Hodgkin's Lymphoma

Join the Conversation on
Hodgkin's Lymphoma
407 people
0 stories
171 posts
About Hodgkin's Lymphoma
Explore Our Newsletters
What's New in Hodgkin's Lymphoma
All
Stories
Posts
Videos
Latest
Trending
Post

Tw: Death in family #Dementia #Depression Death and Health Inurance woes

Today I'm so sad and #Depression is coming into play. My dearest Aunt who's been my rock up until she forgot who I am thanks to #Dementia is dying. My cousin texted me yesterday and told me she's in Hospice and they've given her 24 hours to live. Such devastating news.
She's still hanging on. I'm waiting for that dreaded call. She's been gone a long time as in the #Dementia has had her it's grips. I've grieved the loss of all things it's stolen from her, my uncle, her friends, family and me. Such painful time. I just lost a good friend to #Hodgkinslymphoma #Cancer just about 5 weeks ago. I have barely been able to process it and now my aunt.
My aunt will no longer be suffering, but she shall be missed. It's still hard. She's the one person in my family that loved me unconditionally. The rest were abusive.

So...also Today I received notice that my insurance is not covering my therapist anymore due to not medically necessary. What b.s. ! They didn't pay for April's appointments. I just can't. I can't lose her now. I lost my other great therapist last November because she left the practice. I called the office requesting my therapist call me, which she has. She's going to have a woman in insurance/billing department call me. I'm so anxious. #Anxiety is awful. I hope beyond hope this can all be straightened out. I hate insurance companies. I feel bad saying that, because so many don't even have any insurance.
There are no true words that describe how I feel. Angry, sad, anxious, don't truly cover it but it's the best that I can do. I'm hanging in there as best I can. Thankful I have support from a few friends.
#Dementia ...I Hate you!!! #Depression #Anxiety #ComplexPosttraumaticStressDisorder #Migraine

10 reactions 2 comments
Post

Survival TW…

Was thinking about everything I have been through here is a semi positivity for today.
I survived
I survived #Hodgkinslymphoma twice
I survive #Survivor of rape and or molestation multiple times
I survived being in the icu for a day
I survived #SuicidalThoughts
I am making it
My ex did not destroy me
I survived

1 reaction
Post
This photo may contain sensitive content.

Grateful Anal Cancer Survivor

What on my mind is this cancer really sucks and my god has to have a sense of humor,I say this because I was born under the sign
Cancer ,but now after going through it I dislike the word, I was diagnosed with anal cancer and Hodgkin lymphoma in 2009 survived both but anal cancer came back this Mar of 20022 and that left me with a permanent colostomy bag.

1 reaction 10 comments
Post

Hi new to group

#Hodgkinslymphoma I currently am 31 and I have had Hodgkin’s twice in my life starting when I was 22 and again when I was 24. It has taken a lot from me been 6 years in remission since September 12 when I had a bone marrow transplant. I have damaged lungs memory problem and anxiety. I keep trying to push my life forward seems like I’m starting over in my 30’s and hopefully won’t have anymore life stopping diagnosis like this again.

Post
See full photo

Cancer survivor but still struggling

Today is National Cancer Survivors Day

When I was diagnosed with cancer (Hodgkins Lymphoma) in 2015, my world was turned upside down. I never saw this coming and it shook me to my core. Thoughts went running through my mind. I was scared, worried and depressed. Thankfully I caught early before it had a chance to spread. I went into surgery to remove the cancerous lymph node, quickly got chemo and radiation treatments. I was determined to beat this but the toll it took on my body and my mind made it one of the most challenging times in my life. By the grace of God, the treatments worked and within a year there was no more evidence of the disease. I don’t know why I was blessed to beat this when so many other people would not. Being a cancer survivor does not make everything better. Sure I was spared a death sentence, but it took so much out of me that my dive and positivity disappeared. It’s been 7 years since my diagnosis and not a day goes by that my mind does not worry about it coming back. I went into a deep depression and it ruined my relationship with family. I may have seemed strong on the outside, but I was torn up inside. I am deeply thankful for all of my family and friends who supported me because without them I probably would have given up the fight.

I hope my survival is an inspiration to others. I pray I never have to see cancers ugly face again and I hope that with more time passing I will climb out of my depression and begin to enjoy life to its fullest. This is not an easy journey and I still think of “why me?” almost every day. I wanted to share this with everyone because so many people don’t have a clue what someone goes through when they hear the words “you have cancer”. If I can open a small window inside me to let people understand my struggle and fear, then perhaps it will educate at least one person to be more compassionate and then it is worth the vulnerability I must face.

Take time today to reflect on this importance of this day and realize that being a survivor is not as easy as the word implies. Say a prayer for all of those who faced cancer head on and don’t have the blessing of being able to use the word survivor. I hope no one has to go through this, but I know that will never be possible in my lifetime. Reflect on the word survivor today and give support to those who are struggling post treatment. We are only as strong as the people around us and if we can form a strong army supporting those in the battle of their life then hopefully people will find the strength and positivity they so desperately need!

Doug

#nationalcancersurvivorsday #teamdoug
#Cancer

Post

Remission

#Cancer
Following CT scans that my GP/MD organised for me; blood tests and a consult with my haematology specialist last week, I can reveal I've now passed the three year mark as far as my remission is concerned. I was diagnosed with High Grade B Cell (non) Hodgkin's lymphoma in September 2018. This was considered to be a relapse from lymphoma I had in 1992.
I will continue to have six monthly check-ups and I think annual CT scans. I'm allowing myself to become a little excited despite my my complex mental health issues issues! I'm on track to pass the golden 5 year mark, when 50% of lymphoma patients are considered to be cured.

3 comments
Post
See full photo

Hi my name is Kerry and I have depression anxiety and Myotonic dystrophy type one

Hi my name is Kerry and I have depression anxiety and Myotonic dystrophy type one Also had to cancer at 18 Hodgkins disease

2 comments
Post

Feeling #lonely and depressed. Scared I’ll always be alone romantically.

#lonely
I'm 33, single and have only had one long term
relationship, 3 years, but he didn't love me, and would
say really unkind things that made me feel not good
enough.
Prior to that relationship I dealt with
alcoholism in my immediate family as a young child and
teen. So I've always had very low self esteem. I was
teased very badly for the entirety of secondary school
because I turned to food as a comfort and was 24 stone
by the time I left school at 16. My Mom then became
very ill and spent many months in hospital with MRSA
and septicemia, and didn't recognise me or my brother
because she was so ill. It ended with her having her
right leg amputated. She was unwell for years.

I went to do my A Levels at 21, got down to 15 stone
7, was happy and doing well..the month I
completed my A Levels I was diagnosed with stage 4
Hodgkin's lymphoma and had 6 months chemotherapy
and lost my hair and dealt with everything else that
entailed. That obviously had a huge impact on my
mental health and I honestly don't think I've been the
same since.
I met my ex boyfriend not long after all of that and
stayed with him for 3 years, but as I said it wasn't a
particularly healthy relationship.

My Mom then became very ill again as a result of
neurological painkillers she was given for the phantom
pain in her amputated limb, she was taken off of them
too quickly which caused grand mal seizures for years.

After that I decided to go forward for weight loss
surgery, I had a vertical sleeve gastrectomy, and lost 10
stone, however I did put about 1.5 stone back on in the
initial lockdowns as I had only had my op under a year
prior and my new lifestyle was not ingrained yet.
Then obviously covid happened which has caused most
people a lot of stress.

I have a job in a retail store that I enjoy, when I can cope
with my mental health. I am also doing a degree in art
and design, including learning ceramics and
printmaking which I really love! I often get anhedonia
though and so can struggle with it when I'm not well.
Since being diagnosed with cancer at 23 I've been
certain that I want to marry and have children of my
own. My brother is married and has a wonderful wife
and two gorgeous children. So I have a lot of joy in my
life, I also have a very good relationship with both of my
parents dispite the alcoholism in my childhood.
I have some very good friends and I know I'm very
blessed to have all of these things.
I want so badly to find 'my person' though and it
genuinely worries me that I never will.

Met someone at work last year who I liked and he
seemed to like me, but all he wanted was fwb which is
not something I can do, I get too attached and it's not
what I want. I then went on about 4 dates with a guy
who I just 'clicked' with, we talked all the time, he
seemed to be as interested as me and then he just
disappeared. Came back said he'd made a 'huge mistake' then did it again. It hurts like hell and I'm so confused. He’s now blocked me on everything. #lonely

2 comments