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    Always a Price to Pay

    Me: There's always a physical price to pay every time I go out.

    My Therapist: We should talk about your use of "always." Does it always happen?

    Me: Sometimes the price is worth it, but it happens every time.

    MT: It is really always?

    Me: I understand what you're saying, but yes. It always happens.

    MT: Track that, and we can discuss it next time.

    Me: I can, and I have. But it always happens.

    MT: I think you'll find it's not always.

    Me: (Goes out. Pays Price.) I'll track that, and we can discuss it next time.

    #ChronicIllness #ChronicPain #RareDisease #Erythromelalgia #MentalHealth #Depression #Anxiety #MedicalProfessionals #Therapy #Fibromyalgia

    106 reactions 22 comments

    How Do You Feel?

    Do you ever have the sense that you need to "feel a certain way" when you visit your doctor, therapist, or nurse practitioner? Like, if you don't answer their questions in way they expect that they'll judge you, stop treating you, not give you the treatment you need, or do something to make you feel worse? If so, how do you deal with it? Any examples would be welcome. Even admitting to this might make someone feel vulnerable. Thank you for your replies.

    #ChronicIllness #Depression #Anxiety #MedicalProfessionals

    5 reactions 1 comment
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    This affirmation came up after another disappointing appointment with the nurse practitioner at my pain doctor. I've been fortunate to have excellent medical care, but this NP is new to me. She hasn't been communicating well, especially not listening. Maybe I need to communicate better too by more clearly describing my needs. Today's appointment was with a substitute because my NP is having surgery. I'm praying all goes well with her and her pain is low during her recovery. #ChronicPain #ChronicIllness #MedicalProfessionals

    11 reactions 2 comments


    I’m waiting to see a rheumatologist but it’s taking awhile. The doctor that recommended I see a dermatologist thinks I may have an autoimmune disorder. After a lot of research and reading about it.. I do believe it’s a good possibility.

    While I’m waiting is there anything I can do in the meantime? I’ve hit another fatigue spell mixed with some depression. My joints and body aches. I’ve got no energy and sleepy. It seems to hit every few weeks hardcore but there isn’t a day goes by im not tired. It’s a lot of pushing myself. I take a multivitamin and magnesium for supplement. Any suggestions for coping mechanisms until I can see the doctor would be greatly appreciated. ❤️ #AutoimmuneDisease #ChronicFatigue #Fatigue #Depression #TheMighty #Undiagnosed #Anxiety #BipolarDisorder #MedicalProfessionals #Pain

    21 reactions 13 comments