Caring About People with Myasthenia Gravis
I face #Loneliness and #Isolation as a person with a questionable immune system because of my #Cll (Chronic Lymphocytic Lymphoma) and because of the scapegoating and blame I receive from my two adult children who can't seem to be bothered to understand the #ComplexPTSD (#CPTSD ) I suffer as a result of horrible childhood trauma. I consider myself fortunate to have known two people who, unfortunately, suffer from Myasthenia Gravis. My loneliness and isolation both cause Complex PTSD triggering and are caused by it. When I find someone for whom I have some affection, I can become overly reliant on them for the connection I so desperately need. I experience(d) affection for both of these people, one deeply so and currently. Knowing that stress can trigger an MG Crisis, and that she is sometimes laid low for days and days by her treatments, I have had to learn to manage my triggers, which I'm not doing so well with right now. I'm doing better at keeping them to myself instead of aiming my desperation at her. Because of my affection for her, she is my teacher. In past relationships, which this currently is not, although the affection is mutual, I let my "CPTSD flag fly," and ended up inadvertently hurting people. I can't do that with her. If I do, no matter the form of her feelings for me, I will stress her out which could have negative impacts on her health. So, I'm hoping people with MG will find this and, by reading your posts, I will learn more about how difficult it is to maintain relationships of any kind when MG is involved. From others who care about someone with MG, I hope to listen and learn from your experience and, together, find ways to be good friends, lovers, partners, whatever. For those who care for people with MG, I hope to learn what I need to know to be helpful. I've done a lot of research into MG. It's exceedingly complex, with such varied and far-reaching implications on one's life. I want to be a good friend to this person I care so deeply for and starting a group here seems like a good way connect with others to keep myself in check. She has needs of her own and I want to be a help, not a hindrance, and in so doing, I will be healing myself of my CPTSD woundedness. Welcome. Introduce yourself. Say what you bring and how you'd like to benefit from being here.