Achondroplasia

Create a new post for topic
Join the Conversation on
Achondroplasia
439 people
0 stories
102 posts
About Achondroplasia Show topic details
Explore Our Newsletters
What's New in Achondroplasia
All
Stories
Posts
Videos
Latest
Trending
Post

What Is Dwarfism?

What Is Dwarfism?
Dwarfism is a condition that is characterized by short stature or an adult height of under 4 '10." With that being said, usually Dwarfism can be due to genetic or medical factors, with two main types: disproportionate or uneven body parts and proportionate or body parts that are in proportion but small. Last but not least, while there's no cure, treatments for Dwarfism often includes orthopedic surgeries, growth hormone therapy or treatments for specific types, and physical therapy and occupational therapy as well as adaptive tools and equipment like wheelchairs, walkers, and braces to improve quality of life, though newer medications show promise for some forms like Achondroplasia.

Post
See full photo

✨Memoir Spotlight✨—“A Little Me” by Amy Roloff

“God doesn’t make mistakes.” For Amy Roloff, star of TLC’s hit reality show Little People, Big World, her father’s words would repeatedly serve as an anchor, reminding her of her inherent worth and purpose, whenever feelings of insecurity and inadequacy surfaced and threatened to overwhelm her. In “A Little Me”, Amy shares what it was like growing up with #Achondroplasia #Dwarfism , how she struggled to overcome obstacles both physical and emotional—navigating the average-size world as a little person, dealing with a serious illness as a young girl, bullying, and issues of body image and unachievable beauty ideals—while learning, as we all must, to accept herself for who she is. Finally allowing herself to be vulnerable enough to open up to others, she learned that it’s worth risking possible rejection for a chance at genuine relationships. Ultimately, it was Amy’s faith, as well as the support and encouragement of her community of loving family and good friends, that saw her through the dark times and allowed her to realize her greatest dreams and beyond. Amy’s memoir is an inspiring and at times heart-wrenching account of resilience and the strength of the human spirit to overcome seemingly insurmountable obstacles.

📚 Happy reading! ❣️

#themightyreaders #Dwarfism #Achondroplasia #IrritableBowelSyndromeIBS

Most common user reactions 3 reactions
Post
See full photo

How do you pace your energy levels throughout the day?

Symptom management when you live with achondroplasia can be challenging, especially when you only have so much energy to work with on any given day.

What is the most effective way you’ve found to measure how much energy you have to complete your daily tasks? How do you delineate your responsibilities if needed or slow down the pace?

#Achondroplasia #RareDisease #Dwarfism #Caregiving #Parenting #ChronicPain #SleepApnea

Most common user reactions 2 reactions
Post
See full photo

What do you feel is the hardest part about living with achondroplasia?

Living with achondroplasia can be really challenging, and oftentimes looks different for everyone.

What do you feel is the hardest part about living with achondroplasia? What do you wish others better understood?

#Achondroplasia #RareDisease #Dwarfism #Caregiving #Parenting #ChronicPain #SleepApnea

Post
See full photo

Unlock the MAGIC of Confidence!

Unlock the MAGIC of Confidence! Join The MAGIC Foundation to find resources for navigating Achondroplasia and Skeletal Dysplasia at

www.magicfoundation.org

#Achondroplasia #SkeletalDysplasia #Achondroplasia

(edited)
Most common user reactions 1 reaction
Post
See full photo

Share an important, informative, or memorable part of your achondroplasia journey.

Each of our health journeys are multifaceted, complex, and unique — but that doesn’t mean we’re alone in what we go through. Those shared experiences are what make us Mighty! 💪

If you feel comfortable, share a part of your achondroplasia journey that has stuck with you and made a lasting impact — no matter if it’s a positive or negative mark.

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #ChronicPain #SleepApnea

Most common user reactions 1 reaction