Epidermolysis Bullosa

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Epidermolysis Bullosa
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    Hi

    This is just a post where you can vent what’s going on? #EpidermolysisBullosa #EpilepsyFoundation #Autism #Depression #DistractMe

    2 comments
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    body positivity #Scars #ChronicIllness #Disability #Skin

    Hi Everyone I thought I’d share the link to an interview I did for a series of women with different types of skin conditions. I provided my input on what it’s like having a skin disorder in the beauty industry an environment that lacks on diversity. 🦋💓 https : //www.skinstories.us/stories/2019/6/28/meet-ariana-covarrubias ? fbclid=IwAR1httpVZi3zFJatatYFTQYRBZbl01nEbRMR6PQp6lo7qIvQlHcH9Ao5wmA #ChronicIllness #Disability
    #Advocacy #EpidermolysisBullosa

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    Living with Epidermolysis Bullosa Simplex

    People don't respect this condition and the pain the skin blisters cause me on a daily basis. It restricts my life espceically when I can not use my assistive devices prescribed by my doctor.
    #CheckInWithMe

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    #RareDisease #EpidermolysisBullosa

    My daughter has Epidermolysis Bullosa. She’ll be 20 years old. She is strong, tough, and confident most times. She shaved her head because the EB affected her hair follicles and she grew tired of the wigs and weaves.

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