gastroparesissucks

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Feeling hopeless today. Another day of #Gastroparesis and I am either starving or throwing up because I couldn't stop eating from insatiable hunger.

Just as the title says, I am eating myself sick. It doesn't matter what I eat. Soft foods, liquids, regular texture easy to digest foods. Gastroparesis apparently causes hunger signals to get mixed up. I've eaten until I threw up twice today. I was at the ER Saturday from other GP complications. This is not a life. It's just suffering with little good bits mixed in few and far between. I'm so sick of specialist after specialist. I can't afford it. The copays, the meds, the special food, all the food that gets wasted. It's expensive. I'm disabled so it's a one income household. #ChronicIllness #Depression #BingeEating #gastroparesissucks

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Sorry, I kinda want to vent...

Today I met on video with Stanford health to address my stomach issues and to see what could be done. I had originally been diagnosed by my GI doctor with Gastroparesis. Today I was informed that the test they did to reach this conclusion was not fully accurate, and that I may not even have Gastroparesis, but something to do with my nervous system. To get a more accurate diagnosis, I will need drive several hours down to Stanford to do a four hour test, and an x-ray, and do an in person appointment because she couldn’t even check certain things through our online appointment.
I’m not really sure how to feel about all this. On one hand, I got to talk to a professional about my symptoms. On the other hand, she basically swiped the floor out from under my feet! Just as I was getting used to the idea of having Gastroparesis, and what that included (symptoms, diet, routine, I just found this app so I could have a community to talk to about living with Gastroparesis) the doctor tells me I might have something different! Now what am I supposed to do?! (She did suggest doing Tai Chi though, which I’m excited to try out because I haven’t been able to do yoga.) #Gastroparesis #gastroparesissucks #tummytroubles

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Tummy won’t even take pain meds!

Took pain meds for a headache almost two hours ago and haven’t felt any effects. Realized my stomach is taking it’s own sweet time getting the medication through my system. Now I have a headache AND a tummy ache.😩 #Gastroparesis #gastroparesissucks

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My furry spiky babies!

Having a hard day today. My anxiety is through the rough which makes my #Gastroparesis flare. Woke up with a headache and stuffy nose (most likely due to the 35 degree change in weather) but my brain immediately thinks it’s Covid. Took a nice warm bath and used some nasal spray, feeling a bit better. How is your day going my fellow #Spoonies ? #gastroparesissucks #Agoraphobia #PanicDisorder

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Anyone else?

Has any one experienced increased sensitivity to motion, cases of vertigo, and not being able to have anything causing pressure on their stomach like a waistband or belt? I swear the list of frustration a just keeps getting longer as time goes on.
#gastroparesissucks

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#gastroparesissucks

My wife made steak for dinner. I have been looking forward to it for the past two weeks...and all I can do is smell it because I am so nauseous...

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I want to give up on our Doctors nowadays..

Today I received news I should’ve received 6 years ago.. yes 6. I have had stomach issues that have been crippling all this time and I’ve had to push and shove every step. I started out being told I had anorexia as I dropped 30 lbs within weeks. Then I went to a 3 GI specialist who all said I had a functional disorder (aka something’s wrong but we don’t know what and don’t want to figure it out). I find a video on YouTube about a year back of someone with a very similar story to mine, and she had gastroparesis.. from then on I pushed and pushed to just be tested, and no one would listen. I finally got a doctor who didn’t care what he sent me for, and I come back with.. low and behold, gastroparesis. I even had to fight for my POTS diagnosis. The sad fact is so many people have to sit and fight their way to a diagnosis in this day and age because doctors don’t seem to care about our wellbeing anymore... it makes me sad to see people suffering like me with no help from the people who are the ONLY ones that can help the most.. #Gastroparesis #gastroparesissucks #AutonomicDysfunction #LivingWithPOTS

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Everything changed overnight #Gastroparesis #gastroparesissucks #ChronicIllness #Depression

I sit here and wonder if it could have been prevented. I had a virus that completely attacked my digestive system and my body has never and may never recover. The aftermath has been so damaging to my body and my mind. I feel like this has made me become more bitter as a person. One night my entire life changed, and now I’m fighting to take back control. I know mine isn’t as severe as others are. I just needed to vent
#anger #frustrated #Loneliness

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