated differently or even having a delay in their care. Many doctors are still being taught in medical school that Black and Brown patients don’t feel pain or don’t have certain signs and symptoms, and tthey take that bias with them into the exam room and thus it reflects in diagnosis. Due to this, unfortunately the patient suffers. Many patients are blown off or don’t have life saving tests run because doctors often do not believe them. The result? Early mortality from conditions that are easy to manage. This has to stop. We need to reverse what is being taught to new doctors and get them to understand that all patents need to have an equal chance at care and treatment. Many African American and other minority patients do not have adequate access to quality healthcare. Therefore, many of their medications may not be purchased or picked up and taken, checks can go unattended, symptoms overlooked and therefore get out of hand, amongst other things. We need to make healthcare affordable and accessible to all. That way we can reduce the mortality of a very manageable condition. Until we can make healthcare affordable and accessible, we will continue to see high mortality rates in minorities. Many African Americans do not have the resources necessary to manage their conditions. That could be financial resources, healthcare, familial support or anything else necessary in order to effectively and efficiently manage their conditions. It is essential to have support when managing any chronic illness , especially one that is as evolving as heart disease. Since heart disease is more prevalent in low income communities, it is hard for those who live in those areas sometimes to afford the necessary medications to maintain their conditions, as well as the co-pays to see their doctors that manage their conditions. Furthermore, they may not have the grocery stores or access to foods that are heart healthy that lead to reduced blood pressure readings and cholesterol levels, as well as help to reduce weight and other factors that contribute to heart disease such as high blood sugar and A1C levels as seen in Diabetes . This is why we need to pump additional resources into communities to support health living and eating. Many folks ignore or put off signs and symptoms of heart disease because “They don’t have time” or they feel like it is nothing. Thus, they don’t get checked out until it is too late. Or we will go to the doctor and the signs and symptoms are misdiagnosed or ignored and then when things are diagnosed it is too late. In this world of hustle and bustle and doing too much, it is easy to overlook symptoms or even misreport things to a physician. In that same breath, it has happened where physicians have overlooked things, misdiagnosed patients and blatantly ignored signs and symptoms and a patient has not pushed in the physician to investigate or run tests. I know this from experience. I went years without being accurately medicated and diagnosed until I kept having episodes of near- syncope and my heart rate rising uncontrollably. Finally, I pushed my doctor to investigate which landed me with a specialist who knew what he was looking for and then I was treated accurately. It was a great day when I got the treatment I needed. Since then things have gone smoothly! However, this is not always the case and many folks either live with their conditions in silence for years or even decades, or unfortunately succumb to their symptoms and they don’t have to. We have to do better at advocating for our care and making it normal to take the time to get checked out. Overall, heart disease is a very manageable condition. However, we are doing a poor job of managing it as a developed nation. If we are serious at reducing the risk and mortality from this condition, we need to address the barriers to care, increase resources, raise awareness and not make it a taboo subject to receive care and slow down. Let’s work together to make the necessary changes in our communities…it will not only save lives but improve the quality of life.  

    Community Voices
    Community Voices

    Lipid quantity and quality

    People with type 2 diabetes or type 1 diabetes with insulin resistance commonly experience a special type of hyperlipidemia known as “diabetic dyslipidemia” characterized by high triglycerides (>300mg/dL), low HDL (<30mg dl),="" and="" a="" qualitative="" chang="" [ }to the LDL particles. This qualitative change allows the LDL to carry more free cholesterol, increases their susceptibility to oxidation, and consequentially promotes the formation of plaques in the arteries, or atherosclerosis.

    Because of this structural change in the LDL, dyslipidemia in diabetes significantly increases the risk for both coronary heart disease and peripheral arterial disease. In fact, cardiovascular risk often exists years prior to an actual type 2 diagnosis due to the metabolic syndrome (HTN, insulin resistance, hyperlipidemia, abdominal obesity) that often precedes diagnosis.

    Lipid control is therefore paramount to decrease morbidity and mortality in diabetes. Diet and exercise are the first-line treatment, but statin therapy is also effective and often necessary. The ADA recommends high intensity statin therapy in all PWD diagnosed with cardiovascular disease as well as PWD between 40-75 years with diabetes and additional risk factors. Moderate intensity statins are recommended for all PWD above age 40, even if no additional risk factors are present.

    Statins have been known to have some significant side effects; most commonly, muscle cramping, fatigue, headaches, and digestive discomfort. Please weigh these risk/benefits with your clinician. 

    I find it SO interesting that insulin resistance can actually change the structure of LDL. There are certain diets that can help mange insulin resistance. The most popular is a whole food, low fat diet which aims to reduce insulin resistance by cutting out animal fats. This diet has helped me decrease my TDD by 1/3! 

    Ultimately, risk reduction is complicated, multi-factorial, and should be discussed with your clinician. 

    #Diabetes #DiabetesType2 #DiabetesType1 #ChronicIllness #hyperlipidemia