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    My Daughter

    #Autism #ADD #PDA #HEDS #Anxiety #Skin Picking disorder #Isolation #parental shame
    #chronic Illness

    I am so worried about my 5 year old daughter. She will be 6 in November, and is on the autism pathway waiting for assessment. Potentially she has PDA, ADD and a genetic disorder I have called hEDS. She has only recently gone full time at school but they still won’t let her finish at the same time as her peers and I have to pick her up early from the office. Her school friends often overtake her home though, as she walks slow. Often her friends go to the park together or have arranged play dates. They are almost always in pairs. Other parents barely talk to me, let alone arrange play dates. I know my daughter has been feeling increasingly isolated.
    Yesterday I picked up my daughter from school and she was already feeling very sensitive, she was crying and fed up. She was passed by several friends talking about their play dates they had arranged. She wanted to go to the park, I also had my 3.5 year old son in a pushchair (he potentially has ADHD and also wanted to go to the park) but it was 30 degrees and I worried it was too hot, and she had already started crying and getting upset. (Of course other parents didn’t care about this). All of this resulted in a full on breakdown of epic proportions. She was so upset and so overwhelmed she struggled with her breath, she couldn’t stop panic crying. Other parents overtook us on the way home and said nothing, didn’t ask if she was ok. My daughter is well-loved at school even though she is very quirky and I find this behaviour from other parents so isolating. I honestly feel so alone sometimes.

    We got home and the continuous crying continued for about an hour. She wouldn’t let me touch her. She then proceeded to bite her fingers until they bled. She has been biting her fingers for about 10 months now, since she started reception year. She now has lumps on her fingers caused by scar tissue and infections. I am taking her to the nurse today, thinking she will get diagnosed with skin picking disorder (we are UK). Not sure how much they will do to help her as they continue trying to blame my parenting. I have done 6 parenting courses. Parenting SEND children is honestly so difficult, so thankless and no one helps you.

    I am wondering what is going on at school and why she leaves so sensitive. I wonder if it is a build up of trying to fit in over the day and masking. I worry she is being bullied by a couple of kids also (she tells me she was pushed at one point and called a baby by one boy). Also I think the isolation she feels from leaving at different times and being unable to make those connections is finally getting to her. It upsets me so much to see her like this. I have chronic illness (hEDS, fibromyalgia and a blood clotting disorder). Last week I was in hospital with a ruptured ovarian cyst, today I have the migraine from hell (I get bad pain, nausea, aura, blurred vision and unusual smells) and I feel like I can barely walk. Hubby is at work, I have no family near to help. I have to get my daughter into school with my 3 year old in tow. She doesn’t really want to go. Her attendance is already very poor (less than 60%). We are awaiting an EHCP assessment.

    I just feel so alone with it all. I am struggling with my own health, my children’s extra needs. How do I calm my daughter’s anxiety? How do I make my GP give us extra help? I have considered taking her out of school and homeschooling her but I feel I am not well enough or capable of that. I am worried about her biting her fingers and causing herself serious infection as her fingers look so scarred and awful and her hygiene is not good (she impulsively touches herself down below and always plays in dirt) and I am forever trying to get her to wash her hands and nails.
    My anxiety is through the roof. Just looking for support really also as in very short supply from other parent/carers from her school.

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    Food and Nutrition Friday: Skin Healthy Foods for Diabetes

    In addition to your diabetes management, you can boost the health of your skin with healthy foods. Skin healthy foods contain nutrients that aid in skin healing and help reduce inflammation. The following skin-healthy foods may also help lower blood glucose levels.

    🔸 Kale

    Kale is packed with vitamin C, a powerful antioxidant that helps neutralize free radicals that damage your body. Just one cup has 134 percent of your recommended daily value. It was found that those who consumed the most vitamin C had less dry skin, as well as fewer wrinkles.

    Additionally, one cup of kale contains enough vitamin A to help keep your immune system functioning and help heal wounds.

    🔸Sardines, Salmon and Light Tuna

    Sardines, salmon, and light tuna contain omega-3 fatty acids that help prevent dryness and other skin conditions.

    🔸 Walnuts

    Walnuts offer anti-inflammatory properties and vitamin E that helps heal skin conditions.

    🔸 Eggs

    Eggs provide animo acids that can help people with diabetes deal with skin issues.They are also a good source of biotin, a B vitamin that supports skin and nails.

    #DiabetesType2 #DiabetesType1 #Diabetes #prediabetes #ChronicIllness #Skin #skinhealthy #WholeFoods

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    Quick Tip Thursday: For Sensitive Skin, Lukewarm Showers And Baths Work Best, As Do Mild Cleansers

    Wash with mild soaps and shampoos and take short showers or baths to avoid causing irritation. Avoid deodorant or scented cleansers that can cause skin irritation.

    #DiabetesType2 #DiabetesType1 #prediabetes #Diabetes #type3cdiabetes #GestationalDiabetes #ChronicIllness #Health #Lifestyle #skinhealth #Skin

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    Extremely Dry Skin #Skin sarcoidosis, #Sarcoidosis ,#chronic pain,#Pain , #dry skin,#Fibromyalgia

    This is the extreme dry skin I was talking about..Any thoughts on healing it????


    Has anyone experienced severe dry skin on fingers from Prednisone or another med?

    My thumbs and forefingers are severely dry. Nothing works to heal.
    #dry skin, #Sarcoidosis , #chronic pain,# fibromyalgia #Skin issues


    Any Sarcoidosis Warriors out there with multiple organs affected?

    First diagnosed with Pulmonary Sarcoidosis im 1982 then it went into a remission of sorts, skin Sarcoidosis with ulcers and eye involvement with Sarcoidosis within past 10 yrs.
    #chronic pain,#Arthritis ,
    #Skin Sarcoidosis,#eye Sarcoidosis,
    # Rare Disease,#Sarcoidosis


    Suspicious Mole

    So I “went” to the doctors about a suspicious mole. He consulted another doc after I sent a photo and then wanted yet another photo . He said they agreed it was best to send photos on to the dermatology dept. At the hospital. But said he didn’t know what the timeline would be as the Coronavirus is affecting hospitals etc so much. Anyone have any idea of the normal timeline for dermatology to get back to you about a mole? Or even wait times generally for dermatology? Thank you! #Moles #Skin #SkinCancer #Doctor #Hospital #NHS #Referrals #Anxiety #Insomnia #Advice #help

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    time flies #Cancer DIAGNOSIS #

    #19 years since since my #IVBreast Cancer. since then during my # breast reconstruction another 11 myth nodes were remove# had to have a #Stomach transfer# last year fought #Skin Cancer all cancers were basil cell.

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    #LymeDisease #Fibromyalgia #Skin #itch #Feet desperate for any info regarding a horrible itchy burning rash on soles of feet only

    I am new here & am desperately seeking any help or info regarding this red, shiny, itchy, burning, painful rash that is on the soles of both of my feet. I suffer from Lyme Disease, borriella miyamotoi, fibromyalgia, migraines. I have been dealing with this rash for 4 years. it has gotten worse & I have been to numerous doctors and specialists and even a “grand round” of a team of approx 15 doctors at a medical center and no one can tell me what it is and no medicine I have tried to date has helped.