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    Community Voices

    Covid Isolation Day ???

    <p><a href="https://themighty.com/topic/corona-virus-covid-19/?label=Covid" class="tm-embed-link  tm-autolink health-map" data-id="5e678dcff3e6f44cb2d93fd4" data-name="Covid" title="Covid" target="_blank">Covid</a> Isolation Day ???</p>
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    Community Voices

    Covid Quarantine Activities

    <p><a href="https://themighty.com/topic/corona-virus-covid-19/?label=Covid" class="tm-embed-link mighty-link tm-autolink health-map" data-id="" data-name="Covid" title="Covid" target="_blank">Covid</a> Quarantine Activities</p>
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    Community Voices
    Community Voices

    Holiday Blues and lonliness

    <p>Holiday Blues and lonliness</p>
    6 people are talking about this
    Community Voices

    How has ableism in our society been highlighted for you this year during quarantine/lockdown?

    Do you feel a "That's what I'm saying?" sentiment when people who have been involuntarily working-from-home for months now--people who have been in lockdown/socially distancing--are talking about how miserable they are to not be able to leave the house and work full-time and lead a productive life? I think we're all doing the right thing. I'm just saying it's not glamorous. Binge watching and stress eating get pretty old, pretty fast. I feel like people may be beginning to understand disability, am I being too optimistic or is our ableism showing?

    #Lockdown #quarantine #Disabled   #Ableism

    3 people are talking about this
    Community Voices

    Working From Home

    Hey guys, Happy Friday. Let me start this out by saying that I’m so very grateful to able to work from home, that I still have a job during a time that many don’t. Also, I’m not complaining, I’m just stating a fact in what I’m about to say...

    When I “clock out” for the day, I don’t know what to do with myself. Like, now what? Any ideas? #wfh #quarantine #help #Anxiety #dontknowwhattodowithmyhands

    4 people are talking about this
    Community Voices
    Community Voices

    Trouble mind

    I feel sick. Quarantine is making me feel ill. I feel so many feelings yet nothing at the same time. QI feel like i'm unable to express what I'm feeling to my family and my friends, I can't ask for help. Because I do not know what I am feeling and what's the problem that I am having but I feel like everyday worst.
    Accidentally I cut my meds and didn't take it back and now I'm regretting but don't know where to start. I don't even know if coming back to my meds will solve my problems. I just feel like quarantine existed I also buttled up all my feelings with it and now I'm a mess. I'm also missing a lot my friends... 😔 #quarantine #MentalHealth

    Community Voices


    I have been diagnosed with BPD for over a year now. I have physically been in strict quarantine since March due to high risk family. I havent been inside any form of place, only my house. This means I’ve had to social distance with my boyfriend which has increased my fear of abandonment. In the beginning, I felt invisinsible. It felt great to be in solitude and get to know myself again, but here we are, 8 months later and I just feel defeated. I feel so alone, severely depressed, and my moods keep shifting at a rapid rate. I’m not sure what to do. Only being able to have therapy on webcam, (which I am grateful for) has still been difficult. I feel like I cant get my emotions to be shown fully through camera. I’m losing my mind, I feel at a loss. I’m empty, I’m full off of depression and rage.

    Has anyone else been in strict quarantine? How have you been coping through this hard time? #BorderlinePersonalityDisorder #quarantine #COVID19 #BPD

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    Community Voices

    Our Twins Have Cancer. Here's Why We Wear A Mask #Cancer

    I have a moment to myself. That's it, a moment.  And I am ok and happy with that.

    Our two year old twin girls, Ella and Eve both have a rare aggressive #Cancer .  They not only share the same DNA, but the same Cancer.   Everyday is an uphill battle. But, they are my heroes. #heroes

    They were both diagnosed with cancer at 1 month old.  They've probably spent more time in the hospital than at home.   They've endured chemotherapy, ostomy bags, seizures, feeding tubes, deadly infections, uncontrollable blood pressures, septic shock, life support, countless examines under anesthesia, and their fight is ongoing.  

    I get it. People think it's a violation of their rights to wear a mask. However, I feel that if I don't wear a mask, its violating the rights of my twins to LIVE. It's violating the rights of others who also wear a mask and want to LIVE.  #live

    See, whenever our twins are at the hospital (even before Pandemic),#dcotors  always gowned up. ALWAYS Head to toe. And, it kept our twins safe. Safe from those tiny microorganisms that could kill them. I know that, because I witnessed it first hand. So if my precious twins' lives were saved by a #mask , then I will proudly wear a mask, for them and everyone else.

    We have been under #quarantine for months. It's nothing new to us. Its familiar ground. They gone through grueling #Chemotherapy , and their blood counts would sit at zero for weeks.  So, we would stay at home.  Now, we keep them at home to protect them from the Corona Virus.  They've been through so much already, I cannot imagine them suffering in a hospital again.  

    Now, the virus has caused their treatments and appointments to be delayed or canceled.  My husband's employment has gone from 7 days a week, to virtually zero.  We are scared to bring them into a community setting.  

    They are strong and they are brave.  I am proud that they are mine. @OakleyTwinsJourney
    #Retinoblastoma #ChildhoodCancers #twins #Anxiety #Depression  #wearamask #RareDisease #sisters #Health #MedicallyFragile #Toddlermom #Deafness #cancerresearch #Awareness  #Safety

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