I have a moment to myself. That's it, a moment. And I am ok and happy with that.
They were both diagnosed with cancer at 1 month old. They've probably spent more time in the hospital than at home. They've endured chemotherapy, ostomy bags, seizures, feeding tubes, deadly infections, uncontrollable blood pressures, septic shock, life support, countless examines under anesthesia, and their fight is ongoing.
I get it. People think it's a violation of their rights to wear a mask. However, I feel that if I don't wear a mask, its violating the rights of my twins to LIVE. It's violating the rights of others who also wear a mask and want to LIVE. #live
See, whenever our twins are at the hospital (even before Pandemic),#dcotors always gowned up. ALWAYS Head to toe. And, it kept our twins safe. Safe from those tiny microorganisms that could kill them. I know that, because I witnessed it first hand. So if my precious twins' lives were saved by a #mask , then I will proudly wear a mask, for them and everyone else.
We have been under #quarantine for months. It's nothing new to us. Its familiar ground. They gone through grueling #Chemotherapy , and their blood counts would sit at zero for weeks. So, we would stay at home. Now, we keep them at home to protect them from the Corona Virus. They've been through so much already, I cannot imagine them suffering in a hospital again.
Now, the virus has caused their treatments and appointments to be delayed or canceled. My husband's employment has gone from 7 days a week, to virtually zero. We are scared to bring them into a community setting.
They are strong and they are brave. I am proud that they are mine. @OakleyTwinsJourney
#Retinoblastoma #ChildhoodCancers #twins #Anxiety #Depression #wearamask #RareDisease #sisters #Health #MedicallyFragile #Toddlermom #Deafness #cancerresearch #Awareness #Safety